Hi Ladies:
It has been awhile since I have been on the boards to post (I lurk every once in awhile) but here is a little update on Ethan.
As of last Thursday, the ventilator is gone! He is still on the oxygen via a cannula. It felt so good to see my son's face unrestricted (and the first words out of mouth were 'Dang, he looks just like his father'. Also on that day he was able to start feeding via feeding tube (he is esophagus had finally healed). It started at 3ml every three hours to see if he can tolerate it and as of yesterday evening, he was up to 22ml every three hours and they are now fortifying the feeds.
The chest tube was removed on Tuesday and that was the day I got to hold him and do Kangaroo Care for the first time. I mean, they let me hold him in my hands (once) when they were changing his linens but the feeling of having him close, doing that skin to skin contact that should have happened on his 1st day of life was amazing! I think I cried the entire time I was holding him that day.
As of yesterday he is now 3lbs, 9oz and 16.15 inches long. He did have some episodes yesterday where his heart rate dropped and his oxygen & breathing did slow but from what was told to me that is pretty common in preemies.
The next step within the next 3-5 days is to remove the cannula (which he doesnt keep in his nose anyway) and to remove the picc line (they will stop the lipids and other IV fluids). I know we still have a long way to go though but it feels good to make progress...


*I apologize that the pics are so large*
Re: It has been awhile...Update on Ethan (PIP)
Hey!! I also have a little EA/TEF baby!! Well, he's nearly 3, but he's still little to me!!
Come find us on FB. There are tons of us families. I promise once you get home you will have a million and one questions... and, we'll be there to help!!
Congratulations on the birth of your little Ethan. He is absolutely beautiful!!
(3) US: Bridging the GAP of EA/TEF
Kids born with EA/TEF