TTC after 35

Needing to vent

Today I talked to the people at my Flexible spending account about what expenses are reimburseable for DE IVF.  Needless to say that I talked to two different men, who are clueless about the process.  There is a listing of all covered expenses related to fertility.  It states "Egg Donor and/or Sperm Donor charges for the Recipient"  I first called asking for clarification of what this means.  I was told "nothing for the donor is covered, because they are NOT a listed participant."  I thin asked to speak with this man's supervisor.  The supervisor was worse that the original guy saying "nothing is covered until IT is implanted in you" So that statment, according to you, means nothing.  I explained that 100% of donor costs are paid long before transfer.  Out of frustration,  I hung up with him and said I want the person who handles the fertility claims to respond to my inquiry.  I told him "IT" is an "embryo" and is my future child and it is very respectful to refer to that child as "IT"  I don't usually get to hot under the collar about this stuff, but I am just at my breaking point trying to get people to understand who just aren't capable of understanding.  Why cann't they just admit that they don't know, don't understand the process-and refer me to someone who does?  At least try to have compassion, even if they'll never understand these things the way we do?  I listed some of the expenses-Agency fee, Testing for donor to see if she is physically and psychologically able to be a donor, donor compensation and donor IVF cycle.  In my opinion, all these expenses fall under the description "donor egg charges for the recipient."  Am I crazy yet, or still?
TTC since 10/09 Me-43 DH-44 RE and testing 10/10-11/10, Recommending IVF 1/11 New RE AMA and DOR-DH low motility IVF #1.1 cancelled 3/11 due to poor response IVF #1.2 May 2011, one perfect 8-cell embryo, 3dt-BFN, IVF #2.1 Converted to IUI d/t poor response. New RE 9/2011. IVF 2.2 completed using HGH,EPP,DHEA, Q-10 and accupuncture. Transferred one 8-cell, grade one embryo on 10/19. BFP 10/31/11 Chemical pregancy on 11/2/11. Started stims for IVF #3, our final try, on 12-2-11. ET on 12/18. Transferred 3 Grade A embryos-BFFN Planning DE IVF, late March/early April- Donors ER expected to be 4/2-4/4. PAIF/SAIF welcome

Re: Needing to vent

  • Uggg I'm sorry you aren't getting straight answers, I've always had issues with getting clear answers on these things, I was told IUI wasn't covered because they were putting an embryo inside me, totally wrong.

    But anyway, since FSA expenses are really regulated by the IRS, have you checked the IRS website with regards to what's a reimbursable expense for donor cycles? I would not be surprised if your donor's expenses weren't considered eligible, (however almost certain you could claim that amount towards your healthcare tax credit) but all your medical expenses should certainly be eligible.

    nate and teddy
    Me 41 DH 46  Not actively ttc, surprise BFP on 1/6/11! 4/1/11 m/c our sunshine at 16wks after complications from CVS test. TTC #2 **5th cycle 12/6/11 BFP! Missed m/c at 9 weeks 1/21/12, trisomy 14. Two Chemical PG 3/12&7/12
    ** BFP 8/16/12 beta #1 148! beta#2 407 beta #3 4000 u/s 9.10 1 lovely hb 126, Baby Boy is due 04/28/13!!
    Baby Birthday Ticker Ticker

  • I will send you an IRS ruling that I found about donor costs being deductible. I will be out of town so it will take me a few days but I will find it on my computer.

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

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    I don't know about yours, but I am limited to only being able to put $5000 total in my health spending account in any case. We ended up just using all the DE expenses to take the healthcare deductible on our taxes. So I think it may be 6 of one, half a dozen of the other if, as McIrish says, the fees related to the donor are deductible. Which they pretty much have to be. Our clinic had the one-fee structure, however--no break-down between donor/recipient costs, so we didn't have the same concern. 

    me - 41 (dx: DOR); DH - 53 (no problems); 7/18/09 - married!; 8/4/09 - BFP on first (real)try; 9/14/09 - missed m/c; 9/15/09 - d&c; 11/09 - 3/10 - 4 natural cycles = BFN; 4/10 - dx hyperthyroidism caused by Graves' disease; 6/10 - thyroidectomy; 7/10 - 12/10 - 1 natural and 5 medicated IUI cycles = BFN; 1/11 - new RE; dx low ovarian reserve (AMH .42; 1/26/11 -- BFP (ectopic) from IUI #6; methotrexate 2/10/11; 6/2/11 - IVF #1 = BFN; 9/12/11 - prescreening for DE; 9/15/11 - IUI #7 (unmedicated)= BFN; 11/8 - begin DE cycle (shared risk program); 12/5 - ER (5 eggs/4 mature/3 fertilized/2 left by day 5) 12/10 - ET of one 1BB blast (expanded, "fair" quality), none to freeze; 12/22 - totally shocked by +hpt; beta #1 = 413; #2 = 3952 2/14 - CVS reveals a healthy baby girl! EDD: 8/27/12 DD born 8/31/12, 10 lbs 10 oz and perfect in every way. 
  • I did not try with my FSA as there is a relatively small amount of money in there in the grand scheme of things (I am limited to $2,500). I did some googling prior to my cycle and the consensus was that all costs for DE IVF were tax deductible. In addition to the traditional medical costs (ET, ER)- I am also planning to add in donor fees, legal fees, agency fee, etc.  I kept all receipts and am going to verify with my tax guy. The expenses need to be greater than 7.5% of your AGI.  Next year I think it increases to 10%.  GL!

    image
    DOR and AMA
    2/12-5/12: 4 IUI cycles = all BFN;
    7/12: DE IVF # 1 (with ICSI)- 20R, 16M, 14F, 5DT of 2 blasts; 6 frosties = BFN;
    Lupus anticoagulant initially high, then found to be normal on hematology consult;
    Follow up testing in September all clear;
    Started synthroid for "high normal" TSH;
    FET # 1- late October 2012- BFP on FRER; beta # 1- 21(low), beta # 2- 48 (still low), beta # 3- 132, beta # 4- 1,293; beta # 5- 5,606; last beta- over 100,000. First u/s 11/21- heard heartbeat
    12/12- Officially an OB patient!
    Level 2 ultrasound at 20 weeks shows vasa previa and VCI
    Referral to MFM and mandatory c section for delivery
    Beautiful baby girl born at 34 weeks
    Finally home after 15 day NICU stay!
    Trying for sibling: FET # 2- May 2014; beta 5/31, BFN
    FET #3, early July 2014; beta 7/14, BFN
    DE IVF # 2- August 2014; 14R, 13M, 11F, 5dt of 2 blasts (3 AA), 5 frosties = BFN
    FET #4- December 2014, yet another BFN

    Dr. KK work up shows borderline uterine blood flow, elevated NK cells, and MTHFR mutation (homozygous for c677t)

    Added baby aspirin, prednisone, supplements, Metanx, and intralipids

    Switched to large clinic for final attempt; had endometrial receptivity testing in January; FET March 2015 = yet another BFN

    Likely OAD- NBC

  • McIrish- if you could send that to me as well, I'd really appreciate it. I have a feeling that this won't be a familiar situation to my tax guy, so if I had a reference, that might help make things less confusing.

    image
    DOR and AMA
    2/12-5/12: 4 IUI cycles = all BFN;
    7/12: DE IVF # 1 (with ICSI)- 20R, 16M, 14F, 5DT of 2 blasts; 6 frosties = BFN;
    Lupus anticoagulant initially high, then found to be normal on hematology consult;
    Follow up testing in September all clear;
    Started synthroid for "high normal" TSH;
    FET # 1- late October 2012- BFP on FRER; beta # 1- 21(low), beta # 2- 48 (still low), beta # 3- 132, beta # 4- 1,293; beta # 5- 5,606; last beta- over 100,000. First u/s 11/21- heard heartbeat
    12/12- Officially an OB patient!
    Level 2 ultrasound at 20 weeks shows vasa previa and VCI
    Referral to MFM and mandatory c section for delivery
    Beautiful baby girl born at 34 weeks
    Finally home after 15 day NICU stay!
    Trying for sibling: FET # 2- May 2014; beta 5/31, BFN
    FET #3, early July 2014; beta 7/14, BFN
    DE IVF # 2- August 2014; 14R, 13M, 11F, 5dt of 2 blasts (3 AA), 5 frosties = BFN
    FET #4- December 2014, yet another BFN

    Dr. KK work up shows borderline uterine blood flow, elevated NK cells, and MTHFR mutation (homozygous for c677t)

    Added baby aspirin, prednisone, supplements, Metanx, and intralipids

    Switched to large clinic for final attempt; had endometrial receptivity testing in January; FET March 2015 = yet another BFN

    Likely OAD- NBC

  • imageMrs.McIrish:
    I will send you an IRS ruling that I found about donor costs being deductible. I will be out of town so it will take me a few days but I will find it on my computer.

    This would be so helpful....Thank you so much.

    TTC since 10/09 Me-43 DH-44 RE and testing 10/10-11/10, Recommending IVF 1/11 New RE AMA and DOR-DH low motility IVF #1.1 cancelled 3/11 due to poor response IVF #1.2 May 2011, one perfect 8-cell embryo, 3dt-BFN, IVF #2.1 Converted to IUI d/t poor response. New RE 9/2011. IVF 2.2 completed using HGH,EPP,DHEA, Q-10 and accupuncture. Transferred one 8-cell, grade one embryo on 10/19. BFP 10/31/11 Chemical pregancy on 11/2/11. Started stims for IVF #3, our final try, on 12-2-11. ET on 12/18. Transferred 3 Grade A embryos-BFFN Planning DE IVF, late March/early April- Donors ER expected to be 4/2-4/4. PAIF/SAIF welcome
  • imagedhreczuck:

    Uggg I'm sorry you aren't getting straight answers, I've always had issues with getting clear answers on these things, I was told IUI wasn't covered because they were putting an embryo inside me, totally wrong.

    But anyway, since FSA expenses are really regulated by the IRS, have you checked the IRS website with regards to what's a reimbursable expense for donor cycles? I would not be surprised if your donor's expenses weren't considered eligible, (however almost certain you could claim that amount towards your healthcare tax credit) but all your medical expenses should certainly be eligible.

    I agree that what is covered is regulated by the IRS, but guess that I'm going to need a tax guy to help me sort through this stuff.  Another expense to add to the list. 

    TTC since 10/09 Me-43 DH-44 RE and testing 10/10-11/10, Recommending IVF 1/11 New RE AMA and DOR-DH low motility IVF #1.1 cancelled 3/11 due to poor response IVF #1.2 May 2011, one perfect 8-cell embryo, 3dt-BFN, IVF #2.1 Converted to IUI d/t poor response. New RE 9/2011. IVF 2.2 completed using HGH,EPP,DHEA, Q-10 and accupuncture. Transferred one 8-cell, grade one embryo on 10/19. BFP 10/31/11 Chemical pregancy on 11/2/11. Started stims for IVF #3, our final try, on 12-2-11. ET on 12/18. Transferred 3 Grade A embryos-BFFN Planning DE IVF, late March/early April- Donors ER expected to be 4/2-4/4. PAIF/SAIF welcome
  • I think everything relating to the donor process is deductible. But you can only deduct the portion that is above the 7.5% of your AGI.  The flex spending account is different. My plan allows 5K per year and I submit receipts to be reimbursed for those expenses (the $5K is deducted from my paycheck and isn't taxed).  I have gotten reimbursed from my flex spending for any IVF fee (including hotel expenses for traveling for IVF).   Here is a publication on the IRS website and this ruling is very broad in allowing deductions for donor eggs.  I would give this to the flex spending people if they give you a hard time.  Note that if you give receipts towars your FSA, you can't then deduct that expense a second time for your tax return.

    https://www.irs.gov/pub/irs-wd/0318017.pdf

     

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

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