Any update on daphne814?

Lorange-8

Last I saw was ryan was having the pda ligation. Maybe I missed something?

ashk7

She actually put in her last post a blog that she uses, She posts there almost every night, I have been following her and Ryan via that! I am not sure on the website, I am posting from my phone but maybe look back on her last bump post it should be there! And if you see this daphne814, I am totally inspired by you and Ryan, he is such a little fighter and you are so strong, I envy your strength and how proactive you are for your little man! He and his big sister are lucky to have you!

daphne814

Hi!  HEmery let me know you guys were asking about Ryan (thanks, btw)!  I'm sorry I haven't been updating here.  With things being so busy, I can usually only find time to check facebook and post on my carepage.  Here's the link, in case you are interested:  https://www.carepages.com/carepages/watchingryangrow

Ryan is doing a lot better after the PDA ligation.  They were able to move him out of the isolation room and into one of the shared pods.  He came off the oscillating vent with the breathing tube for a few days, but then he had to be reintubated because he had a setback.  They still aren't 100% sure what caused him to sort of crash because they had the perfect storm of changes that day.  He had just started getting HMF in his breast milk 2 days prior, they weaned him off his dopamine (which they've tried before and he doesn't do well), and he had his first eye exam (which apparently can cause some babies to have some bad spells for the following 24 hours).  He's is coming back up from that a little bit each day, and he's back off the breathing tube, which is great.  Now we're just carefully trying to figure out which even was the culprit (if not all), so we don't end up back there.  He is definitely a fighter, and he gets through these little bumps like a champ!  Thanks so much for thinking of him