I have been having trouble getting my hands on the laptop (and bumping from my phone is hard!), so I'm sorry I wasn't able to post my thank you sooner.
Yesterday we drove 2.5 hours down to Riley's Children's Hospital to have Grant seen by a developmental pediatrician. We were called back right when his appointment was scheduled and the doctor spent over an hour with us. He asked me a slew of questions about my pregnancy, his birth, and medical conditions. He wanted to know when I felt like something was wrong and what I saw as red flags. I had a list for him with things that were currently happening that concern me and our OT. He asked me family history questions including in depth questions about my brother, his development, and his mental capabilities (my brother is pretty normal, but I wouldn't say he is super smart or anything). The doctor had his "bag of tricks" and pull each thing out and observed Grant. He looked at his eye tracking, hearing, physical capabilities, etc.
He asked me how old I thought Grants abilities are at, this is question I had already thought about, so I immediately answered around 4 months. The doctor basically said that was about right, but a little optimistic. He said that Grant is Globally Developmentally Delayed (GDD) and has severe Hyptonia (low muscle tone) and is at risk for Dysphagia (swallowing problems). He said that 3 things could be the cause 1. Genetics 2. Neurological 3. Metabolism/Mitochondrial. He ordered a genetic screening, an MRI, and a video feeding study.
So, here's where things get crazy. They took 8 vials of his blood while we were there. He was surprisingly a champ and only cried for 30 seconds when they pricked him and sat there wonderfully while each vial filled with blood. We have the MRI scheduled Wednesday and his video feeding study scheduled for Thursday. So, I will have to stay in Indy overnight with my dad.
Now, my turn. I had my doctor's appointment this morning and I had my cast off for a brief minute and I got to wash my leg. I was hoping I could get a boot and keep the cast off, but alas - I wasn't so lucky. My leg looks ridiculous skinny! One thing that people don't tell you when you have a cast is that it makes your dead skin stay stuck to your foot and it just builds up layer after layer. It looks and feels weird. It peels in chunks so thick that you are sure it will hurt, but it doesn't. It's gross.
The doctor said that I could get the large screw out right away and do 15lb weight bearing once it's removed. He said that I need PT 2-3 times a week because I cannot move my toes, but just a little bit. I wasn't prepared to get the screw out until the end of January, but he said I am having surgery FRIDAY! During surgery he is going to really manipulate my large toe that I can't move at all. He said that would break up the scar tissue and increase my mobility. I'm pretty terrified because everything is happening so fast and I wasn't prepared. Not to mention my last outpatient surgery landed me in the hospital for 2 days while they tried to control my pain. This surgery isn't suppose to be a big deal, but they are still putting me under. I am terrified. I was going to try and go back to work next week, but with the surgery - I'm scared to commit. I don't think my boss is going to be understanding much longer.
Here is a pic from our photo shoot on Saturday:
Here are links if you want to see my foot, my skinny leg, and Christmas cast (in that order)