I lurk on this board frequently, I may post more often so I'd like to say hello. My son was born with a congenital diaphragmatic hernia. He had a rough time in the NICU and spend 5 months there.
He had an MRI done before he was 10 weeks old that showed right side PVL. They didn't share very much information with me, stating they don't know much about that area of the brain but it does affect movement. They said worse case scenario would be CP. He is delayed in every area and is getting PT and OT twice a month at the children's hospital and twice a month through EI at home. He seems to move both sides symmetrically, so I'm hoping that someone might share how their child's CP diagnoses came to be. It's something I constantly think about and I would think that at 14 months I should see signs of CP if it's something that is in our future. I know therapies are huge for his development right now, so we try to get as many services as we can. Thank you for your time, I hope to post more often!
Re: S/O PVL
My son got a cp diagnosis from his neuro at around 2.5 he is almost 3.5 but it doesn't really mean anything. It is based on the fact he was born with a brain anomaly hyopoplasia of the corpus callosum and microcephaly and has minor tightness in
CP presents in a few different ways. The most common is spastic diplegia where the legs are most affected. But it can present as legs, legs/arms, left side, right side, 3 limbs (legs and an arm for example), etc. There are also different kinds of CP: s
Thank you for your responses.
There are so many things that DS does or doesn't do that I don't want to jump to a diagnosis but I also don't want to overlook them. So many things could be from CDH or GJ tube or just a long NICU stay.
Since your son's eye turns in most of the time, I would see a pediatric ophthalmologist. That should not be happening and could end up hurting his eye sight later on. DS2 as with the pp had strabismus with esotropia and is also fairly farsighted.
Eyes have always been a concern. My brother was born cross-eyed and had surgery to correct it, so it's already in my family history.
He is seeing the ophthalmologist the NICU referred him to. We've seen him 3 times and every time he says we