Thank you so much! This warms my heart. Anna is stable. She has been back on the cpap for about a week now, and she is doing really well. She usually hangs out at 21-22% o2 except when we mess with her and she gets fussy!
We had another head ultrasound on Monday and we are again in wait and see mode. The swelling in her ventricles has continued to increased, but not as rapidly. Her ratio is now 48%. Usually they would start to drain at 45% but she hasn't shown any signs of distress due to the pressure (soft spot still soft, no sudden increase of apnea or bradycardia). So they are still waiting. We have another ultrasound tomorrow. I am hoping hoping hoping that Anna's brain has figured out how to drain on its own, but the doc says it's unlikely. In the meantime, I am really just thankful that she seems to be doing well and we haven't had to make a decision about brain surgery...yet.
We are just enjoying our time with her! She is so unbelievably cute. Now that she is off the vent she has found her voice and when she is unhappy, she lets us know!! I am thankful because I can tell myself that if she's not fussing, she's cozy and comfortable.
I have gone back to work part time in hopes of saving hours for when we can participate more with her care and *fingers crossed* she comes home (look at me thinking positive!!). It's hard, but I know it's for the best.
I truly appreciate all of your thoughts and prayers!!
Glad to hear she is stable! She sounds like a fiesty little lady, which is great!! Prayers that her brain starts healing very soon! Thanks for taking the time to update, we are all here for you! Keep up the good work Anna!
So glad to hear Anna is stable. I'm still thinking of you both and glad to see an update!
BFP #1 9/21/11. EDD 6/4/12. Twins discovered at 8 weeks. Twin B lost at 14 weeks due to megacystis. Alice Joe born and lost 1/5/12 at 18.5 weeks due to pre-term labor.
BFP #2 7/11/12. EDD 3/23/13. Ada Alice born 3/20/13.
I am glad to hear that she is holding steady. I have been praying for her. I went back to work early too so that I could be home with my son after he came home. Honestly, that was the best thing for me. The work kept me busy and when I was able to spend time with him in the NICU I cherished it. Then at the end of our NICU journey I was able to be home with him for a bit.
Re: **jbranden**
Peanut Butter and Jelly!
<a href="http://s568.photobucket.com/albums/ss122/AliceNP/?action=view
Thank you so much! This warms my heart. Anna is stable. She has been back on the cpap for about a week now, and she is doing really well. She usually hangs out at 21-22% o2 except when we mess with her and she gets fussy!
We had another head ultrasound on Monday and we are again in wait and see mode. The swelling in her ventricles has continued to increased, but not as rapidly. Her ratio is now 48%. Usually they would start to drain at 45% but she hasn't shown any signs of distress due to the pressure (soft spot still soft, no sudden increase of apnea or bradycardia). So they are still waiting. We have another ultrasound tomorrow. I am hoping hoping hoping that Anna's brain has figured out how to drain on its own, but the doc says it's unlikely. In the meantime, I am really just thankful that she seems to be doing well and we haven't had to make a decision about brain surgery...yet.
We are just enjoying our time with her! She is so unbelievably cute. Now that she is off the vent she has found her voice and when she is unhappy, she lets us know!! I am thankful because I can tell myself that if she's not fussing, she's cozy and comfortable.
I have gone back to work part time in hopes of saving hours for when we can participate more with her care and *fingers crossed* she comes home (look at me thinking positive!!). It's hard, but I know it's for the best.
I truly appreciate all of your thoughts and prayers!!
BFP #2 7/11/12. EDD 3/23/13. Ada Alice born 3/20/13.
I am glad to hear that she is holding steady. I have been praying for her. I went back to work early too so that I could be home with my son after he came home. Honestly, that was the best thing for me. The work kept me busy and when I was able to spend time with him in the NICU I cherished it. Then at the end of our NICU journey I was able to be home with him for a bit.