I just wanted to hop in and say hi & welcome back. I don't recall seeing any other schizencephaly moms, you may be the previous one i'm thinking of.
We met a little girl at the eye dr at WVU when P was about 7 months old, who had this. She seemed like a very normal baby on the outside, I can't quite remember how old she was. I think she was 11 months but small for her age. I know the dad told me a little about it and I really didn't know much about it at the time, except that P had plagiocephaly & brachycephaly.
How is your LO doing?