two forward...one back.

Louiej

Argh. So over this nicu business.

I had stayed the past two full days here in nicu with Emme...she finished all her feeds for me, enough so that she got taken out of the isolette, and got her tube out and off all monitors.

Well...I get here tonight after being gone since noon and apparently she only took 10 ccs out of 45 for two feeds and now they're putting her tube BACK in. Argh!!!

And...I really hate rns who say...hope you're ready, she'll be discharged by maybe friday, most likely sat, for sure by sun. Well...boo to you. We're here for three more days at least. I am prepared to stay as long as dd needs, but quit with the promises already.

::sigh::

DrRx

I'm so sorry! I know how frustrating it can be.

Have you asked your neo if you can try modified on demand feeds?  For Adalyn, she had to eat a certain amount within a 12-hour period and still gain some weight.  Sometimes she would eat more, sometimes a little less, but she always made it in her 12-hour period (sometimes just barely).  The orders were also for every 3 to 4 hours.  So, if she was really sleepy or just not into it, we could wait 30 minutes to an hour before the clock started ticking.

GL!

jcsntms06

The NICU is such a difficult place. At first I hated that the neo/nurses would not give us estimate on when she may come home, but now I know why they don't, because us moms are so emotional as it is, why add more stress. I hope Emme figures out eating soon, so she can come home. Praying for you and your LO!

urbanflowerpot

Awhh, that stinks. I'm sorry. It's a lot of back and forth

Maybe tell a nurse you like to leave a note for no more other nurses saying days LO will come home. They shouldn't be doing that because it gets our hopes up - and preemie mom hope fly HIGH! I looked at your ticker - keep thinking of DD as est time home. Anything before is lucky.

Maybe she was just tuckered out. She's still in the GA timezone. 

SquishyMine

So sorry!  Yes, one of our favorite NICU nurses says she NEVER gives the parents a day, because it can so easily lead to dissappointments!  Breath deep!

jennifer1w

I am sorry. It is so hard getting possible dates and then them changing them.

Louiej

; They would talk in code...if your LO was doing well they'd say "looks like you might get to go to the zoo"

That's hysterical! Gosh...I want to go to the zoo! :P

TheFutureMrsH2012

I can definitely relate.. The only thing that really helped me was knowing that Nicholas wouldn't be in there forever.

I don't know about anyone elses experience, but the NICU we were in had little milestones that had to be reached before babies were allowed to go home. 100% feeds without feeding tube, maintain even body temp in the open crib, pass the car seat test, and no sleep or feed alarms. After a certain point, if there was a sleep alarm that Nick didn't get himself out of and it lasted 10+ seconds, there would be a 7-day countdown from the time of the alarm. Well, DH and I were prepared to take him home around July 4th and, wouldn't you know it, the night before Nick was supposed to come home he had an alarm-- which meant 7 more days in the NICU. I literally cried. He ended up coming home July 10th with a home monitor (6 weeks and no alarms!).

Be strong.. there is an end in sight.