~*~DOR/POF Check-in~*~

ceemonkey

This group is open to anyone who has Diminished Ovarian Reserve or Premature Ovarian Failure (sometimes also called Primary Ovarian Insufficiency ? POI). 

 

This check-in will be posted each Wednesday.  If you?d like to be added to this group, please reply to this message, and I?ll make sure to add you for next week.  Welcome to the lurkers!  We know this can be a difficult journey, but we welcome you with open arms.  Let us know if we can answer any questions.

 

GRADUATES ARE WELCOME AND ENCOURAGED TO POST! 

 

Status Update: What is going on in your cycle or where are you in your process?

 

QOTW: Does your doctor dictate your protocol and you go along with it, or do you bring ideas to him/her and you work on protocols together?

 

BFPs!

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In the 2ww

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Currently Cycling or on BCP?s

lovekatespade ? on Lupron for IVF #2, should start stims on 5/29

Mrs.McIrish ? priming right now for 4^th and final IVF, ER around 6/4

 

Waiting to Cycle/Between Cycles

annalisel ? has high TSH levels, going through nat cycles while waiting on thyroid to stabilize, waiting on AF, 2 days late but -HPT

joules12 ? AF arrived, will do another MDLF protocol but add EPP, waiting on instructions from nurse

liz4paws ? bumped up IVF to July, consulted with 3 different REs, picked one and is confident in choice

ceemonkey ? BFN on latest IUI. Matched with donor embryos, reserved them for a transfer in a couple months

GettinCrafty ? decided to do an IUI w/injects, waiting for cycle to start

 

No check in

Paris05 ? IUI #6 on 1/20, will test on 2/3, feeling AF coming but GL!!!

AmCheri ? m/c in Dec (((hugs))), beta reached 0, waiting on AF to cycle again

mtlaurel ? first apt for DE cycle on 2/20, started filling out forms for consult

K8teeinTX ? waiting on AF, started BCPs, u/s on 2/17, maybe start micro-dose Lupron on 2/20?

glueck ? had baseline for IVF #1, starting stims on 3/9

richzep ? still on a break, doing some research, DH to see urologist

HappyIAm ? 6 dpFET, beta on 3/19, GL!!!

glueck ? ET for IVF #1 on 3/22

ladyrader0227 ? Welcome! ET on 3/11 of 2 embies, beta 3/23, GL!!!

abvernon ? taking a break from acu & herbs, still tracking cycles

jlcrane78 ? started BCPs on 4/16, will start stims in May

ge0rge ? on 2^nd natural IVF cycle, ER 4/19 was cancelled ? had already O?d, converted to IUI, WTF 5/3, hoping IUI worked ? GL!

CeeCee82 ? had a lap on 3/21, TTC naturally, hope to do IUI in June

lynn0926 ? matched with a donor, finished mock cycle on 4/17, approved for guarantee program, congrats! Picked a new donor because other one couldn?t commit. Now on BCPs, Lupron starting 5/28, ER 6/19-22?

Trippleb ? Post-Op from third lap surgery on 3/20, everything is healing nicely. Starting 2^nd cycle post-lap, holding off on IVF to make sure everything is back to normal.

MandaS08 ? possibly starting IVF soon, changing protocol to EPP antagonist

mm29 ? ET for IVF #4 on 4/4, beta not doubling, bleeding, ended with c/p (((hugs))), WTF 5/16, hoping for good f/u

Love4Labs326 (formerly ccubed3125) ? met w/ urologist and DH had repeat SA on 5/14. Almost no living sperm and zero motility (((hugs))), will wait through summer for sperm to hopefully replenish. Cycle in Aug/Sept?

blushingbrideoct07 ? on round 2 of clomid, cysts complicating cycle but moving forward

JenScott-4-09 ? on stims, will trigger 5/17 with ER on 5/19, GL!!

fullfhope ? on stims for IVF #1, monitoring appt 5/17

sekura ? with RBA DE program, 3 of 5 fertilized, froze 2, ET of 1 blast on 5/12, beta 5/22. GL!!

 

 ~*~Graduates~*~

mlhowe07 ? BFP on 4/28!! Congrats!

DoingItRight ? BFP on 5/15!!!!

lenebene ? positive beta 5/13 on DE IVF!!!

danish16 ? BFP on 7/1!! Congrats!

TotallyLoCo ? FET 8/5, +HPT 8/12, beta 8/15, CONGRATS!!

Tootlebug ? BFP on 8/12 ? twins! CONGRATS!

STL34 ? BFP on IVF #3! CONGRATS!  

snoangel79 ? BFP! Update 9/21 ? it?s TWINS!! CONGRATS!!

madhatterxo ? natural BFP, Congrats!!!

leolyns ? BFP on IUI #1, graduated to OB, congrats!

UMichGirl ? u/s week of 11/7 ? saw & heard heartbeat!

jessager ? BFP on IVF #1.2, had NT scan, everything normal, officially half-way on 4/19!

IBackBevo ? BFP on IUI #1, saw HB on 1/27, 8 week u/s on 2/10, congrats!

jillychris ? surprise BFP on 2/19, congrats!!

MrsLouie10 ? had FET on 3/13, beta #1 on 3/27 was 2353, beta #2 was 5000+, 1^st u/s revealed twins, congrats!!!

bellalou32 ? FET of 3 on 4/9, +HPT 7dp3dt, beta on 4/23 came back at 1275, congrats!!! 1^st u/s on 4/30

Mrkyrain ? BFP on IVF #5, congrats!!! 2 sacs, but baby B measuring behind. Baby A doing well!

 

PLEASE LET ME KNOW IF THERE ARE ANY SPECIFIC QUESTIONS YOU'D LIKE ME TO ASK! I have a hard time coming up with things so please let me know. 

Mrs.McIrish

Status Update: What is going on in your cycle or where are you in your process?

 I have an estrogen patch on and am waiting for AF to show up to do IVF#4.

 

QOTW: Does your doctor dictate your protocol and you go along with it, or do you bring ideas to him/her and you work on protocols together?  I don't have a ton of access to my RE as I am cycling out of town.  But I have had phone calls with him and he will listen to requests if I have them.

 

 

violetmarie61516

**Ceemoney, congrats on your embryo match.  We are considering this option.  Do you mind PM me with some info?

Status Update: What is going on in your cycle or where are you in your process? We are still waiting for DH to recover from the Clomid treatments.  My RE is still working closely with me during our wait and making sure all our testing is out of the way so there won't be any questions when we are ready.  We also began discussing IVF and the possibility of donor embryos.  My AFC went up to 7 this cycle and I'm so excited and happy about that!  DH is still having a hard time but I'm trying to keep him hopeful.

 

QOTW: Does your doctor dictate your protocol and you go along with it, or do you bring ideas to him/her and you work on protocols together?  We definately coordinate protocols together.  She is amazing at explaining the ups and downs of everything and open to our thoughts/opinions.

GettinCrafty

Status Update: Waiting to begin our very first assisted cycle when I get AF next -- mid-June. IUI with injects. 

QOTW:  N/A for us so far, but it's something I've wondered about. I'll be interested in others' responses to this. I've always had a very short LP, so I intend to ask RE if whatever protocol I do needs to take this into account. I have this idea I might O on my own, early, before I'm able to trigger. Although, I guess that's one of the reasons I'll be monitored. 

stephanie1212

It would be great if I could be added to this. I am Stephanie and I found out Friday that my FSH was very high for someone my age, but they have not officially diagnosed me yet. My first appointment with the RE was today and he is starting me next month with clomid and an IUI and I think injections since he wrote me a prescription for HCG injections? This is all very new to me and confusing. I did get pregnant naturally in January, but unfortunately miscarried. I hope to get to know everyone. 

 

sekura

**ticker warning**

 Ceemonkey--congrats on your donor match!

Update--I got my BFP last Monday!  Everything is going well; both beta's I've had so far have been very good, and there's been no spotting or anything.   I have my third beta drawn tomorrow morning.

QOTW:  My FET protocol was very specifically laid out by RBA; they keep things pretty standardized.  But considering the results, I can't complain too much.

ceemonkey

Love4Labs326:

**Ceemoney, congrats on your embryo match.  We are considering this option.  Do you mind PM me with some info?

 

Will do!

ceemonkey

Love4Labs326:

**Ceemoney, congrats on your embryo match.  We are considering this option.  Do you mind PM me with some info?

 

Will do!

ceemonkey

Sekura, congrats!!

Welcome stephanie1212!

GL to everyone cycling.

Update: I go in tomorrow for b/w & u/s, it is CD6. I already have a high E2 # so I either still have that same functional cyst or I am just going to ovulate early again.

QOTW: I've never really had a set protocol. My RE does things based on b/w & u/s results. They may tell me to have something on hand or be prepared to do such and such, but they don't tell me in advance that I'll be doing anything specific. I am irritated with them right now though. I have, for about the last 5 months, been ovulating early and will have a large follicle on my right side every CD3 or thereabouts. Then they're always like, well, this cycle doesn't look good, and they'll just tell me to come back in next cycle. This has been going on too long! I want them to give me something in the luteal phase to keep me from ovulating early or something. I feel like I'm just wasting time here.

liz4paws

Status Update: What is going on in your cycle or where are you in your process?

 

No updates since last time. We have an appointment with the RE on 6/4 and I hope to get a better idea of our schedule, protocol and overall plan.

 

QOTW: Does your doctor dictate your protocol and you go along with it, or do you bring ideas to him/her and you work on protocols together?

 

My RE originally suggested I do Long Lupron protocol, but now that I have had two other RE opinions I feel like I need her to 'sell' me on why she thinks Lupron would be the best for me and our DOR situation (<0.16 AMH, 7 FSH, 11-14 AFC). I'm open to whatever procol she recommends as long as she a compelling reason for why she is choosing it for me specifically. Whatever protocol we come up with for our IVF cycle can't be one that we use as a 'learning experience' because we are only doing IVF one time and then moving right to donor embryos. The other REs recommended antagonist so we will see what she ultimately says after our appointment on 6/4! I am ready to just get this cycle going already!

 

By the way, if any of you ladies have any suggestions on protocols for someone who is just trying IVF one time only, I'd love to hear them.

 

Mrs.McIrish

ceemonkey:

Sekura, congrats!!

Welcome stephanie1212!

GL to everyone cycling.

Update: I go in tomorrow for b/w & u/s, it is CD6. I already have a high E2 # so I either still have that same functional cyst or I am just going to ovulate early again.

QOTW: I've never really had a set protocol. My RE does things based on b/w & u/s results. They may tell me to have something on hand or be prepared to do such and such, but they don't tell me in advance that I'll be doing anything specific. I am irritated with them right now though. I have, for about the last 5 months, been ovulating early and will have a large follicle on my right side every CD3 or thereabouts. Then they're always like, well, this cycle doesn't look good, and they'll just tell me to come back in next cycle. This has been going on too long! I want them to give me something in the luteal phase to keep me from ovulating early or something. I feel like I'm just wasting time here.

This is what keeps happening to me. Are you still seeing C.heck?  I talked to him about it in March and he put in my dictated letter that I could do estinyl at 6DPO to prevent the early recruitment. I know you can't take estinyl if there is a chance you'd be pg(LOL) and since I could not really find a positive O since I was on vacation, I  put a estrogen patch on last week instead and will take estinyl on CD1 or the first sign of AF cramping. I actually took estinyl last month from Cd1 to CD3 to try to slow down my O date (I was not cycling) and it much have worked since today is CD27 and I haven't hit that long of a cycle forever. Of course I just want to get this show on the road and AF won't cooperate-- go figure!

ceemonkey

Mrs.McIrish:

ceemonkey:

Sekura, congrats!!

Welcome stephanie1212!

GL to everyone cycling.

Update: I go in tomorrow for b/w & u/s, it is CD6. I already have a high E2 # so I either still have that same functional cyst or I am just going to ovulate early again.

QOTW: I've never really had a set protocol. My RE does things based on b/w & u/s results. They may tell me to have something on hand or be prepared to do such and such, but they don't tell me in advance that I'll be doing anything specific. I am irritated with them right now though. I have, for about the last 5 months, been ovulating early and will have a large follicle on my right side every CD3 or thereabouts. Then they're always like, well, this cycle doesn't look good, and they'll just tell me to come back in next cycle. This has been going on too long! I want them to give me something in the luteal phase to keep me from ovulating early or something. I feel like I'm just wasting time here.

This is what keeps happening to me. Are you still seeing C.heck?  I talked to him about it in March and he put in my dictated letter that I could do estinyl at 6DPO to prevent the early recruitment. I know you can't take estinyl if there is a chance you'd be pg(LOL) and since I could not really find a positive O since I was on vacation, I  put a estrogen patch on last week instead and will take estinyl on CD1 or the first sign of AF cramping. I actually took estinyl last month from Cd1 to CD3 to try to slow down my O date (I was not cycling) and it much have worked since today is CD27 and I haven't hit that long of a cycle forever. Of course I just want to get this show on the road and AF won't cooperate-- go figure!

Yes, I'm still seeing him and I'm getting short on patience with them. They called me yesterday and they were like, your E2 is already high, so go back in on Thursday so we can see what's going on. I said, I'll tell you! The same damn thing that's been going on since December of last year. WHY THE HELL AREN'T YOU DOING ANYTHING ABOUT IT?!? I had a callback with C.heck and told him all of this and he said something about starting lupron in the luteal phase but the nurse instead put me on BCPs which didn't work. She said "next time we'll have to try something stronger." I've told them repeatedly that I no longer have any insurance coverage and can't keep messing around like this. I don't think they look at the file sometimes. It's incredibly frustrating - I don't know what to do.

blushingbrideoct07

 ***ticker warning***

 

 

Congrats Sekura!!!! 

 

 

Status Update: What is going on in your cycle or where are you in your process?

 I triggered on Thursday and had an IUI on Saturday. Officially in my 2ww.

 

QOTW: Does your doctor dictate your protocol and you go along with it, or do you bring ideas to him/her and you work on protocols together?  I don't have a ton of access to my RE either. I met with him for initial consult, diagnosis consult and when her did my hsg.   Other than that i do most of my talking with his nurses. He gave me three different options for treatment and told me that I could whatever I was most comfortable with, clomid, injectables and IVF. If clomid doesn't work for one more cycle then we will have a wtf meeting to discuss IVF. 

 

 

fullfhope

Welcome Stephanie, sorry you have to be here but the board is always very helpful and caring I have found, so you a in a good place with supporitive and smart ladies. Best of luck to you!

 

 

We had ER on 5/23, 6 eggs, which was exciting for us since cycle was almost cancelled due to poor response and I was scared they wouldn't get any! 4 fertilized and three were transferred on 5/26! Last one we hoped would make it to freeze but it did not. So we are now in the wait.

 

QOTW: My RE determines our protocol, but it is a clinic with a Doctor of the Day policy, so any time I have BW or u/s I have variety of different Dr. I wasn't sure how I would like that, not personal enough, but I have been happy with each one I've met (must be at least 8-9 different Dr.s  so far). I guess "my" original RE determines the protocol, then each one I meet with goes over it and answers any questions I have at the time. For my second IUI the Dr. Did agree to up amount of clomid at my request since I seemed to be poor responder. So I guess they are open to my ideas for better or worse, all I got for that endeavor was a cyst that delayed us a cycle. Long answer to  this question. Guess that is what happens when all I am doing I waiting for two weeks!

lynn0926

I am currently on BCP and Lupron. Baseline is on Tues. We have made all ofour travel plans for our DE cycle. I can't believe how close it is!

QOTW: When I was trying with my OE, my input and suggestions were listened to. For my DE cycle, I did not have any input. 

lovekatespade

Update: Started stims yesterday, same dosing as last time.  Estimated ER is 6/8, if all goes well. Although with my luck.......

QOTW:  We went with what our RE suggested.  He was considering EPP for this cycle, and after we chatted and I asked a bunch of questions, he decided LDR would be more appropriate. Maybe I got him thinking about it differently?  But that wasn't my intent- this guy obviously knows more about it than I do and I would have gone with whatever he recommended.

jlcrane78

Status Update: What is going on in your cycle or where are you in your process? I am cycling.  ET is Monday.

 

QOTW: Does your doctor dictate your protocol and you go along with it, or do you bring ideas to him/her and you work on protocols together? My doctor has full control, and even though he diagnosed me as DOR we have done antagonist protocol every time.  He didn't want to mix it up. 

 

Paris05

Hi ladies. I have been on a long hiatus. In a nutshell I had a cancelled IVF cycle in November due to poor repsonse.This was after multipe failed IUIs. I was on the antagonist protocol for the cancelled IVF and on max dosage of Follistim and Menopur. I produced 2 follicles. I tried one last IUI and my RE basically said you are done. I won't approve another IVF. DE is your only hope. I switched doctors and met with my new RE March 7th. I had all the tests done again along with a saline ultrasound that my previous doctor had not suggested. ( cane back fine)  My husband was sent to a urologist for testing and his tests came back fine for the most part. He never had a large count but enough for IVF. All my levels basically are worse than they were in Feb 2011. AMH went from .455 to .21. FSH went from 7.2 to 10.9. Estrogen was up from 66.1 to 80. I was just waiting for the DE talk when he said he would allow me to try IVF one last time with my own eggs. I was shocked. He did say I have a 5% chance. After 15 months of IF I am willing to do this one last time if he is willing. Miracles happen and I am in desperate need of a miracle.

I am on an estrogen priming protocol with microdose flare. Anyone else do this? I start estrogen patches and Ganirelix this week. Hopefully start Lupron/Follistim/Menopur week sometime around June 15th.

It's good to be back. I needed some time away from everything IF for a few months. It's been a long road and I know you all can relate.

Good luck to everyone!