Synagis Denial

Trillian46

Sorry, but this is a bit of a vent. My pediatrician told me that he thought we were certain to get synagis... and then told me that he "was pretty sure" that he had our acceptance letter on his desk at our last appointment. Then I got a call saying we were denied.  My son is right on the cusp of being approved (32 weeks, 0 days and under six months at the start of rsv season... but no siblings or daycare). We are hoping to appeal on the basis of my son's heart defect, but I gather that we are unlikely to win (because my son does not receive medication for his heart defect... even though it is a situation we are monitoring every few months with a possible need for open heart surgery before the age of two). I guess I'm just really upset right now because I thought we had the approval in hand, and now I'm worried about this winter. I figured that you all were more likely to understand that most of my family and friends...

WannaBAmama

I'm sorry. This is so frustrating. My LO was born at 34 weeks, will be under 3 months at start of RSv season, has an older sibling that goes to preschool and will be attending child care and he has been denied twice!! I just sent another appeal letter

SBBBE

Sorry to hear this.

Trillian46

Thanks for the advice about the cardiologist. I'll send her an e-mail and see if she'd be willing to write a letter in support.