Late Term and Child Loss

****signature warning***Blake's Story

        I had my sweet baby Blake on August 22, 2012.  We were told he had some type of sarcoma on August 25. The tumor was so agressive that we started chemo at 9 days old, August 31. He was diagnosed with a Malignant Rhabdoid Tumor on September 5. He had a second dose of chemo on September 9. My dream was for him to come home.  We were able to do that on September 13.  On September 21, we moved to our local hospice house.  There were many times the doctors thought would be Blake's last, but he kept fighting and stumping the doctors.  This rare and extremely agressive monster got the best of my little slugger at 10:25 pm on October 5, 2012. 

      I am still sad, but now am getting to the pissed off and angry point.  I am jealous of all my friends that are pregnant, having their babies, or have their healthy babies that would be Blake's age.  The people that complain are the worst.  Any advice/books yall could recommend would be great.  My mom passed away from breast cancer in 2002, so this was a double whammy.  My husband, myself, and my 3 year old's lives have been turned upside down.  We did the genetic testing 4 weeks ago, and we are awating results.  Hoping and praying that the cancer is was just a fluke in the cell division when Blake was forming and not genetic.  We would like to try again, but cant put ourselves through that hell again. Thank you for reading Blake's story.  If you would like to see pictures and/or follow our story, we have a page set up at www.facebook.com/prayersforourbabyblake. Thank you!

  View Full Size Imageimage 

 View Full Size ImageLilypie Angel and Memorial tickers

 View Full Size ImageLilypie Fifth Birthday tickers

View Full Size Image View Full Size Image  

Re: ****signature warning***Blake's Story

  • I'm so sorry for your loss of Blake. I can relate so much to your story although my little boy was only 2 weeks old when he passed on October 4th. I think one of the hardest parts of the whole thing was that all the ups and downs. One day we would think he was going to be fine, the next probably not, over and over again. I am now at the place where I want a baby so bad, but I know we aren't ready. Because my son's condition was genetic I know we are going to either have to go the IVF route or adopt. But I can't imagine not having another baby. We have an 18 month old who doesn't seem to understand why mommy and daddy are sad. Its so hard to find a balance.I guess it really is one day at a time, at least that's what everyone keeps telling me. Know I am thinking about you and your family.
    Lilypie Second Birthday tickers Lilypie Angel and Memorial tickers
  • Loading the player...
  • I am so sorry for the loss of your Blake. I am glad that you got to bring him home and see some of his strong spirit as he stumped those docs! I you can get some answers and peace from the testing. Most of will attest that it is normal to want to try again as soon as possible, but it is definitely scary. We are here when you need us!


      Our Angel Patricia born sleeping 3/30/12 at 31 weeks
    Our Fighter Anna born early 1/8/13 at 26 weeks
    Hoping to bring home #3 due 9/9/15
  • I am so sorry for the loss of your beautiful little boy, Blake. I actually was following your story on fb & was so saddened to read what your family was going through. We are only 3 wks out from the loss of our son, Eli so Im not going to be much help to u at this point. We also have an older son who is almost 3 & he's been absolutely devastated by the loss of his brother. It's been one of the hardest things to deal with thus far on this journey. I have gotten to the angry stage as well, in fact there's a post from earlier today about anger so it seems it's something we all experience. Please know you're not alone & it's so nice to have a group of women who just get it. Again, Im so sorry that Blake was taken so soon.
    Warning No formatter is installed for the format bbhtml
  • I am so sorry for the loss of your son Blake. We are all here for you. This board has been so helpful. ((hugs))
    Tim 12/30/00 Brad 4/30/02 Alex 9/29/03 Lilypie Angel and Memorial tickers
  • I am so sorry for your loss. Blake is a beautiful baby. I hope you can find some comfort here with us. The woman here are amazing.

    Lilypie - Personal pictureLilypie Angel and Memorial tickers

    Lilypie - Personal pictureLilypie Third Birthday tickers

    image

  • I am so sorry for your loss of your beautiful Blake. I have tears flowing down my face as I read your post and your facebook page.  Lots and lots of hugs to you and your family!  Thinking of you with all my love!

     

This discussion has been closed.
Choose Another Board
Search Boards
"
"