XP: possible hole in heart? (VSD)

leneae10 · October 2012

We are going to see a fetal cardiologist tomorrow for Baby B (Rebekah). MFM thinks he sees a possible VSD and wants it to be further explored. I initially freaked out and was thinking the worse but it *seems* to be somewhat common and treatable.

Anyone else experience this? I'm hoping it's just a scare but we obviously want to be informed as possible. We are delivering at a Level III NICU but not sure if we'll need to transfer to a hospital with a Level IV (very feasible, but I know - cart before horse).

I had been waiting for the other shoe to drop... here it is.

luvsdogs2 · October 2012

No experience, just (((Hugs)))

kwilson158 · October 2012

luvsdogs2:
No experience, just (((Hugs)))

I 2nd this

RedCherry1109 · October 2012

I have no advice, sorry! ((HUGS))

Junebug060609 · October 2012

No personal experience, but I have heard of other cases where it resolved on its own. T and Ps with your little girl.

Mom2anAngel2 · October 2012

Many VSD's can be repaired, or even correct themselves depending on how severe. Prayers for your LO! ((HUGS))

luvboston · October 2012

My sister had a vsd when she was in utero, my mother went to the cardiologist several times during the pregnancy and they prepared to handle it when she was delivered but by the time she came out it had healed itself.

pb&fluff · October 2012

Mom2anAngel2:
Many VSD's can be repaired, or even correct themselves depending on how severe. Prayers for your LO! ((HUGS))

This. Our daughter was diagnosed with VSD, but she had numerous other heart defects (see siggy). We TFMR because of the prognosis we were given for her other defects. I would continue to follow up with your cardiologist, but I wouldn't worry too much about just a VSD. GL!

orangegoggles · October 2012

No advice, just hugs.

damabo80 · October 2012

Evan had a "moderate sized hole" at 20w at the Mfm. We had a follow up with a pediatric cardiologist around 22w who confirmed the hole and the size, which was between 3 and 4 mm.

How big was her hole measuring?

The plan was to get a heart ultrasound after birth, and then again 6w after birth. If it was still there then he would have surgery to repair it.

After birth, on day 3 of life, he had the ultrasound, and the home was gone. So, no follow up or surgery needed.

90 of the time the VSD closes by itself in utero. The remaining 9 are still present at birth but small enough to not need intervention. The remaining 1 need surgery.

Holes don't really cause much of an issue until about a month or so after birth, when it can cause congestive heart failure.

Our main concern with Evan's hole wasn't the hole itself, rather than it could be a symptom of a bigger chromosomal issue t13.18.21.

However my ny scan was better than good, so we opted out if the amino at 22w. Also, even if we got the amino that late and it was bad and we wanted to terminate, by the time we got the results it would be past the point if legal termination in our state.

So we just put our faith in the nt scan results, and it didn't steer us wrong. He was perfect at birth.

FB message me if you have any other questions about the process. Hugs!

mork · October 2012

No experience to share, just hopes and thoughts for good care, treatment, and two healthy babies.

leneae10 · October 2012

Thank you ALL! I will update tomorrow as I process through everything.

pinktrojanbride120107 · October 2012

T&Ps for your baby girl that she heals on her own.

tdmd09 · October 2012

One of my good friends and coworkers had a baby about a year and a half ago with a VSD. He ended up having surgery when he was about 7 weeks old to correct it and has had no problems since that time. Hang in there!

SandiaPinaMama · October 2012

Well, I am on mobile, and can't see your post title, and don't know what vsd, so I may be way off base here, but...

My niece was born with a hole in her heart. It resolved by her 1 month checkup, with no interventions.

Whatever your post is about, fx for you and Rebekah.

imwithrebel · October 2012

My sister had an A/VSD. It was scary because they had prepared us that she might need surgery immediately after birth, but she was fine. They watched her closely and eventually decided to do the surgery when she was 3 years old. They decided that it made sense to do it while she was strong and healthy, but before she would remember going through it. She's 11 now and while she still sees a cardiologist once or twice a year, she's never had any problems.

Atleighdan · October 2012

My sister had an Atrial Septal Defect when she was born. I am not sure if they knew about it before she was orn or not. This was 27 years ago. She was monitored by pediatric cardiologists until she was 7 and then had open heart surgery to repair it. That was 20 years ago and she is still doing great! I am not sure how similar an ASD and a VSD are, but prayers to you and your LO that things turn out as well as they did for my sister!