Grant is currently getting OT and ST. He is delayed due to the use of his arms (no reaching, unable to push up with his arms, barely rolling over). He is generally behind because he still is unable to sit up on his own. He is behind in speech because of the noises he is making aren't the right type of noises. He doesn't imitate mouth movements. He seems to start to develop a skill, really make progress, then he will regress. The OT said that she thought his skill levels were of about a 4 month old. She also said she doubts he will be able to even crawl by a year.
Grant had his 9 month check up and our pedi recommended that we see a developmental specialist. I am waiting for the referral to be processed before I can set the appointment. We will be going to Riley Children's Hospital in Indianapolis.
How long does it take to get seen by the developmental specialist? How often are they able to make a diagnosis? What should I expect? Does anyone have experience with that particular hospital? Any resources or books I should check out?
I am a FTM and I have no experience with having a delayed child. No one I knows has been through anything like this, and I'm not sure were to turn. Everyone just tells me that I worry too much and that he will catch up. I know that is a possibility, but there are just some things that are clearly different about Grant compared to other babies of any age. I also have a few things that raise red flags for me (not reaching for anything and regressing with skills).
I am having trouble dealing with this and life in general. I don't feel like I am enjoying my child like I should because I am constantly worried. I also get upset when I try to play with him because his lack of abilities just really get to me. He is such a cute little boy, but I just tend to focus on his weaknesses. I feel like a terrible mother for so many reasons. I am probably more depressed right now because I broke my foot a month ago and have been pretty much on bed rest since then. I had surgery and I will have to have 2 more to fix my foot. I had to quit breastfeeding because of the pain killers, and I absolutely hate giving him formula. It makes me so depressed when I have to feed him a bottle.
How do people deal with all this stuff? I need so much help.