DH and I had our second opinion appt today. It did not go well. We liked and respected the doctor, but he didn't tell us anything we wanted to hear (which we are, in a way, thankful for, because our current doctor is perfectly happy to keep pumping us full of drugs that probably won't help, and see us continue to lose babies.)
He would like to test for aneuploidy, which is a chromosomal thing. Basically, it would be IVF with additional genetic tests on the actual embryos themselves. If any are normal, we would proceed with the IVF cycle. If not, we're basically screwed.
That sound you heard? That would be all our dreams flying out the window. Not just the baby-related ones, but also the one where we ever get out of debt or buy a house since it looks like we'll be taking out an IVF loan instead of a mortgage.
There aren't even any appropriate words to describe how utterly devastated, hopeless, and broken we feel right now. I don't know if I can do this...
PAIF/SAIF, PGAL/PAL welcome.
TTC since March 2010 ~ Dx Unexplained IF September 2011 2011: IUI + Clomid = CP#1 2012: 3 more IUIs + Clomid = 3 more CPs. One on-our-own pg, also CP 2013: BTB IUI + Lupron/Follistim/Prometrium/PIO = CP #6 IF testing, RPL testing, Autoimmune testing = all normal
So lost.
I'm so sorry you didn't hear what you would have liked to hear. It is so unfair.
(((HUGS)))
This! ((((huge hugs))))
(USE TO BE, WISH2BEMOMMY). 1st BFP ever Aug. 16, 2010.... 1st OB appt. Sept. 8, 2010, u/s showed poss. blighted ovum.... b/w 9/8/10 22,698 b/w 9/10/10 14,521.... mmc confirmed, started naturally m/c 9/15/10, d & c 9/16/10 I love you my precious monkey!! 2nd BFP March 2011.... c/p, miss you lil one!! 3rd BFP Nov. 20, 2011, subcornial hemorrhage detected 11/24/11 heartbeat found.... LO's heartbeat lost 11/25/11.... d & c 11/26/11..... I love and miss you so much baby!!!! C/P 4/26/12.... gone before I knew you.... off BCP 10-1-13.. BFP 11-20-13.. SCH for 7 weeks.. 3-4-14: It's a Girl!.. 4-22-12 emergency cerclage placed..7-7-14 cerclage removed at 36w.. delivered Lillian Marie 7-28-14..
"An angel in the book of life wrote down my baby's birth.
Then whispered as she closed the book "too beautiful for earth"
I wish I could find the right words to make you feel better but I just don't think I have any . I'm just so sorry it went the way it did. Sending you big, squishy hugs.
PAIF/SAIF, PGAL/PAL welcome.
TTC since March 2010 ~ Dx Unexplained IF September 2011 2011: IUI + Clomid = CP#1 2012: 3 more IUIs + Clomid = 3 more CPs. One on-our-own pg, also CP 2013: BTB IUI + Lupron/Follistim/Prometrium/PIO = CP #6 IF testing, RPL testing, Autoimmune testing = all normal
So lost.
I'm so sorry your appointment did not go well. And, I can totally relate with the frustration of having to do IVF with PGD. It's so expensive and scary to think you might go through the whole thing and have no embryos. We just finished our IVF/PGD cycle. PM me if you have any questions. *hugs*
Thank you. I may take you up on that. Right now, we're too busy crying and worrying to really have given it much thought, but if we decide to proceed with it, I'm sure we'll have a ton of questions. Thank you so much for offering your support.
I will be waiting with bated breath to hear how this cycle turns out for you. FX!
PAIF/SAIF, PGAL/PAL welcome.
TTC since March 2010 ~ Dx Unexplained IF September 2011 2011: IUI + Clomid = CP#1 2012: 3 more IUIs + Clomid = 3 more CPs. One on-our-own pg, also CP 2013: BTB IUI + Lupron/Follistim/Prometrium/PIO = CP #6 IF testing, RPL testing, Autoimmune testing = all normal
So lost.
I am just so sorry. It's good news that you've found a doctor who's willing to do the work to figure out what's going on, but the frustration with finances and infertility is something very near and dear to my own heart right now. HUGE hugs.
I agree with Rosie. I'm so so sorry Red. :-( Big hugs for tonight.
T1 diabetes diagnosed 11/95 due to severe pancreatic injury BFP 1 1/22/10 EDD 9/30/10 Adria b. 9/11/10 d.8/9/11, Transposition of the Great Arteries, Pleural effusion, Kidney Failure BFP 2 4/26/12 EDD 1/3/13 M/C 5/13/12 BFP 3 10/3/12 EDD 6/17/13 Twins! Preston and Juliet b. 5/22/13
TTC #1 since Sept 2011 BFP#1 1/31/12. Empty sac discovered 3/5/12. MTX due to location in uterine horn. BFP#2 2/27/13. Empty sac confirmed 3/20/13. Mifepristone + cytotec. Currently TTA until Fall 2013, waiting for operative hysteroscopy Blog Chart
TTC since 4/28/07 Diagnosed w/ endometriosis 12/2010 Laproscopic surgery & 6 months of Lupron BFP 12/17/2011,EDD 8/23/12,ectopic discovered 12/29/11 at 6 weeks recieved methotrexate Dec '12 HSG & ultrasound showed abnormalities & more endo. Laproscopic surgery in January '13 showed significant damage & scar tissue from Endo. IVF is our best shot to concieve our rainbow.
I am so very sorry. I have definitely been on the receiving end of the news that IVF with PGD was the only thing that the RE world had to offer us.
Have you consulted with a reproductive immunologist? They are somewhat hard to come by and the science behind reproductive immunology is much newer than the older more established science behind reproductive endocrinology. After our 4th loss we were told by two REs that our RPL results showed nothing and our only hope other than to keep rolling the dice was IVF with PGD. DH and I agreed to roll the dice one more time, but were going to insist on a reproductive immunology consult before considering the financial investment of IVF with PGD. We never made it that far in our journey, but it's definitely what our next step would have been.
Really reputable RIs are few and far between, but I am happy to give you the names and locations of the ones that were recommended to me in all of my research if you are interested.
GL to you. I'm so sorry again.
ds #1 | our perfect miracle born 39w1d | 12.9.2009
loss #1 | natural m/c 7/2010 (~8w)
loss #2 | chemical pregnancy 6/2011 (4w4d)
loss #3 | chemical pregnancy 7/2011 (4w3d)
loss #4 | natural m/c 11/2011 (10w1d)
RPL Testing 12/2011. Results 100% normal.
ds #2 | our 2nd perfect miracle born 36w3d | 12.31.2012
I'm sorry you're going through this. I know it seems tough but you will get through it, don't lose hope! Big hugs to you.
**Warning: Losses and living child mentioned** BFP#1 1/31/12, EDD 10/6/12 Harrison Gray born sleeping @ 18w6d. You changed our lives little guy. BFP#2 EDD 10/29/13, C/P 2/25/13, Bye little Ish, we barely got to know you. BFP#3 EDD 12/21/13, Baby Boots born 11/23/13Myrainbowbaby!
I am so so sorry. I have no words. I can't imagine the devastation you and your DH are feeling right now. Sending you giant ((hugs)).
Started TTC June 2010 BFP #1 07/04/10. EDD 03/14/11. Missed m/c 08/09/10. D&C 09/27/10. }Casey & Jaimie{
BFP #2 01/14/11. EDD 09/25/11. Missed m/c 02/18/11. D&C 02/24/11. }Dustin{ TTA for 18 months and then TTC for 12 months
BFP #3 08/18/13. EDD 04/30/14. Missed m/c 09/25/13. D&C 09/26/13. }Daylin{ TTA for 7 months Jan-Mar 2014 - RPL, SHG, karotyping: all results normal TTC Again May 2014 Progesterone & baby aspirin combo for 5 cycles - All BFN's SA with DNA fragmentation = Perfect results Diagnostic cycle monitoring = Polycystic ovaries leading to premature egg release TTA Oct 2014 - Jan 2015 Jan 2015 - Medicated cycle with timed intercourse
July TTCAL Siggy Challenge - Favorite Children's Book
Surprise BFP 5/15/12, EDD 1/29/13, mm/c @ 8wks, discovered at 11wks, D&C 7/11/12 AF finally arrived on Christmas after 167 days of waiting. TTA until January 2014 PGAL/PAL always welcome
I am so very sorry. I have definitely been on the receiving end of the news that IVF with PGD was the only thing that the RE world had to offer us.
Have you consulted with a reproductive immunologist? They are somewhat hard to come by and the science behind reproductive immunology is much newer than the older more established science behind reproductive endocrinology. After our 4th loss we were told by two REs that our RPL results showed nothing and our only hope other than to keep rolling the dice was IVF with PGD. DH and I agreed to roll the dice one more time, but were going to insist on a reproductive immunology consult before considering the financial investment of IVF with PGD. We never made it that far in our journey, but it's definitely what our next step would have been.
Really reputable RIs are few and far between, but I am happy to give you the names and locations of the ones that were recommended to me in all of my research if you are interested.
GL to you. I'm so sorry again.
Thank you. I did look into this, but really just came to a dead end. I asked both the REs we've seen about this, and they seem to think it's not "real" medicine, and that it's not evidence-based. I would gladly take any information you are willing to share. Please PM me with your thoughts and recommendations. We really would like to explore other options, but just feel like we're at a dead end.
Thanks again.
PAIF/SAIF, PGAL/PAL welcome.
TTC since March 2010 ~ Dx Unexplained IF September 2011 2011: IUI + Clomid = CP#1 2012: 3 more IUIs + Clomid = 3 more CPs. One on-our-own pg, also CP 2013: BTB IUI + Lupron/Follistim/Prometrium/PIO = CP #6 IF testing, RPL testing, Autoimmune testing = all normal
So lost.
Re: Second Opinion - not what we wanted to hear
I don't have any advice, just lots of
*big squishy hugs*
I'm so sorry you didn't hear what you would have liked to hear. It is so unfair.
(((HUGS)))
I'm so sorry, Red. It's good that you got a second opinion, but my heart breaks for you that you had to hear such devastating news. ((HUGS))
"there is no foot so small that it cannot leave an imprint on this world"
BFP #2 2.27.13 EDD 11.8.13 Grow, baby, grow!
My Ovulation Chart
~ all ALers welcome ~
Our TTCAL Blog--Newbies and Lurkers Please Read!
♥♡♥ PAL/PGAL welcome♥♡♥I am sorry your appoinment didn't go well. Hugs~
BFP #1 12/29/10 EDD 08/29/11 Blighted Ovum 02/09/11 D&C 02/11/11
Clomid 50mg BFP #2 09/21/11 EDD 05/29/11 Chemical Pregnancy 10/4/11
BFP #3 4/19/13 Beta1- 106 Beta2- 524 Beta3- 3500 EDD 12/22/13 LO born 12/31/13
D&C: 03/08/12 Waited for AF for 146 long days!
Hysteroscopy/D&C on July 10th to fix blocked cervix (DX: Cervical Stenosis)
BFP #2 12/8/12, EDD 08/21/13 Our rainbow arrived 08/24/13!
TTC #2 Since October 2011
RE testing results: DH- normal ME- DX:PCOS and One copy of MTHFR gene
IUI#1 Sept/Oct 2012-Follistim, Ovidrel, Metformin, Baby Asprin, Lovenox, Crinone, and Neevo Beta 10/24=BFN
No 2nd IUI but instead TI with Metformin, Baby Asprin, Neevo and Prometrium
BFP #4 5/4/13-EDD 1/19/14- grow little one, grow!
Beta #1@15DPO HCG-95, progesterone-25 Beta #4@24DPO HCG-2498, progesterone-30, 1st U/S 6mm,133BPM 2nd U/S 1.6cm, 167 BPM
Chart
~*~*~*~Everyone Welcome~*~*~*~
I wish I could find the right words to make you feel better but I just don't think I have any . I'm just so sorry it went the way it did. Sending you big, squishy hugs.
dream 1 CAME TRUE 2.13.2010
<dream 2> 12.2011
2.10.12 : 4 weeks
6.17.12 : 10 weeks
10.10.12 : 4 weeks, 6 days
12.13.12 : 9 weeks, 1 day
4.6.13 : 4 weeks, 4 days
10.27.13 : 5 weeks, 6 days
4.2.14 (IVF #1) : 4 weeks, 1 day
6.19.14 : IVF #2 Negative
</dream 2>
resolve.org
lyrics
***All always welcome!!***
TTC since March 2010 ~ Dx Unexplained IF September 2011
2011: IUI + Clomid = CP#1
2012: 3 more IUIs + Clomid = 3 more CPs. One on-our-own pg, also CP
2013: BTB IUI + Lupron/Follistim/Prometrium/PIO = CP #6
IF testing, RPL testing, Autoimmune testing = all normal
So lost.
BFP #2: 8/31/12 EDD: 5/18/13 Chemical pregnancy: 9/4/12
BFP #3: 5/17/13 EDD: 1/24/14 Loss at 5 weeks: 5/29/13
Lots of testing, all clear with the exception of compound heterozygous for the MTHFR mutation.
Cycle 1: Femara, trigger shot, Bravelle added due to slow response = BFN
Cycle 2: Cancelled due to two cysts =(
Cycle 3: Femara, Bravelle, trigger shot and IUI = BFP then loss #3
Cycle 4: Femara, Follistim, trigger shot and IUI = BFP! EDD: 6/7/14
PGAL/PAL welcome
I'm so sorry, hun.
Big {{hugs}}
BFP #1 - 01/12/12, EDD 09/12/12, Medical Induction @ 21 weeks 05/03/12
BFP #2 - 10/30/12, EDD 07/04/13, Natural m/c @ 5 weeks 11/01/12
BFP #3 - 02/07/13, EDD 10/12/13
Dx: Incompotent Cervix
EDD 1/31/13, MC May 17. EDD 3/31/13, MC July 26. I miss you so much already my angel loves
Thank you. I may take you up on that. Right now, we're too busy crying and worrying to really have given it much thought, but if we decide to proceed with it, I'm sure we'll have a ton of questions. Thank you so much for offering your support.
I will be waiting with bated breath to hear how this cycle turns out for you. FX!
TTC since March 2010 ~ Dx Unexplained IF September 2011
2011: IUI + Clomid = CP#1
2012: 3 more IUIs + Clomid = 3 more CPs. One on-our-own pg, also CP
2013: BTB IUI + Lupron/Follistim/Prometrium/PIO = CP #6
IF testing, RPL testing, Autoimmune testing = all normal
So lost.
I agree with Rosie. I'm so so sorry Red. :-( Big hugs for tonight.
T1 diabetes diagnosed 11/95 due to severe pancreatic injury
BFP 1 1/22/10 EDD 9/30/10 Adria b. 9/11/10 d.8/9/11, Transposition of the Great Arteries,
Pleural effusion, Kidney Failure
BFP 2 4/26/12 EDD 1/3/13 M/C 5/13/12
BFP 3 10/3/12 EDD 6/17/13 Twins! Preston and Juliet b. 5/22/13
TTC #1 since Sept 2011
BFP#1 1/31/12. Empty sac discovered 3/5/12. MTX due to location in uterine horn.
BFP#2 2/27/13. Empty sac confirmed 3/20/13. Mifepristone + cytotec.
Currently TTA until Fall 2013, waiting for operative hysteroscopy
Blog Chart
4 Losses (2003, 2008, Apr 2012, & Oct 2012)
All RPL and IF testing with multiple REs = normal
5 IUIs = BFN
All AL are welcome
.
Diagnosed w/ endometriosis 12/2010 Laproscopic surgery & 6 months of Lupron
BFP 12/17/2011,EDD 8/23/12,ectopic discovered 12/29/11 at 6 weeks recieved methotrexate
Dec '12 HSG & ultrasound showed abnormalities & more endo. Laproscopic surgery in January '13 showed significant damage & scar tissue from Endo. IVF is our best shot to concieve our rainbow.
June '13 Decided to go the adoption route!
***PGAL/PAL WELCOME***
*siggy warning*
I am so very sorry. I have definitely been on the receiving end of the news that IVF with PGD was the only thing that the RE world had to offer us.
Have you consulted with a reproductive immunologist? They are somewhat hard to come by and the science behind reproductive immunology is much newer than the older more established science behind reproductive endocrinology. After our 4th loss we were told by two REs that our RPL results showed nothing and our only hope other than to keep rolling the dice was IVF with PGD. DH and I agreed to roll the dice one more time, but were going to insist on a reproductive immunology consult before considering the financial investment of IVF with PGD. We never made it that far in our journey, but it's definitely what our next step would have been.
Really reputable RIs are few and far between, but I am happy to give you the names and locations of the ones that were recommended to me in all of my research if you are interested.
GL to you. I'm so sorry again.
BFP#1 1/31/12, EDD 10/6/12 Harrison Gray born sleeping @ 18w6d. You changed our lives little guy.
BFP#2 EDD 10/29/13, C/P 2/25/13, Bye little Ish, we barely got to know you.
BFP#3 EDD 12/21/13, Baby Boots born 11/23/13 My rainbow baby!
January PAL Siggy Challenge: Good Advice
BFP #1 07/04/10. EDD 03/14/11. Missed m/c 08/09/10. D&C 09/27/10. }Casey & Jaimie{
TTA for 18 months and then TTC for 12 months
TTA for 7 months
Jan-Mar 2014 - RPL, SHG, karotyping: all results normal
TTC Again May 2014
Progesterone & baby aspirin combo for 5 cycles - All BFN's
SA with DNA fragmentation = Perfect results
Diagnostic cycle monitoring = Polycystic ovaries leading to premature egg release
TTA Oct 2014 - Jan 2015
Jan 2015 - Medicated cycle with timed intercourse
My Blog: The Canadian Housewife PGAL/PAL Welcome My Chart
Red, I am so sorry.
This has been suggested to us, as well. My husband refuses to go down the IVF road, so it is not in the cards for us.
I hope that you find peace in whatever decisions you make.
July TTCAL Siggy Challenge - Favorite Children's Book
Surprise BFP 5/15/12, EDD 1/29/13, mm/c @ 8wks, discovered at 11wks, D&C 7/11/12
AF finally arrived on Christmas after 167 days of waiting.
TTA until January 2014
PGAL/PAL always welcome
M/C 7/8/12
Perfect baby boy born 7/8/13
BFP 8/20/14 EDD 4/27/15 It's a GIRL!!
Thank you. I did look into this, but really just came to a dead end. I asked both the REs we've seen about this, and they seem to think it's not "real" medicine, and that it's not evidence-based. I would gladly take any information you are willing to share. Please PM me with your thoughts and recommendations. We really would like to explore other options, but just feel like we're at a dead end.
Thanks again.
TTC since March 2010 ~ Dx Unexplained IF September 2011
2011: IUI + Clomid = CP#1
2012: 3 more IUIs + Clomid = 3 more CPs. One on-our-own pg, also CP
2013: BTB IUI + Lupron/Follistim/Prometrium/PIO = CP #6
IF testing, RPL testing, Autoimmune testing = all normal
So lost.