Pregnant after 35

Update on AFP results

Had ultrasound today. Our little girl has encophocele. Basically a large portion of her brain is outside her skull.

Re: Update on AFP results

  • Oh my God, I'm so sorry. Is the encephalocele on the front or the back of her head? What is her prognosis? Can they help her at all?
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    Over-40 parents...what we lack in vigor, we make up for with cunning.
  • On the back, I think. It is pretty severe. The MFM feels she might survive but couldn't give me any prognosis on quality of life, if that makes sense. still soaking everything will talk with them more tomorrow.
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  • I am surprised you are writing in complete sentences. That is not the kind of news you want or expect to hear. I'm so sorry. Please keep posting when you get more info.
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    Over-40 parents...what we lack in vigor, we make up for with cunning.
  • I am so sorry to read this and can only imagine the turmoil inside of you right now. Sending good thoughts and a virtual ((hug)) your way.
  • I am so, so sorry Tigger.  I can't imagine what you must be going through right now.  You guys will be in my thoughts and prayers and please keep us updated.
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  • I'm so very sorry to hear this Tigger about your little girl.  I can't imagine the feelings you are going through.  Many thoughts and prayers to you all.

    Me:40 AMA, DH:36 0% morph, TTC#1;
    BFP#1 4/2011, MMC 6/2011 11wks Trisomy 13;
    BFP#2 11/2011, CP
    FSH: 17.9, AMH: 2.2
    IVF#1 w/ICSI: ER 4/3: 5R,4M,4F
    ET 4/6 All 4 (1-8A+, 2-8A-, 1-3A) BFP#3
    Two weeks of beta hell = Blighted Ovum
    IVF#2 Aug/Sept: ER 8/27: 4R,3M,3F
    ET 8/30 (1-8A+, 1-6A+)
    Beta#1 9/10: 350; Beta#2 9/12: 796; Beta#3 9/20: 9155
    Expecting Boy/Girl Twins! My babies were born 4/23/13 at 36w1d!

     
     

  • Oh, I am so very very sorry!!!! What awful news to hear. :(
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  • T & P to you and your little girl!
    ~~~TTC #1 since Dec 2011, BFP 5/3 CP 5/6~~~
    ~~~BFP 10/9/12, EDD 6/17/13~~~
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  • Sending you lots of hugs.

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    6/20/11 mc @ 5wks
    10/19/11 mc @ 17wks- Trisomy 18
    IUI #1 4/26/12 BFN
    Moving on to IVF in July
    37 with DOR...fabulous
    ER 7/14/12 6R 5F, ET 7/17 3 embies, beta #1 7/26: 147, beta #2 7/28: 326, beta#3 7/30: 422...ugh, beta#4 7/31: 607...hopeful, beta #5 8/2: 1280, beta #6 8/7: 7184 and u/s shows 1 possibly 2 sacs! 8/14 2 beautiful heartbeats! 9/24 we are TEAM BLUE!!!!!
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  • Holy Hannah-- at first, when I read it, I thought "No way! She can't be serious!"

    I am so so sorry to hear this. I hope you can find a fetal neurosurgeon who can give you a good idea of what your options are. In the meantime, you are in my thoughts. Take care of yourself, while you wrap your head around this. 

    ((hugs))

    *********************************************************************************************

    "You have to do your own growing no matter how tall your grandfather was." 
            -- Abraham Lincoln
     

                               Me:39  MH:39 
    DD born 6/1/2013 after 15 months of TTC with one loss.    
    TTC #2: BFP 4/22 but stalled growth and no HB at 9w3d on 5/30        

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    <br /> My Ovulation Chart</a>

  • I am so sorry.
  • I'm so sorry, your little girl and your family are in my thoughts..
    nate and teddy
    Me 41 DH 46  Not actively ttc, surprise BFP on 1/6/11! 4/1/11 m/c our sunshine at 16wks after complications from CVS test. TTC #2 **5th cycle 12/6/11 BFP! Missed m/c at 9 weeks 1/21/12, trisomy 14. Two Chemical PG 3/12&7/12
    ** BFP 8/16/12 beta #1 148! beta#2 407 beta #3 4000 u/s 9.10 1 lovely hb 126, Baby Boy is due 04/28/13!!
    Baby Birthday Ticker Ticker

  • Oh no I am so very sorry to hear this. Many thoughts and prayers to you and your dh.
    TTC since Dec. 2010. Me: 37, DH: 38...unexplained RPL
    BFP #1 - missed m/c 4.18.11 found @8w3d, d&c @13w 
    BFP #2 blighted ovum found 8.2011 @8w, misoprostol
    BFP#3 - missed m/c 6.11.12 @ 9w3d, d&c revealed extra chromosome 15
    BFP#4 8.10.12, DD born 4/26/13
  • I am so sorry.
    BFP on IVF #2 6/29/2012. Beta #1 7/3 = 522; Beta #2 = 1180; Beta #3 = 6491 image BabyFruit Ticker
  • I am so very sorry!  HUGE (((HUGS)))
    BabyFruit Ticker

    06.10.12 +HPT 06.12.12 Beta #1 = 2,770 06.14.12 Beta #2 = 6,300
    1st U/S 06.18.12 2nd U/S 06.25.12
    09.24.12 It's a Boy!! ---> Jacob Owen

    Our IF Journey Began: October 2009
    **8 Failed IUI's, 1 Blighted Ovum, & 1 Failed IVF**
    Dx: MFI, DOR w/MTHFR Homozygous A1298C & Hypothyroidism
    03.2012 Lab Results: FSH 6.83 AMH 0.67 TSH 3.8 E2 17
    SA 156 million 93% motility 3% morphology

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    **~PAIF/SAIF Always Welcome~**
  • I am so sorry. Thoughts and prayers with you and your family.

    6 year old daughter

    Fraternal boys born on May 11, 2013 at 36 weeks 4 days

  • I'm so sorry to hear about your difficult news.  Thoughts and prayers are with you and your little girl!
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  • Oh my - that is such sad, terrible news. I'm so sorry you're having to deal with this. Prayers for wisdom & comfort during this time. 
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  • Tigger so sorry to read  this news. You and your little girl are in my prayers. I hope that the Dr's will be able to give you more information soon.  JM

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    IF History in my Bio!

  • I am so very sorry.  My thoughts and prayers are with you, your husband, and your little girl.
    Me, 41; DH 38; TTC since July 2012, 1st round of Clomid, BFP on 10/19, what an incredible blessing!  M/c on 7w3d; D&C on 11/30; 4th round of Clomid 100mg = BFP on 04/19!!! M/c #2 at 7w; D&C on 5/30, then repeat D&C on 7/1.  Saline u/s on 8/2, uterus looks great!  Will start TTC in 09/13 w/ Clomid 100mg. Surprise natural BFP on 8/25!!! Beta #1=95, #2=182, #3=404!  EDD 5/4/13...Grow baby grow!


  • lurking..

    I am so very sorry.

    b/w=FSH 15.6, AMH 0.4 surprise natural BFP on 3/12/11
    DS born via unplanned C-section at 40w6d

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