Special Needs
jbranden12
member
Intro / Pediatrician Question
jbranden12
member
Hi ladies, I have been lurking but haven't posted yet. My daughter Anna is a former 26 weeker who is now 37 weeks and we are close to getting out of the NICU but still working on feeding. Anna had a grade 4 IVH on the right, grade 2 on the left and has large PVL and porencephaly on the right with non progressive hydrocephalus. Obviously we can't be sure what this will mean for her future, but based on the abnormal reflexes she is already showing we know we have a tough road ahead.
We are interviewing our first pedi tomorrow. Are there any questions you asked or would have like to ask before signing on with them?
Our Angel Patricia born sleeping 3/30/12 at 31 weeks
Our Fighter Anna born early 1/8/13 at 26 weeks
Hoping to bring home #3 due 9/9/15
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Re: Intro / Pediatrician Question
Congrats on your baby girl! My DS1 was born full term but very stiff and was sent to the NICU. He had no suck/swallow and spent 12 days learning how to do it. Thankfully he figured it out and is home. We had so many specialists
ToastieSimoms, thank you for your input! I'm glad your DS picked up suck/swallow. For a while they thought A had dysphagia and was silently aspirating but she seemed to figure it out, now it's just about building endurance.
I hadn't thought
I would also ask your specialists for recommendations. Our pedi came highly recommended by our neurosurgeon and cardiologist when we asked for a peds rec. needless to say, when both separately recommended the same person, we felt pretty con