XP:MSPI Need advice.

kem717

It's obvious that DD isn't only MSPI because her symptoms haven't cleared. The only symptom she has is mucous and blood. We've been free of green for a week now, but she continues to have a speck or two of blood a day. The number of dirty diapers has come down from 7ish to 3ish. But still lots of mucous. None of this bothers her.

Pedi says to eat what I want and not worry. Pedi GI says he's not concerned about color or mucous. But if there continues to be blood, she needs to go on formula.

I haven't had dairy or soy for almost 8 weeks, nuts for 6 weeks, wheat for 3 weeks, eggs for 2 weeks, and now oats for 10 days. I don't eat any fish or shellfish. Also in the last week I've stopped citrus, tomatoes, and chocolate because I'm at a loss.

What should I do? I suppose I could go on TED. Right now I eat mostly chips, chicken, white and red potatoes, raisins, rice, oils, spices, and apples. I have no clue what to do. Is there ANYTHING else it could be besides intolerance/allergy?

I did just realize I may have had a soy slip up 3 weeks ago at Ruby Tuesday. I had a bite of chicken that may have had margarine on it. And I ate snap peas that were on the same plate as margarine covered zucchini. I'm really grasping here, aren't I?

sweetMay119

I have been in your shoes, and right when I was about to give up I figured out it was the chicken that I assumed was safe. I then went vegan, but have since added back turkey, pork and salmon. My lo is intolerant to chicken, beef, dairy, soy and possibly eggs. She still has some mucous, but tested neg for microscopic blood. GL!

metucker

Ugh, I'm sorry. I totally get it. You have been working so hard and doing such a great job. I don't have any answers for you, but I just wanted to say you are doing so great and to hang in there!

NiniJ55

I did just realize I may have had a soy slip up 3 weeks ago at Ruby Tuesday. I had a bite of chicken that may have had margarine on it. And I ate snap peas that were on the same plate as margarine covered zucchini. I'm really grasping here, aren't I?

Those things would affect my DD -- so no, you are not just grasping.  It took over a month of being on formula before she was able to be really comfortable and free of blood, congestion, eczema.  I'm not saying that you need to do formula cause I would never advocate that over trying your best to continue BFing first.  But I personally was unable to keep up with her allergies - just could not for the life of me figure out what was bothering DD. 

You really need to be more careful if you intend to continue BFing. Something so small may not effect one baby but may have a drastic effect on another.  Take into consideration that It takes time for dairy and soy to clear our systems (weeks for most people)-- then after it clears your system it needs to clear hers.