Preemies

Denied synagis

Can I just say synagis approval is such a complicated, frustrating process? I'm so thrilled that my 29 weekers are doing so well but it's so scary that they just barely miss qualifying. We're appealing but have been told to expect another denial.
Lilypie Premature Baby tickers
Married 9/22/07, began TTC 8/10
Diagnosed with DOR, LP defect, mild endometriosis and cysts
BFP #1 EDD 9/10/11, natural miscarriage at 6w
BFP #2 Medicated cycle, twin boys born 4/4/12 at 29w4d
BFP #3 EDD 8/8/14, D&C for missed miscarriage at 8w, baby boy with triploidy
BFP #4 June 2014 CP

Re: Denied synagis

  • It does suck.  We are also on the cusp... havent heard anything yet, but by the APA guidelines we miss the cutoff by 9 days. If she were 9 days younger she would have been a 26.5 weeker that qualifies instead of a 25 weeker who doesn't qualify....frustrating

     Preemieprimer had some good letter templates.  I hope you are successful with an appeal! 

    mom to V; 25 weeker born at 1lb 7oz
    Lilypie Premature Baby tickers

    www.virginiakkent.blogspot.com

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  • Ugh that sucks, you are sooo close.  From what I've read 28 weeks and below automatically qualify if they are 1 year and under at the start of the season and 29+ weeks qualify if they are 6 months and under at the start of the season.  Last year where I live the season started in September, when my boys got their first shot.  I so hope you can get it for them!
  • My 29 weeker was denied last year too (and the appeal was denied). She missed the cut off by 6 days. Since she wasn't in day care and had no older siblings in school, she wasn't considered high risk enough for them. It sucks. I was really mad.

    It sucks, I'm sorry! They used to give synagis to every preemie but they've gotten really strict with the criteria in the last several years because it is SO expensive. (Thats what the pedi told me) I was even more mad because from the first visit to the pedi they told us she would get Synagis and it was such a shock when she was denied.

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