EEG yesterday and one of the hardest days of my life

toadstool

I am sorry to post such a terrible post, I just had to get this out.

The sedation was just so terrible. They did an IV sedation and they had to stick her 4 times in 3 different spots while she was very much awake. DD fought the meds hard. They said that some people, just require more drugs to get them down but I think that she also fought the drugs because she was so scared. I tried to comfort her and tell her that it would be ok but it just didn't seem to help. It took them about 30 minutes of screaming, thrashing and needle poking to sedate her. They gave her a couple of doses of meds in her first IV, but it wasn't enough and she pulled the IV out. They ended up trying to start an new IV on both feet and finally got it on the second foot. Once they got her down and they did the EEG, she cried in her sleep several times. The experience broke my heart. I didn't think it would be so violent. I just thought it would be more peaceful. They told me that the drugs would likely give her amnesia of the event and I truely hope it does. I know that it's what we needed to do in order to get a good EEG, but the experience felt so wrong.

Again, I'm sorry to post such a debbie downer post. I just needed to get that out, so thanks for reading.

finsup

I'm so sorry, that sounds awful.  Hugs.

Shayna0182

I'm so sorry it was so hard.  I was a former child epileptic, and I had EEGs, starting at age 3.  I have faint memories of being sedated, but the whole experience was much harder on my mom than on me. 

Hugs to you! 

toadstool

Thank you for the kind words. It feels a little better just to get my feelings off my chest and this board is a nice reminder that I'm not alone.

lazysusan

I have vivid memories of restraining my child as well.  He hated EEG's.  He would have cluster seizures and coming out of those was so out of it, but with the EEG electrodes going on he would be yelling at the nurses "get off of me!!"  His voice was so horse.  We had to lay on him and use sheets to help keep him still.  Sedation he did ok for his MRI and Cat scan.  It's so hard to watch.  He's 6 now and has no memory of any of this.