One of my high school classmates has a daughter that was just diagnosed with SMA which is an incurable disease caused be a genetic defect that attacks the muscles which causes inefficiency of the major bodily organs - especially of the respiratory system - and eventually leads to death. She has already lost the ability to move her legs and eventually will lose the ability to move her arms and head, most babies, who are diagnosed with SMA type 1 have a life expectancy of less than two years of age. Her parents started a blog wherein they are trying to complete a bucket list for her with one of the things being to spread the word about SMA, currently there is no cure and no one working on one. So they want it to go viral to raise awareness about the disease. The link to visit her site is below, please share with as many people as you. https://averycan.blogspot.com/
Re: So sad :(
You said it best....