M went to the neurosurgeon (NS) on Friday and he said that given her symptom's and P's issues and our general all around bad luck she needs an MRI. Her butt crack is very crooked and odd looked (never really paid attention to it before) and he said any mid-line anomaly coupled with symptoms/family history earns an MRI to be sure. So that will hopefully be approved by our new insurance.
Our new insurance has a $2000 out of pocket max vs $8000 SUPER HAPPY! P's medicaid should pick up a $1000 and we will pay the other which means our KKI inpatient (if we get in) will be hopefully free. We have an order of caths to be put in which are $990 before insurance and her surgery is friday so i'm fairly certain with the $500 deductible that is more than $500 out of pocket.
We went out of town this weekend to see H's parents and visited friends, there were 6 kids total (4 other girls 2 boys). P played by herself it was so sad..she was kind of the odd age range. I think 3 girls were 4, 1 was 2 (but not very verbal and alot smaller than P, and one boy was 9 months and 15 months). I got super emotional when we left thinking the worse thing any of their parents have dealt with was an ear infection. Totally went down the why me path and bawled like a baby.
Which brings me too, I have my first appt with a therapist on 5-21 and P's is 5-22 we found someone who is willing to see her and while H is against it and says it's my job to be her therapist he is off that day and is willing to come to see what they have to offer us and if we feel it's a good fit.
My thyroid has gone wack as well and they thought it was graves disease because it's hyper but my antibodies came back negative so I have to wait for an uptake scan. I was supposed to have NO appointments last week, I ended having to throw in a thyroid ultrasound for me, dr appt, endo appt, bloodwork for me, bloodwork for M and neurosurgeon appt!
Like always, I appreciate all of the support you guys give and I truly feel this is the only place where people "get it." You ladies are amazing even when the answers aren't what I want to hear, they are what I NEED to hear.
ETA: Convo with P last week..
P: Is you potty trained mommy?
Me: yes baby
P: Why can't I be potty trained?
Me: lack of words, FML
P: Morgan can be potty trained?
Me: Yes baby.
P: It will be OK.