Infertility Veterans

Cystic fibrosis test

I'm embarrassed to ask this because I'm pretty sure I know the answer.

You only need to have this test done once, Correct?   You either are a carrier or your not.  If you have it, it's something you are born with, right?

I only ask because my IVF clinic, who I've had a prior ivf with, is asking me to get this done as part of my yearly infectious diesese testing.  I hate having my isurance premiums go up for unneccesary tests because some nurse is to lazy to go through my records properly.  (Of course, if I'm wrong about this test and it does need to be repeated, I'm going to really be embarrassed about my last comment.)

TTC #1 since 9/07
Dx MFI, AMA, Endo, AMH .16
Lap 10/09 Removed endometrioma, stage IV endo and adhesions
Lap 2/10 Endometrioma cysts & adhesions returned.
Ivf #1 4/10 Antagonist, ET Cancelled.
IVF #2 2/11 A/ACP+E2V C/P
IVF #3 6/11 Letrozole/Antagonist BFN
IVF #4 11/11 Low stim Antagonist BFN
Lap 3/12 Lap & Selective HSG
Many cycles of Letrozole and LP HCG w/TI and LDN
IVF #5 8/12 Low stim BFN
IUI #1 10/12 BFN br> S&PAIFW

Re: Cystic fibrosis test

  • Yes, you only need to have it done once.  Also, you're the only one that needs to be tested, unless you come up positive - then they'll test your husband as well ... in most cases.  I tested negative, but they tested my husband as well to see if his azoo may be related to a CF marker.
    Me: 35 DH: 37 TTC since 4/2010
    DX: 6/9/2011: Azoo ICSI/IVF only option for biological child
    IVF #1: ER - 9/26 * ET - 10/1 * beta#1 10/13 - 140 * beta#2 10/17 - 477 * beta#3 10/20 - 1101
    1st u/s at 6w6d - one hb * 2nd u/s at 8w3d - no hb detected 11/10/11 * natural m/c 11/13/11
    FET #1 Jan/Feb 2012 - 3 delays - cancelled 2/13
    FET #1.2 - May/June 2012 - ET 6/6/* beta#1 6/15 - 95 * beta #2 6/19 - 322 * beta #3 6/22 - 940
    7/6 1st u/s @ 7 weeks - one beautiful hb - released from RE
    EDD 2/22/2013
    PAIF/SAIF/PGAL welcome
    imageimageimageimage
    BabyFruit Ticker
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  • LaLe09LaLe09 member

    Yes. I don't know why they'd have you repeat it.


    DH: Severe MFI/Azoo Me: Compound heterozygous MTHFR
    IVF #1= m/c- methotrexate @6w2d
    FET #1= BFN
    IVF #2= m/c- D&C @8w5d
    IVF #3= Beta #1 9dp5dt= 252, Beta #2 11dp5dt= 417, Beta #3 17dp5dt= 4,952
    US #2 @ 7w2d= twins, baby B measuring behind
    US #3 @ 8w5d= Baby A doing well, no HR in baby B
    *S/PAIF always welcome* BabyFetus Ticker
  • Are you still at C.ooper?  They always put the CF test on my updated test lists and I just ignore it. If you had it once, you don't need to repeat. I also opted to not get it at all because my insurance won't pay for it.

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

  • Thanks ladies!  I had it done three ivf ago.

    @McIrish, Yep that's where I'm at.  It's so frustrating that they do that.  On top of it, they said my infectious diesese testing was out of date.  I have a copy of the testing from last November that they ordered!   I'd love to see my actual folder. Is it just so full they can't find anything or does things never actually make it to the folder?

    btw, do you have a copy of their minimal stim ivf pdf document you could send me?   I went to their website to view it yesterday and all of the protocol pages come up as 'not found'.  I sent them and email asking them to fix it, plus I called the front desk to inform them about it and all they did was put me through to the nurse's line.  Not sure how a down website is a nurse's problem. 

    TTC #1 since 9/07
    Dx MFI, AMA, Endo, AMH .16
    Lap 10/09 Removed endometrioma, stage IV endo and adhesions
    Lap 2/10 Endometrioma cysts & adhesions returned.
    Ivf #1 4/10 Antagonist, ET Cancelled.
    IVF #2 2/11 A/ACP+E2V C/P
    IVF #3 6/11 Letrozole/Antagonist BFN
    IVF #4 11/11 Low stim Antagonist BFN
    Lap 3/12 Lap & Selective HSG
    Many cycles of Letrozole and LP HCG w/TI and LDN
    IVF #5 8/12 Low stim BFN
    IUI #1 10/12 BFN br> S&PAIFW
  • imageTrippleb:

    Thanks ladies!  I had it done three ivf ago.

    @McIrish, Yep that's where I'm at.  It's so frustrating that they do that.  On top of it, they said my infectious diesese testing was out of date.  I have a copy of the testing from last November that they ordered!   I'd love to see my actual folder. Is it just so full they can't find anything or does things never actually make it to the folder?

    btw, do you have a copy of their minimal stim ivf pdf document you could send me?   I went to their website to view it yesterday and all of the protocol pages come up as 'not found'.  I sent them and email asking them to fix it, plus I called the front desk to inform them about it and all they did was put me through to the nurse's line.  Not sure how a down website is a nurse's problem. 

    I just emailed you the pdf.

    I got a sheet in the mail on the Friday before my Sunday ER saying my infectious diseases needed to be updated... Yeah, I just ignored it and no one said a word.  Seriously, I wonder how they function some days..

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

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