Talk me off the ledge

DixieNormous330

I just scheduled DD's PEG placement for March 7. I know this will help her with ALL of her development. I know this is the best thing for her. I still want to vomit.

I'm panicked about the cost of the formula, I'm panicked at how my H is (not) handling things so well, I'm upset about this new level of acceptance that we have to deal with.... 

I am just not in a good place right now.

JoJoGee

**HUGS**

Transitions such as this can be hard.  It's okay to feel upset, angry, worried, relieved, panicked, and anything else you may be feeling at this time.  Allow yourself to have this moment and then take a deep breath.

I can tell you, having gone through this,and various other surgeries and adaptations, everything is going to be fine. Sure, it may not be 'Leave it to Beaver,' puppies and rainbows with a white picket fence fine, but eventually, it will all be fine. You'll get acclimated to the PEG and all the other stuff that comes with it. And, I bet your H will too.

MH has had a hard time accepting certain aspects of Lily's condition. In Lily's circle of care, I am often the first person to detect or push for certain things.  At 1.5 months old, I had a gut feeling she needed a trach. At 1 year old, I had a gut feeling that she had CP. And, these days, my gut tells me that she will never walk independently. DH, on the other hand, believes in giving her the benefit of the doubt. And, as a result, he can seem like an ostrich, with his head stuck in the sand.  But, eventually, he comes around.  Give your H time.  Help him see what you see. Eventually, he'll have to deal.

Finally, when you have a moment to settle, you may want to see if your insurance will cover the cost of formula.  Between our private insurance and Lily's Medicaid, Lily's pediasure is completely covered.  Our DME sends 30 cans out every month along with her other feeding supplies.

GL!