Need to share with other people who get it

soontobeahigh

So we are applying for the Katie Beckett Redeeming Waiver and one of the things required is to have her evaluated by a psychologist. We had this done last Friday and we got the results today. She scored a 55 which puts her at significantly delayed. She got Significant delays in every area but a few and those she got moderate dealys.

They said that 99% of other 35 month olds are more developed than she is. That really hurt. I know this will help her get more therapies but dang I hate seeing that in writing, I have cried off and on all day.

Tommorow we have her final IEP meeting and get the results from their evaluation and the recommendations for school. Im really nervous about those results now, they used a very similar test.

Everyone is trying to make me feel better but I just want to tell them to F--K off because they aren't in my shoes. I know my child is more than a test and I am very proud of her but I hate stuff like this..

malcivar

{{hugs}} I'm sorry.

Our kids are like that dress at the store that looks questionable on the hanger but when you put it on you look like a million bucks!   

Screw the numbers - they're good for what they're good for - getting them the help they need - take them in the context but don't obsess on them. 

{{hugs}} 

soontobeahigh

Thanks. I printed 2 copies of the report one to turn and in and the other to burn in our fire pit this weekend. lol sorta..

light52

I know what you are feeling all too well.  Hang in there, it does get a bit easier over time.  I've found a few friends through Facebook that have special needs kids (old classmates) and I've also gotten to know a few moms from therapy.  Between these friends I am able to vent and share with those who really get it.  It helps so much because parents of normal children just don't get it.

Florak8

Worst. feeling. ever. And we are about to go through it, as DS is scheduled for his school eval this month (turning 3 this fall). Without a DX, we are left to hope for the best. Until now we have been able to think that way, but I believe this will be a rude awakening. When he is really taken to task, it will show how very far behind he is.

It is just one element of the amazing person I am so in love with, but it still cuts to the core.

(((hugs))) 

S-Tuna

It just stings to see results. ((hugs)) 

ntyravgmom

((hugs)) That initial meeting is so difficult. It really stings to hear them and get them in writing. It makes it too real. Be good to yourself. The unknown is hard, but the IEP meeting should show you what the school can do to help her. She hasn't changed. Share away. Ask questions. We get it.

goldenleaves

(((hugs)))

I cried after Lauren's first IEP meeting. And I cried even more when there was a baby two days younger than her at group therapy who was crawling.

bumpuser511563

Hugs.

I cried when DS was evaluated for EI

d.f

I still shudder at the the thought of DS's IEP where they spelled out the evaluations. Basically he was behind in every area they evaluated except rote knowledge and pronunciation. It was a painful read and a painful meeting.

We've had 3 more evals Dev Ped, private OT and private SLP. None have been easy to read but none have smacked me in the face quite like that first one. We're waiting for the full report fron the Psych who diagnosed him and I go back and forth between dreading it and being impatient for the info and direction it will hold.

Huge hugs. It's so hard.

soontobeahigh

Thank you so much everyone for your kind replies. Im feeling a bit better this morning but still nervous about our meeting this afternoon. It feels so good to know Im not alone in my feelings, it felt like no one else could understand where I was coming from.

duchess0727

I try very hard not to even pay attention to how much the delays are any more but just to focus on her, on her individual progress and how far she has come.  Having said that, there are times, like when you read all of the evaluations and the IEP, that it is just right there in your face and it is hard!  The only people I share stuff with are my other friends with SN kids.  Even talking about it with my parents is hard because they don't really understand the extent of it.