Here's the thing, there are reasons they do the CVS test, some parents for whatever their personal reasons don't want to have a baby with Down's Syndrome. It doesn't bother me that they would have aborted, that is their personal decision and their legal right but I think suing the medical facility is ridiculous... it's not a 100% accurate test which is why I decided against even doing it.
I'm going to be completely honest here and hope that we can all respect each other..
I was diagnosed with MTHFR in January, two days later I found out I had been pregnant since December but it had been too early when I started the testing. I was extremely upset and worried that because of my inability to absorb folic acid that our child would develop NTD. I expressed that concern to my doctor and nurse and they were great to support us and help us to feel comfortable. My husband is a patient and amazing man that has dealt with family members that have developmental issues and is terrific at dealing with tough situations.
Myself on the other hand, I have little patience and can especially be hard on things that are not 'perfect' (and no I don't expect my child to be 'perfect' but I know my own tolerance) I would hate to think I could love a child less because of a birth defect. I also find it difficult to bring a child into a world when they will have some many difficulties.
I wish I was as good as my husband and so many other families that LOVE their families just as they are. I am touched by their ability and their selflessness. I don't think I would sue the medical center, but understand wanting to make that decision theirselves.
"I will show you the kind of big sister I will be..."
It's a tragedy that such a lovely child should be given to parents like that. If they would have aborted her, why not put her up for adoption so she could receive the love and care that she needed? I just don't know about people like that.
I am glad that we were not in the position where we would have had to make a decision about pregnancy termination; we probably would have CONSIDERED termination if it was determined that this child would have birth defects.
I can understand why the couple in the article is suing; they are going to have multiple expenses and costs that they would not have had if they had terminated the pregnancy.
The article clearly states that they love their child, and I am sure that they do; so I am unsure why putting her up for adoption, as some posters have suggested, would be necessary or even useful. In fact, I would imagine that it would be VERY difficult to place a child with DS or any other birth defect in a home.
First of all, like any thing else in life, the CVS is not 100% garunteed. Mistakes happen.
Also, in my own humble opionion, I think it's horrible sue for "wrongful birth." To me that is like saying that people with disabilities or abnormalities should not be born and that their lives aren't as valuable because they are preceived to be a "burden."
I'm going to be completely honest here and hope that we can all respect each other..
I was diagnosed with MTHFR in January, two days later I found out I had been pregnant since December but it had been too early when I started the testing. I was extremely upset and worried that because of my inability to absorb folic acid that our child would develop NTD. I expressed that concern to my doctor and nurse and they were great to support us and help us to feel comfortable. My husband is a patient and amazing man that has dealt with family members that have developmental issues and is terrific at dealing with tough situations.
Myself on the other hand, I have little patience and can especially be hard on things that are not 'perfect' (and no I don't expect my child to be 'perfect' but I know my own tolerance) I would hate to think I could love a child less because of a birth defect. I also find it difficult to bring a child into a world when they will have some many difficulties.
I wish I was as good as my husband and so many other families that LOVE their families just as they are. I am touched by their ability and their selflessness. I don't think I would sue the medical center, but understand wanting to make that decision theirselves.
Thanks for being honest. I have honestly wondered how I would react if I had a child with Down's Syndrome. Your concern about being able to love a child with special challenges was one of mine for a long time, and a reason that I choose not to do CVS/NT scans. I think our ability to love our children grows to the level of need, and that's hard to see while we're pregnant.
Practically speaking, ALL children are going to struggle. Some children with Down Syndrome will struggle less than others without it. Predicting how difficult life is going to be for someone before that person is born is completely impossible. Predicting the impact that someone is going to have on the world, before they are born is impossible. My personal opinion is that trying to do this type of "pros cons analysis" is impossible and foolish.
The potential for our fears to become reality is ALWAYS there. Our children could be brain damaged after birth and wind up needing life long care. They could be injured in such a way that their "quality of life" is significantly diminished. I think (and hope) that in those situation's our love for our children will do what needs to be done. I also think (and hope) that our children's lives would have no less value at that point than they would before. Each person contributes their own unique gift despite their own unique challenges.
My heart for this little girl breaks because it seems that her parents don't realize the treasure she is (and always has been.) I hope for that family's sake that they do at some point.
Thanks for being honest. I have honestly wondered how I would react if I had a child with Down's Syndrome. Your concern about being able to love a child with special challenges was one of mine for a long time, and a reason that I choose not to do CVS/NT scans. I think our ability to love our children grows to the level of need, and that's hard to see while we're pregnant.
Practically speaking, ALL children are going to struggle. Some children with Down Syndrome will struggle less than others without it. Predicting how difficult life is going to be for someone before that person is born is completely impossible. Predicting the impact that someone is going to have on the world, before they are born is impossible. My personal opinion is that trying to do this type of "pros cons analysis" is impossible and foolish.
The potential for our fears to become reality is ALWAYS there. Our children could be brain damaged after birth and wind up needing life long care. They could be injured in such a way that their "quality of life" is significantly diminished. I think (and hope) that in those situation's our love for our children will do what needs to be done. I also think (and hope) that our children's lives would have no less value at that point than they would before. Each person contributes their own unique gift despite their own unique challenges.
My heart for this little girl breaks because it seems that her parents don't realize the treasure she is (and always has been.) I hope for that family's sake that they do at some point.
Just to clear something up. The NT and quad scans are not 100% accurate. But CVS and amnio are genetic tests are are pretty close to being 100% accurate, if done properly. I am not going to comment on the abortion topic, but just wanted to put that out there.
TTC since 2006
Me: 36 DH: 40
DH dx azoospermia My dx: RA & AMA
d-IUI's--6/10, 7/13 & 8/4: all BFN
d-IVF#1--Lupron/Menopur/Bravelle/Novarel; mini-dose protocol
ER: 10/25--18R; 14F; ET: 10/28--3dt of 2 embies; 3 blasts frozen
+ HPT 11/4; Beta #1--14dp3dt: 441; Beta #2--21dp3dt: 9298
One beautiful jelly bean growing! Saw h/b on 11/28 and 12/5!!!
P/SAIF welcome
<a href="http://s22.photobucket.com/albums/b315/mandalinn/?action=view
This is a lot like Jodi Picoult's book, Handle with Care. I don't know if anyone else has read this, or any of her other books, but it gives you a new perspective. Maybe she is doing it to make a better life for her daughter? I'm not saying that makes everything ok but no one really knows the whole situation either. https://www.jodipicoult.com/handle-with-care.html
Ooo, I have read that book! Completely forgot about it. I hope you're right; maybe the parents are really trying to make a better life for their little girl.
It's their genetics that made their daughter. Just because the medical field has the ability to catch most cases, doesn't make them responsible. Seems like someone who's trying to make someone else pay for their responsibility.
I am glad that we were not in the position where we would have had to make a decision about pregnancy termination; we probably would have CONSIDERED termination if it was determined that this child would have birth defects.
I can understand why the couple in the article is suing; they are going to have multiple expenses and costs that they would not have had if they had terminated the pregnancy.
The article clearly states that they love their child, and I am sure that they do; so I am unsure why putting her up for adoption, as some posters have suggested, would be necessary or even useful. In fact, I would imagine that it would be VERY difficult to place a child with DS or any other birth defect in a home.
As someone with a disability, I would rather have been given up for an adoption than find out years later that my disability would have been reason enough for my parents to end my life. Is this little girl's life not worth the extra effort these parents have had to go to? That is what I got out of the article. Anyone who would abort a child because they could possibly have "difficulties" should be ashamed of themselves. The disabled have as much a right to live as any healthy child.
Re: what do you guys think of this situation?
Chase Matthew born at 35 weeks on July 31st
I'm going to be completely honest here and hope that we can all respect each other..
I was diagnosed with MTHFR in January, two days later I found out I had been pregnant since December but it had been too early when I started the testing. I was extremely upset and worried that because of my inability to absorb folic acid that our child would develop NTD. I expressed that concern to my doctor and nurse and they were great to support us and help us to feel comfortable. My husband is a patient and amazing man that has dealt with family members that have developmental issues and is terrific at dealing with tough situations.
Myself on the other hand, I have little patience and can especially be hard on things that are not 'perfect' (and no I don't expect my child to be 'perfect' but I know my own tolerance) I would hate to think I could love a child less because of a birth defect. I also find it difficult to bring a child into a world when they will have some many difficulties.
I wish I was as good as my husband and so many other families that LOVE their families just as they are. I am touched by their ability and their selflessness. I don't think I would sue the medical center, but understand wanting to make that decision theirselves.
"I will show you the kind of big sister I will be..."
I am glad that we were not in the position where we would have had to make a decision about pregnancy termination; we probably would have CONSIDERED termination if it was determined that this child would have birth defects.
I can understand why the couple in the article is suing; they are going to have multiple expenses and costs that they would not have had if they had terminated the pregnancy.
The article clearly states that they love their child, and I am sure that they do; so I am unsure why putting her up for adoption, as some posters have suggested, would be necessary or even useful. In fact, I would imagine that it would be VERY difficult to place a child with DS or any other birth defect in a home.
First of all, like any thing else in life, the CVS is not 100% garunteed. Mistakes happen.
Also, in my own humble opionion, I think it's horrible sue for "wrongful birth." To me that is like saying that people with disabilities or abnormalities should not be born and that their lives aren't as valuable because they are preceived to be a "burden."
No words.
Thanks for being honest.
I have honestly wondered how I would react if I had a child with Down's Syndrome. Your concern about being able to love a child with special challenges was one of mine for a long time, and a reason that I choose not to do CVS/NT scans. I think our ability to love our children grows to the level of need, and that's hard to see while we're pregnant.
Practically speaking, ALL children are going to struggle. Some children with Down Syndrome will struggle less than others without it. Predicting how difficult life is going to be for someone before that person is born is completely impossible. Predicting the impact that someone is going to have on the world, before they are born is impossible. My personal opinion is that trying to do this type of "pros cons analysis" is impossible and foolish.
The potential for our fears to become reality is ALWAYS there. Our children could be brain damaged after birth and wind up needing life long care. They could be injured in such a way that their "quality of life" is significantly diminished. I think (and hope) that in those situation's our love for our children will do what needs to be done. I also think (and hope) that our children's lives would have no less value at that point than they would before. Each person contributes their own unique gift despite their own unique challenges.
My heart for this little girl breaks because it seems that her parents don't realize the treasure she is (and always has been.) I hope for that family's sake that they do at some point.
This exactly. You said it better than me
Me: 36 DH: 40
DH dx azoospermia My dx: RA & AMA
d-IUI's--6/10, 7/13 & 8/4: all BFN
d-IVF#1--Lupron/Menopur/Bravelle/Novarel; mini-dose protocol
ER: 10/25--18R; 14F; ET: 10/28--3dt of 2 embies; 3 blasts frozen
+ HPT 11/4; Beta #1--14dp3dt: 441; Beta #2--21dp3dt: 9298
One beautiful jelly bean growing! Saw h/b on 11/28 and 12/5!!!
P/SAIF welcome
<a href="http://s22.photobucket.com/albums/b315/mandalinn/?action=view
Ooo, I have read that book! Completely forgot about it. I hope you're right; maybe the parents are really trying to make a better life for their little girl.
As someone with a disability, I would rather have been given up for an adoption than find out years later that my disability would have been reason enough for my parents to end my life. Is this little girl's life not worth the extra effort these parents have had to go to? That is what I got out of the article. Anyone who would abort a child because they could possibly have "difficulties" should be ashamed of themselves. The disabled have as much a right to live as any healthy child.