Not trying to make something more than it is...and update

grbnik

Hi All,

So, I am just curious.  I just had my son's 3 year appt, and all went well.  He doesn't have any diagnosis(ses); my DD is the one we struggle with in terms of SN with her feeding and speech issues.  However, my son (who is on his 2nd set of ear tubes) is the only kid in his daycare who covers his ears during their 'pep rallies'.  It is when they have 200 kids and teachers in a small space, and I have been to one, and it is super loud, and kinda hurts my ears.  Yet, the other kids don't cover their ears when they do their cheers, and my son does.  Also, he is super photosensitive.  I am as well.  We just got our family pics done at JC Penney's and he would only smile for one with eyes open; once the flash went off, he covered his entire face with his arm in the crook of his elbow (I felt awful).  But, I do understand since I have always struggled with this myself.  Is this something that warrants a talk with our Ped?

DD is doing a bit better- she is teething, so of course, the eating is really suffering.  She has tons of energy though, and is getting better with sounds (almost saying words some words, and she babbles dadadada still).  I still worry about brain development, but it doesn't seem like we are struggling with that (unless the speech doesn't improve soon). 

Haven't posted in a while, so wanted to jump in with a little bit of an update on us.  I am still trying to figure out why I am nauseous all the time (was diagnosed with Epstein Barr (Mono) back in Dec, but the nausea won't go away, so now they are going to scope me to look for ulcers- yah think??  haha). 

Hope you are all doing well!

robynlesley

Hi there!

IMO, your son potentially has some sensory issues--and if only related to loud noises and bright lights, that seems relatively mild. I'm sure some of the noise avoidance is related to the tubes (did he have prior hearing loss?) as my son reacts similarly.

My DS has hypersensitivity to sounds and will always cover his ears when it's too loud. Before OT he'd flip out and run off. Now he covers his ears. He also has other sensory issues, mostly proprioceptive dysfunction and difficulty with motor planning. 

I think if your son's hypersensitivity to loud noises/bright lights affect him to the point where he can no longer be in the pep rallies or take family photos, then speaking to your pedi couldn't hurt. At the very least you could get tips on how to help him deal with the challenges. That's mostly what I'm doing (and did previously with OT when DS was in EI).

Good luck. 

malcivar

It never hurts to talk to your doctor.  I had tubes in my ears as a child as I had lost hearing in my left ear and was losing it in my right due to chronic infections.  Ended up having a tonsillectomy and tubes.  However, ever since then, I'm sensitive to certain sounds - like loud clanging.  When DS was a baby and liked to bang on the pots and pans, it was not fun for me.  

Like PP said, if you choose not to go to your dr just yet, just watch it and make sure it's not completely interfering with his ability to participate in the pep rallies and/or take pics.  

Good luck. 

Princess_Lily

After DS's birth, they found out that after a bad cold I had, I have been carrying EB my whole life.  Just thought I would say hello from a fellow EB momma

Sometimes Pedi's are reluctant to screen children unless their behavior is interfering with their daily life.  When I couldn't keep DS in a large preschool setting, it warrented evaulations.  We found he does have sensory issues, specifically relating to tactile.  As a baby he had more sound sensitivity than now, unless there is a major crowd event (amusement park, concert) we will not see any meltdown (DH & I will also have difficulty focusing and find we have low tolerance for it as we are getting older).

Currently we only will see him cover his ears when he is startled by a loud noise (our dog barking, a car horn/siren)