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preggersINschool25
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GTKY
preggersINschool25
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I just kinda jumped in without introducing myself, and I wanted to get to know you guys a little more. So, here it goes. I'll keep it short.
1. How many kids do you have? Ages?
2. What is your child's DX or symptoms?
3. What age did you or someone else know something was different? What did you notice?
4. What do you love most about being a mom?
5. What is your job?
1. How many kids do you have? Ages?
2. What is your child's DX or symptoms?
3. What age did you or someone else know something was different? What did you notice?
4. What do you love most about being a mom?
5. What is your job?
This discussion has been closed.
Re: GTKY
1. How many kids do you have? Ages?
Just one kid. He is almost 1.
2. What is your child's DX or symptoms?
He is GDD, has hypotonia, and has feeding issues.
3. What age did you or someone else know something was different? What did you notice?
I noticed around 4 months, but really voiced my concerns at 6 months. He wasn't reaching for anything and he would let his head fall hard during tummy time.
4. What do you love most about being a mom?
I love his smiles and giggles. He does so many cute funny things.
5. What is your job?
I lost my job when I broke my foot, so I'm a fulltime mom right now.
One son, 18 months.
2. What is your child's DX or symptoms?
Holoprosencephaly, Agenesis of the Corpus Callosum (both are brain abnormalities), a neural tube defect called an Encephalocele (hole in skull), and a dysplastic kidney.
3. What age did you or someone else know something was different? What did you notice?
He was prenatally diagnosed at 21 weeks. They noticed a few things at the anatomy scan and sent me for a level 2 u/s to confirm some of the defects. A few of the other diagnoses came during his NICU stay.
4. What do you love most about being a mom?
I love watching him get excited about learning new things. His "proud" face is adorable.
5. What is your job?
I am a nanny. I have worked with my current family for almost 5 years, and I bring DS with me. I watch 2 boys who will be 6 at the end of the month and 10 in early March.
1. How many kids do you have? Ages?
I have a DS who is 21 months and DS2 is due May 2nd
2. What is your child's DX or symptoms?
DS1 was diagnosed with ASD, I guess specifically PDD-NOS, yesterday.
3. What age did you or someone else know something was different? What did you notice?
It's hard to say. I guess my first indication was when he didn't transition to pur?ed foods until 9months. I thought that was just an isolated incident. His physical milestones were always slightly delayed but it wasn't until 15 months that I noticed his speech wasn't developing and it wasn't until 18 months that his speech was significantly delayed. I thought all his sensory issues were because he was a quirky toddler. Its tough having a SN child as your first because you don't know what's normal!
4. What do you love most about being a mom?
My son is so joyful! I love watching him explore and he gives the best hugs!
5. What is your job?
I have been a stay at home mom since my DS was born! I was a high school math teacher before that.
1. How many kids do you have? Fraternal twin boys Ages? 4
2. What is your child's DX or symptoms? One of them is typically developing (though he's had issues with lots of food allergies and asthma); the other has hypotonia (which caused gross and fine motor delays and oral motor issues so he had PT, OT and feeding therapy), anxiety, mild perseverations and SPD, which went from "moderate" to "mild" after 15 months of therapy. There are also some social and other concerns that aren't captured in that but those 4 things are what the devel pedi concluded after evaluating him this fall.
3. What age did you or someone else know something was different? What did you notice? Gosh, that's a long story. There were a lot of little things here and there starting in infancy. He always seemed "floppy." He was the most sedentary baby and toddler I'd ever seen. He wouldn't make eye contact at close range until 18m ... but it was mysterious b/c he would if you were more than 4-5' away. He would always meet his gross motor milestones just when I started to worry ... until he turned 2 and then the gap with his peers really started to widen. He was extremely cautious. He was still drooling at 2.5 and totally unaware of it. He tended to gag and choke while eating, like he still hadn't gotten the hang of how much food to put in his mouth and how to move it through his mouth without choking. Wasn't interacting with peers at all by the time he turned 3. There's more but that's the bulk of it. I had questions for my pedi at a bunch of well visits, stopped worrying somewhat from 18m-about 2y3m (since for a while it seemed like he was catching up at his own pace) and finally contacted EI at 2.5.
4. What do you love most about being a mom? The snuggles and the neat conversations.
5. What is your job? SAHM, though I have a couple very PT WAH gigs.
1. How many kids do you have? Ages?
2 girls, dd1 is just over 3 & dd2 will be 2 this month
2. What is your child's DX or symptoms?
in my siggy, although dd1 has had major improvements in her bladder/uro issues
3. What age did you or someone else know something was different? What did you notice?
I had horrible pregnancies both were high risk and I had a partial placental abruption with dd1, dd2 had placental issues as well & also had IUGR. But, after birth, we noticed dd1 had significant torticollis and started PT at 2 months, we saw neuro at 6 months and had MRI to confirm prenatal stroke & mild CP, the other diagnosis just kinda kept popping up & adding on. DD2 has an immune disorder that is better as well, but spent a lot of time in the hospital on/off & has issues with periodic fevers (105+) that last for days.
4. What do you love most about being a mom?
I love that I am their go to # 1 person, but dh sees the girls 30mins a day 6 days a week if he is lucky so I'm more like a single mom. When dd2 wraps her arms around me or dd1 tells me how much she loves me, it makes it all worth it.
5. What is your job?
I've been a pharmacy technician for 11 years now, I was pre-nursing but had to drop classes when I was put on bedrest with dd1. Still haven't made it back!
2. What is your child's DX or symptoms? Deaf
3. What age did you or someone else know something was different? What did you notice? She failed the newborn hearing screening. Diagnosis confirmed at one month.
4. What do you love most about being a mom? Seeing her achieve new things. She truly is remarkable.
5. What is your job? Mom. Previously I was a research tech at a university.
2. What is your child's DX or symptoms? DD has a gross and fine motor delay, caused by gravitational insecurity and sensory issues with her vestibular system. She also has low tone in her core. DS has an eye defect that causes one of his pupils not to dilate.
3. What age did you or someone else know something was different? What did you notice? With DD, she had torticollis that we noticed around 8w old. She was in PT for that and gross motor delay from 2-18 months. She didn't bear weight on her arms until 7ish months, rolled over at 8 months, crawled at 11 months, walked at 18 months. When she was 2.5 and better able to verbalize how her body was feeling, I had her evaluated by an OT and they finally figured out the vestibular piece. She's been getting PT since basically birth and OT since 2.5, now on an IEP at kindergarten for both. DS's eye issue was present at birth, but we noticed it at his 4 week appointment. So far, all of his testing has come out normally, but we have to take him in for rechecks pretty often.
4. What do you love most about being a mom? I love seeing my kids play together and watching their imaginations develop.
5. What is your job? I'm a SAHM now, but I worked in international development before kids.
Great idea!
1. How many kids do you have? Ages? 3 and 2
2. What is your child's DX or symptoms? My three year old has an articulation delay and sensory processing issues. My two year old has an expressive/receptive language delay, low tone (which oddly enough never caused her any motor delays), and sensory processing issues. We are having her evaluated for ASD.
3. What age did you or someone else know something was different? What did you notice?
With my older child, at 18 months I was concerned due to lack of language (though my pedi brought it up at 15 months and I decided to wait it out). We got him evaluated by EI where he tested at the 9 month old level of receptive/expressive language. We didn't know that he had sensory issues until his SLP told me his behaviors were atypical. His language delays were resolved in a year and he's left with just an artic delay.
With my youngest we were more proactive/knowledgable. We had her evaluated at 17 months due to the fact her speech hadn't progressed since 12 months/she had fluid in her ears and wasn't listening well. I requested an OT eval for sensory issues early on in the process since I knew what was concerning.
4. What do you love most about being a mom? Hugs and kisses, watching them grow and learn new things.
5. What is your job? I SAH during the day, waitress at nights 1-2 days a week for extra cash.
1. 1 daughter. She just turned 2.
2. Prenatal stroke/ hypoxic ischemia encephalopathy with major loss of white matter. Hypotonia, feeding issues, failure to thrive, global development delays, microcephaly, cerebral palsy
3. I was in denial for a long time but there were things I noticed around 4 months. Our pediatrician raised the flag at 6 months regarding her head size and hypotonia.
4. I live for her laugh, smiles and snuggles. Her wide-eyed curiousity even if she is unable to move to get to figure things out.
5. I'm a desk jockey.
1. I have 1 DS and he will be 4 next month.
2. DS has PDD-NOS
3. DS was 1 and was attending daycare. The daycare teachers told me of delays that they saw. I did not notice until much later when DS was 2 almost 3. I did go through with all therapies since DS was 1.
4. Everything. DS will come and say "I love you!" and hug me. Hearing DS call me by mama is nice, too.
5. I work as a program specialist at a university under a grant.
1. How many kids do you have? Ages?
I have a son who will be 3 on Sunday and my DD is 15 months old.
2. What is your child's DX or symptoms?
My DD has food refusal issues, and is delayed in speech.
3. What age did you or someone else know something was different?
At 9 weeks, she started her refusal, and she has been in feeding therapy since 8 months old. Her speech is getting better, but she still doesn't repeat any words, and just babbles mainly.
4. What do you love most about being a mom?
I love all of it. Even the crappy times. I wish I could be a SAHM. Every moment is one that I want to be part of with my kids. I know that sounds corny, but my kids are my life.
5. What is your job?
I am a Director for a non-profit (brain injury).
1) I have one DS he's 4
2) ASD, specifically PDD-NOS
3) I noticed he was busier than other kids at about 18 months but brushed it off. He's our only. Just before 3 I put him in an inclusive public preschool, within a few weeks the SpEd teacher approached me, by the end of November he had an IEP and a referral to a Dev Pedi. He got the Dx in July.
4). My kid is so much fun. Lately, I've been loving just watching him figure stuff out. His laughter. Hugs and kisses.
5) I'm a SAHM. I never expected to SAH beyond the first year because I didn't expect to enjoy it. Well I didn't enjoy that first year but since then it's been great. I used to work for a financial company. I was very good at my job but also very bored.
DS 09/2008
1. How many kids do you have?
2
Ages?
M is legally 10, biologially about 12.5 (adopted 2.5 years ago at legal age 7)
J is 6 (adopted almost a year ago at age 5)
2. What is your child's DX or symptoms?
M has a fetal alcohol syndrome disorder (and dyslexia) and had a congenital heart defect (coarctation of the aorta) until we had it repaired just after we brought him home (at legal age 7)
J has Neurofibromatosis, type 1, and recurring sinusitis that we believe has a deeper cause.
3. What age did you or someone else know something was different? What did you notice?
For M, they discovered the heart defect about 6 months before we adopted him. We knew he had learning difficulties at the end of his first school year with us, so about 9 months after we brought him home, at legal age 8. We discovered the FASD this past December.
J was diagnosed with the NF1 at birth when he also had pneumonia. The recurring sinusitis was diagnosed shortly thereafter.
4. What do you love most about being a mom?
Watching them excel and learn new things, especially watching their character and control grow. Also, how much fun the boys are!
5. What is your job?
For now, I'm a legislative analyst, but that will change in the near future.
1. How many kids do you have? Ages?I have two DDs, ages 2.5yrs and 6.5wks
2. What is your child's DX or symptoms?DD1 had torticollis and positional plagiocephaly as an infant and was recently diagnosed with reactive airway disease
3. What age did you or someone else know something was different? What did you notice?I noticed when she was 2 months old regarding her plagio. The right side of her head was pretty misshapen and flat. She had a chronic cough which we thought was recurring croup because the pedi kept telling us that coughing is normal. Then, six weeks ago it was really bad, so that is when we knew something was wrong.
4. What do you love most about being a mom?I love the cuddling moments with both DDs. I am just happy if they are happy.
5. What is your job? I am an Occupational Therapist and I work with medical/surgical patients in a hospital
Great Idea!
1. How many kids do you have? Ages?
Just one. DD just turned 2.
2. What is your child's DX or symptoms?
DD was born 14 weeks premature which has led to a whole host of DX...
Laryngomalacia, Tracheomalacia, Glottic Stenosis and Subglottic Stenosis, all of which have led to a Tracheostomy.
Oral aversion, GERD and possible dysphagia, which have led to a G-Tube.
Farsightedness and Strabismus, which have led to glasses (which DD will never leave on).
Cerebral Palsy resulting from PVL. And, overall grey matter loss.
Chronic Lung Disease, Reactive Airway Disease, Compromised immune system, Nephrocalcinosis (resolved) and ROP (resolved).
How's that for alphabet soup!
3. What age did you or someone else know something was different? What did you notice?
Well, with DD being so premature, we expected some complications. Most of the medical DX showed up while DD was still in the NICU. She began missing milestones around 6 months old (3 months adjusted), so we got a few therapies lined up but progress was slow. I noticed around 9 months old (6 months adjusted) that DD favored her left hand and would often fist her hands. I pushed for her to be evaluated for CP when she turned 1. She got her DX at 1.5.
4. What do you love most about being a mom?
There is a lot about being a mom that I love... Watching DD triumph over adversity (those AHA moments of hers). Being one of two people who can comfort her when she's upset. Seeing how excited she gets when she sees me. Watching her grow up in front of our eyes.
5. What is your job?
I'm the director of religious education at a medium sized Unitarian Universalist church.
1. I have only one child who I adopted thru foster care system. He is 2 1/2 yrs old.
2. He has speech delay and SPD.
3. I noticed sleep problems at around 6 months old, then speech problems around 15-18 months old.
4. I love many things about being a mom. I love those sweet tender moments where he gives a hug or kiss and says love you. When he does something new or says a new word I almost wanna cry.
5. I am a single mom and I am a registered nurse.
1. How many kids do you have? Ages?
Nate, 3 yrs
2. What is your child's DX or symptoms?
Three intersitial deletions on chromosome #1 causing the following (known)issues: hypoplasia of the corpus callosum, hypoplasia of the cerebellar vermis(we think), mild-moderate hearing loss, ear tubes(x2), nystagmus(spasmus nutans), strabismus(resolved), immature macula(resolved), high occular pressures, inguinal hernia/undescended testicle(resolved), blocked/narrow tear ducts (partially resolved), facial hypoplasia with dysarthria dx, adducted thumbs(looking into it)
3. What age did you or someone else know something was different? What did you notice?
At birth
4. What do you love most about being a mom?
Snuggles and that he always runs to me happlily when I walk into a room.
5. What is your job?
Currently: unemployed SAHM. Usually: work in the Construction Industry
1. How many kids do you have? Ages? 1 DS, almost 5 years old
2. What is your child's DX or symptoms? PDD-NOS
3. What age did you or someone else know something was different? What did you notice? I never once thought about it. When DS was 18 months we switched in-home daycare providers. She was kindof a Type A Mom who obsessed over every little developmental detail of her children. She called me one night and told me she feared DS was developmentally delayed because he wasn't speaking, and more importantly, wasn't playing with the other kids. I laughed at her and was also furious that she was trying to call me out. We got in this huge argument and I ended up agreeing to visit her pedi just to make her happy. I thoroughly expected to be able to tell her HA! Told ya so! Her pedi referred us for an EI evaluation. That freaked me out a bit. Watching the evaluation was also concerning, because I could see that he clearly wasn't meeting the objectives he was testing for (eye contact, playing with toys, etc.) He was diagnosed by the school district at 19 months and we started EI immediately.
4. What do you love most about being a mom? It's such a great excuse to do fun stuff! If it's cold and snowing outside I can say, hey, let's go to the mall of america and go on rides and go out for lunch, and call it a Mom/Son day.
5. What is your job? Government attorney
1. How many kids do you have? Ages?
2 boys, almost 8 and 4 1/2
2. What is your child's DX or symptoms?
7yr old: ADHD; 4 yr old: Fragile X Syndrome, autism, ADHD, seizure disorder
3. What age did you or someone else know something was different? What did you notice?
Knew from birth the oldest was way hyper but waited until last yr for formal dx. 4 yr old adopted from Korea at 10mos, MIL noticed that he hadn't progressed in play skills at 15 months, LONG journey to FXS dx, and it seems like we're adding more things all the time
4. What do you love most about being a mom?
Sleep good night and good morning hugs.
5. What is your job?
I am an insurance agent, working i my dad's agency which allows me to take off the time I need to when the kids need me!
2 beautiful boys. : Aged 2 and 5 months.
2. What is your child's DX or symptoms?
DS1 had craniosynostosis surgery to correct at 6mo, and a moderate expressive speech delay.
3. What age did you or someone else know something was different? What did you notice?
Nathan's cranio was diagnosed at 2mo, but had signs when he was born. We notice speech at 15 months, and was diagnosed, by a speech pathologist, at 22 months.
4. What do you love most about being a mom?
The fun we have everyday. And seeing them learn everyday.
5. What is your job?
Currently on mat leave, but am a retail buyer.
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1. I have 2 kids, DS is 4 and DD will be two next week
2. DS is diagnosed right now with fine and visual motor delays, and sensory issues
3. Looking back now, there have always been quirks with DS..we wrote off a lot of infant irritability to being 5 weeks premature--he was a hard to calm baby, GI issues, etc. As he grew older he used to slam himself into the back of his crib to fall asleep, didn't really enjoy being cuddled, and had issues touching certain items. When he hit two he changed into a ball of nerves, his behavior went from excellent to beyond out of control. At this time we also began to notice he was having trouble progressing with things--he wouldn't climb, or be able to play with certain toys because they were "too hard', wouldn't color, couldn't engage in play very well. We were told by everyone & pedi this was typical 2...but it lasted into 3, and we had him evaluated after he started school because he couldn't complete some activities and was too hands on with his classmates. We aren't sure what else might be going on--have some flags-so are going dev pedi route.
4. The thing I love most about being a mom is just being able to be a mom and have 2 amazing children that I get to mother..
5. SAHM