Special Needs

Anxiously Awaiting...

. We have a follow-up appointment with the neuro-developmental pediatrician tomorrow. We have only been once before, when DD was 10 months old (6 months ago). Last time, she told us DD may just catch up and she wasn't sure of anything yet, that DD didn't clearly fit the picture for any diagnosis at the time, but had some sensory issues and global developmental delays.

Here we are, 6 months later after lots of therapy, she has made progress in some areas, but not in others, and we have seen a few other specialists who have also given us no answers. 

I am aware it is unlikely we will get a diagnosis or prognosis tomorrow, but part of me is just hoping and praying for any answers we can get.  I am also afraid of what she will say about some of the things we have noticed and what they may mean. My biggest fear is leaving the office tomorrow in the same exact place we are now.

Re: Anxiously Awaiting...

  • Hugs Momma! It should help that she has been receiving therapy and they can see what has helped and what areas she did not make much progress in. I hope you get die answers. These types of appointments are so hard. Good luck!
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  • What did you find out?
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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