Baby with MCAD???

Dash02

I originally posted this on the 0-6 month board & other posters suggested that I repost here hoping there might be others here who can help:

I'm hoping there is someone out there with some help, advice, tips, reassurance! We just found out that our almost 8 week old son tested positive for MCAD on his Newborn Screening test. Of course I made the mistake of googling and reading some things that terrify me and some things that make me feel less freaked out but I would love to hear from other moms who have babies with MCAD to find out how they deal, what the prognosis is, etc. We are meeting with the genetics department next week but I'm so nervous and worried! I was EBF until this diagnosis. DS was gaining weight but  very slowly so in addition to my pumping breast milk to supplement his feedings we are also adding in some supplementing with formula. We are feeding every 3- 3 1/2 hours to make sure he doesn't go too long but prior to this he was sleeping about 5-6 hours straight through the night. I'm so nervous that this could have already negatively effected him! HELP! Also, DS will be starting full time daycare in 4 weeks when I return to work and I am nervous about how to advise our daycare staff to care for him properly