Keppra

ally81698

DD used to be on Phenobarb and Keppra since she was born.  When she turned 1, they took her off the Keppra since her levels therapeutic and her EEGs came back normal.  Her neurologist's plan was to start weaning her from the pheno at 2 yrs old, as long as she is seizure free. Well, now that she's almost 2, we took her for an EEG and there were spikes everywhere so there's no way we're weaning her now

The new game plan is to take her off pheno because it is not recommended for a 2 year old and switch to keppra (higher dose than before).  I just pray this is the right path.  Is anyone alse's LO on Keppra?

Any input would be appreciated!!

-T-

I'm so sorry to hear about her EEG. It's tough to get that news when you're so hopeful.

I don't have a lot of help in the med department, DS was on both Phenobarb and Keppra but has been off for quite some time. I do know that Phenobarb is not re

Florak8

We tried "outgrowing the dose" when DS was about 18 months and ended up in the epilepsy monitoring unit with  a bunch of seizures. It stinks and it is disappointing. Sorry.

We have had DS on Keppra since about 6 months of age, so prett

Paigeo

My almost 5 year old has been on Keppra since she was 4 months old.  We weaned her off of it around age 3.5 after being seizure free for 2 yrs.  The seizures started again within a few months of being off the meds so we put her back on.  As