Wanted to introduce myself since I've been lurking for a month. I have a
two-year-old son who was just diagnosed with ASD.
The earliest signs were hyperlexia (kid was picking letters and numbers off
signs at fourteen months), memorizing and reciting his books, an obsession with
wheels, and poor eye contact. The M-CHAT at eighteen months didn't raise flags
because "sometimes" he does XYZ. We figured we just had a really
smart kid until we realized ~90% of his speech is echolalia, immediate and
delayed. I called SLPs who referred me to our pedi who in turn sent us to the
developmental clinics at the local hospitals. After filling out the various
packets outlining for us just how many ways our kiddo isn't typical, we
received his ASD diagnosis from the neurologist at the autism center the day
before he turned two. I was relieved when she looked at me in the first five
minutes of his assessment and said, "You're right to be here." The
diagnosis was confirmed two weeks later by a developmental pedi and a
psychologist at the local children's hospital. ADOS Toddler came back in the
moderate to severe range.
The various docs are recommending 25-30 hours of ABA a week, 1:1 SLT for
pragmatics, OT for sensory integration, and a social skills group. We still
haven't met with EI, although our assessment is next week. We never called before his neuro eval because he ostensibly wasn't delayed. Now we're scrambling to
catch up with a confirmed diagnosis in hand. I'm scared they're going to come
up extremely short on hours or deny him speech outright because he's verbal and
we're going to have to fill the gap somehow. I'm more than ready to get started.