Special Needs

tough week

4 weeks yesterday was when we sent DS2's blood our for his XLID panel to see if he has DS1's mutation.  We should be hearing back anyday and the anxiety is literally eating me alive.

On top of that we found out friends of ours are pregnant and another couple we're friendly with are pregnant.  While I'm insanely happy for them, it makes me sad for DH and I.  I am dieing for a 3rd baby but with all my genetic issues I just can't do it unless we do IVF with PGD.  And that is riddled with it's own complications.

And then today I had my 6 week postpartum visit.  I KNOW my chart mentions DS1's disabilities because of the 50/50 risk for DS2.  The OB starts asking how DS2 is and if I'm enjoying the summer.  And she just kept going on and on.  All I wanted to do was cry.  Yes, it's been a wonderful summer.  The inside of the Children's hospital hasn't changed at all in 2 years and it was wonderful spending 4 days with my 3 week old in there.  On top of that going through kidney workups as a follow up.  Oh and it's been great having 100 degree heat so we're kind of stuck in the a/c while waiting for DS2's genetic results.  

And then, she tells me to relax.  Enjoy my time off and just enjoy being lazy in summer and enjoying my kids.

Uhm...I don't know about you ladies, but I don't get time off or time to be lazy.  DS1 has therapy 2-3x/week, we've been going back and for the pedi almost weekly between DS1's illnesses and DS2's hernias and well visits.   

I literally walked out as fast as possible and cried in my car before driving home.

I think I need a vacation. 

To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew

Re: tough week

  • Sorry you're having such a rough time.  I hope you get a break soon - it sounds exhausting.  Sorry the OB wasn't more sensitive.  
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  • image-auntie-:

    I'm so sorry.

    I wonder if you should print this out and mail it to the doctor anonymously. She needs to work on this. At the very least, she should have understood that you are at tremendous risk of PPD and screened you rather than prattle on about nonsense that just doesn't apply to the place where you find yourself now.

    This. Seriously. I don't know you in person, but I am guessing that after all you have been through in the past months, it would be pretty obvious by looking at the expression on your face that her inane blatherings were inappropriate.

    I give people a lot of lee-way because I realize many do not know what to say. But come on. 

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  • {{Hugs}} You've been going through a lot and while it was nice of her to try and do small talk with you (if you want to call it that), she didn't to choose a different kind of small talk. I hope she is more sensitive next time.
  • I wish I knew you IRL so I could come over and babysit for a few hours! You deserve a break.
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