Hi my name is Michelle. I had my baby girl, Athena Jane 5/31/12 at 36 weeks, adjusted age 34 weeks. She was diagnosed in utero with 22q deletion/DiGeorge Syndrome. She endured 2 major open heart surgeries and passed away at 11 weeks on 8/28/12. Prior to Athena, I had a little boy, Nathaniel who passed away 3 hours after birth on 1/18/05.
So far we have made it through the first two holidays (Halloween/Thanksgiving), now we just need to make it through Christmas. It definitely is not easy! But, we will make it through.