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Update on AFP results

Tigger & poohTigger & pooh member
in Pregnant after 35
Had ultrasound today. Our little girl has encophocele. Basically a large portion of her brain is outside her skull.
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Re: Update on AFP results

  • danuli8danuli8 member
    Oh my God, I'm so sorry. Is the encephalocele on the front or the back of her head? What is her prognosis? Can they help her at all?
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    Over-40 parents...what we lack in vigor, we make up for with cunning.
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  • Tigger & poohTigger & pooh member
    On the back, I think. It is pretty severe. The MFM feels she might survive but couldn't give me any prognosis on quality of life, if that makes sense. still soaking everything will talk with them more tomorrow.
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  • danuli8danuli8 member
    I am surprised you are writing in complete sentences. That is not the kind of news you want or expect to hear. I'm so sorry. Please keep posting when you get more info.
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    Over-40 parents...what we lack in vigor, we make up for with cunning.
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  • lovelyday39lovelyday39 member
    I am so sorry to read this and can only imagine the turmoil inside of you right now. Sending good thoughts and a virtual ((hug)) your way.

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  • kat1221kat1221 member
    I am so, so sorry Tigger.  I can't imagine what you must be going through right now.  You guys will be in my thoughts and prayers and please keep us updated.
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  • MrsNukemMrsNukem member
    I'm so very sorry to hear this Tigger about your little girl.  I can't imagine the feelings you are going through.  Many thoughts and prayers to you all.

    Me:40 AMA, DH:36 0% morph, TTC#1;
    BFP#1 4/2011, MMC 6/2011 11wks Trisomy 13;
    BFP#2 11/2011, CP
    FSH: 17.9, AMH: 2.2
    IVF#1 w/ICSI: ER 4/3: 5R,4M,4F
    ET 4/6 All 4 (1-8A+, 2-8A-, 1-3A) BFP#3
    Two weeks of beta hell = Blighted Ovum
    IVF#2 Aug/Sept: ER 8/27: 4R,3M,3F
    ET 8/30 (1-8A+, 1-6A+)
    Beta#1 9/10: 350; Beta#2 9/12: 796; Beta#3 9/20: 9155
    Expecting Boy/Girl Twins! My babies were born 4/23/13 at 36w1d!

     
     

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  • NicoleWINicoleWI member
    Oh, I am so very very sorry!!!! What awful news to hear. :(
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  • AZAmy77AZAmy77 member
    T & P to you and your little girl!
    ~~~TTC #1 since Dec 2011, BFP 5/3 CP 5/6~~~
    ~~~BFP 10/9/12, EDD 6/17/13~~~
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  • mrsjamimrsjami member
    Sending you lots of hugs.

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    6/20/11 mc @ 5wks
    10/19/11 mc @ 17wks- Trisomy 18
    IUI #1 4/26/12 BFN
    Moving on to IVF in July
    37 with DOR...fabulous
    ER 7/14/12 6R 5F, ET 7/17 3 embies, beta #1 7/26: 147, beta #2 7/28: 326, beta#3 7/30: 422...ugh, beta#4 7/31: 607...hopeful, beta #5 8/2: 1280, beta #6 8/7: 7184 and u/s shows 1 possibly 2 sacs! 8/14 2 beautiful heartbeats! 9/24 we are TEAM BLUE!!!!!
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  • danieleandwaynedanieleandwayne member

    Holy Hannah-- at first, when I read it, I thought "No way! She can't be serious!"

    I am so so sorry to hear this. I hope you can find a fetal neurosurgeon who can give you a good idea of what your options are. In the meantime, you are in my thoughts. Take care of yourself, while you wrap your head around this. 

    ((hugs))

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    "You have to do your own growing no matter how tall your grandfather was." 
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                               Me:39  MH:39 
    DD born 6/1/2013 after 15 months of TTC with one loss.    
    TTC #2: BFP 4/22 but stalled growth and no HB at 9w3d on 5/30        

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  • steverstever member
    I am so sorry.

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  • dhreczuckdhreczuck member
    I'm so sorry, your little girl and your family are in my thoughts..
    nate and teddy
    Me 41 DH 46  Not actively ttc, surprise BFP on 1/6/11! 4/1/11 m/c our sunshine at 16wks after complications from CVS test. TTC #2 **5th cycle 12/6/11 BFP! Missed m/c at 9 weeks 1/21/12, trisomy 14. Two Chemical PG 3/12&7/12
    ** BFP 8/16/12 beta #1 148! beta#2 407 beta #3 4000 u/s 9.10 1 lovely hb 126, Baby Boy is due 04/28/13!!     Baby Birthday Ticker Ticker

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  • ShellBear+ShellBear+ member
    Oh no I am so very sorry to hear this. Many thoughts and prayers to you and your dh.
    TTC since Dec. 2010. Me: 37, DH: 38...unexplained RPL
    BFP #1 - missed m/c 4.18.11 found @8w3d, d&c @13w 
    BFP #2 blighted ovum found 8.2011 @8w, misoprostol
    BFP#3 - missed m/c 6.11.12 @ 9w3d, d&c revealed extra chromosome 15
    BFP#4 8.10.12, DD born 4/26/13
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  • Country Girl in the CityCountry Girl in the City
    I am so sorry.
    BFP on IVF #2 6/29/2012. Beta #1 7/3 = 522; Beta #2 = 1180; Beta #3 = 6491 image BabyFruit Ticker
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  • winofairywinofairy
    I am so very sorry!  HUGE (((HUGS)))
    BabyFruit Ticker

    06.10.12 +HPT 06.12.12 Beta #1 = 2,770 06.14.12 Beta #2 = 6,300
    1st U/S 06.18.12 2nd U/S 06.25.12
    09.24.12 It's a Boy!! ---> Jacob Owen

    Our IF Journey Began: October 2009
    **8 Failed IUI's, 1 Blighted Ovum, & 1 Failed IVF**
    Dx: MFI, DOR w/MTHFR Homozygous A1298C & Hypothyroidism
    03.2012 Lab Results: FSH 6.83 AMH 0.67 TSH 3.8 E2 17
    SA 156 million 93% motility 3% morphology

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  • WeAreSmallsWeAreSmalls member
    I am so sorry. Thoughts and prayers with you and your family.

    6 year old daughter

    Fraternal boys born on May 11, 2013 at 36 weeks 4 days

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  • lilblt19lilblt19 member
    I'm so sorry to hear about your difficult news.  Thoughts and prayers are with you and your little girl!
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  • mama2manymama2many member
    Oh my - that is such sad, terrible news. I'm so sorry you're having to deal with this. Prayers for wisdom & comfort during this time. 
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  • JilliansMomaJilliansMoma member
    Tigger so sorry to read  this news. You and your little girl are in my prayers. I hope that the Dr's will be able to give you more information soon.  JM

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    IF History in my Bio!

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  • hydrangeagirlhydrangeagirl member
    I am so very sorry.  My thoughts and prayers are with you, your husband, and your little girl.
    Me, 41; DH 38; TTC since July 2012, 1st round of Clomid, BFP on 10/19, what an incredible blessing!  M/c on 7w3d; D&C on 11/30; 4th round of Clomid 100mg = BFP on 04/19!!! M/c #2 at 7w; D&C on 5/30, then repeat D&C on 7/1.  Saline u/s on 8/2, uterus looks great!  Will start TTC in 09/13 w/ Clomid 100mg. Surprise natural BFP on 8/25!!! Beta #1=95, #2=182, #3=404!  EDD 5/4/13...Grow baby grow!


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  • jb2rnjb2rn member

    lurking..

    I am so very sorry.

    b/w=FSH 15.6, AMH 0.4 surprise natural BFP on 3/12/11
    DS born via unplanned C-section at 40w6d

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