No growth

FemNik214

I apologize first off for my keyboard being dumb but some of the keys aren't working so we may have no punctuation.

Now for the issue. My two month old has been officially diagnosed with DiGeorge Syndrome, she has a macroformed cleft that completely closed in utero all thats left is a little scar on her lip and her left nostril is somewhat collapsed. Her immune system tests, calcium, thyroid tests have come back normal for now, but since it isn't fully matured yet there will be more tests. Her heart has one of the arteries arching opposite of what is normal but no biggie. Everything is comeing back on the normal side but she's not growing. with DD1 she was almost out of 0-3 month clothes already and DD2 is still in newborn, she's gaining weight but not growing. I'll address it with my doctor at her next check up but i'm starting to get concerned. has anyone else dealt with this

EmAre

In what way do you mean she is not growing? If she is gaining weight, then she is growing. Is her length getting measured at each appt?

For what it's worth, my daughter was in newborn clothes for a very long time. Her growth is slow, but she

FemNik214

I appologize for not clarifying she's not getting any taller/longer. she's gained weight but something in me is telling me that it's not enough or what it should be.

gremaud07

My son has DiGeorge  and has many of the same problems.  Compromised immune system, hypothyroid, heart defect, low muscle tone. Now we have speech delay and and sensory seeking. He is doing extremely well despite all the problems that he has