We refused pathology but hosp did it anyways...

Bugg22

I have no idea what to think right now. While we were in the hospital delivering I remember verbally refusing any testing and I think I may have signed something stating that also. 

I received the hospital bill and saw that they had done the testing anyways. I am not sure what to do now...

Do I want to see the results?

Do I want to raise it with the hospital that my wishes were not honored? 

 

jrebele

For us personnaly, we chose to have all of the testing done because this was our first pregnancy and we already knew that we were going to have more children after the girls were born so we wanted to know if we needed to have further testing done before we TTC again.  I think that it is a very personal decision.  Part of me has some peace of mind that there was nothing "wrong" that caused us to lose her but at the same time we haven't been provided any answers as to why it happened. 

I would definitely raise the issue with the hospital though just in case all of the testing was not covered by insurance. 

jess123456

Our situation is a bit different because our daughter had a terminal diagnosis in utero so we did know what happened. However, I told them that I didn't want any additional testing on her when she was stillborn. The hospital told me that all babies who are born still at that hospital must go through pathology and that is where our funeral director picked her up. I don't believe they did any "testing" as requested by us but we still needed to go through that department for paperwork confirmations.

If you feel comfortable you or someone you want to appoint my mom handled a lot of this at the beginning because it was too emotionally difficult for me or my husband can contact the hospital and ask what information or any they have. It is a personal choice of course. We did know what happened to our baby girl and wanted to know also for future pregnancies too.

Sending you lots of hugs.

Bugg22

Thanks Jess... I contacted the hospitals medical records and they confirmed there were results from pathology. She could not share them over the phone though so I will need to go in to get them.

We were told that most likely our baby had tri 13 or 18  due to the cysts on her neck... we were okay with just knowing that... now since there is more information I think I may want to know more... We had decided to not do testing since we did not believe it would change our choices in the future about more children...

I don't know how I feel about all this... I am irritated that they did the testing when we said no and I want to know what they are but at the same time I don't. I am frustrated and I feel like my thoughts are a big jumbled mess! 

Bayberry12

Bugg22:

I don't know how I feel about all this... I am irritated that they did the testing when we said no and I want to know what they are but at the same time I don't. I am frustrated and I feel like my thoughts are a big jumbled mess! 

I am so sorry you are dealing with this.  

I wanted to have all the testing done, but when it came time to meet with my Dr. to go over the results, I was sick to my stomach nervous.  I just had to keep telling myself, the results wouldn't change anything, and most likely wouldn't change anything in the future.  We ended up not getting any answers as to why we lost our daughter, but it was a little bit of closure in a way.   

jbranden12

I'm sorry you were surprised with this news. When we had our daughter, the autopsy was optional but they automatically do testing on the placenta to check for infection. Maybe that's all they tested for and they didn't do a whole genetic panel.

a&aw12707

jbranden12:

I'm sorry you were surprised with this news. When we had our daughter, the autopsy was optional but they automatically do testing on the placenta to check for infection. Maybe that's all they tested for and they didn't do a whole genetic panel.

 This is exactly what happened with us. We opted not to do the autopsy, but they did do the pathology on the placenta.  

calibride2005

I had every test in the book done on my girl....autopsy, heart pathology and brain testing. Which I am very glad I did.  We knew she had a terminal heart defect in utero, but come to find out it was her brain the whole time.  This we learned from all the testing. For us personally, it was worth it and we have peace of mind knowing all we know now.

Our little girls brain and heart will be teaching tools at Loma Linda and hopefully this will help other parents in the same situation.