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Beta confusion...C/P cry wolf?

ermo515ermo515
in Infertility

On Tuesday, my beta was 10. I was told I was having a chemical pregnancy and would need to come back on Thursday for beta 2 so they could confirm that my levels were down below 5 and close to 0. I spent the past 2 day preparing myself for the chemical pregnancy and was ready to move on...

 Until the nurse called...Today my beta was 16. It went up. It didnt double, but it went up... I was to continue the meds til MONDAY and go back for another beta...

 Then the RE called and told me that although it went up, it didnt double and was sluggish so I should stop the meds and consider it a chemical pregnancy...

 I asked if I should go back on Monday for a beta and also why the nurse had said to continue the meds. Why did it go up? Wasnt it supposed to go down?

 A long story short, he said if I could emotionally handle it, I should wait til Monday and get a 3rd beta. He didnt want to give me false hope...that only about 2% of stories have happy endings...but that he would recommend staying on meds if I was emotionally ok with that.

 My husband and I talked about it and were not ok with ending a pregnancy without knowing what would or could happen...so we will continue the meds and this wild roller coaster until Monday...If I miscarry this weekend, or my levels are really low on Monday, then at least I wont feel guilty or always wonder what would have happened and can move forward. If by some miracle of God we are that 2% then we continue on our journey....

 Talk about confusing...

Has this ever happened to anyone? 

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Re: Beta confusion...C/P cry wolf?

  • Roxie5739Roxie5739 member
    I have not had the same experience but Fx that this is just a slow starter

    Multiple ectopics, 2 failed IVF's
    IVF #1: Did not get to ET, embies all failed PGD (major chromosomal defects)
    IVF #2: We have 2 chromosomally perfect embies as a result of PGD (Boy/Girl) 1 failed the thaw (Girl) Transferred 1, yet ended as a c/p
    Thought it was the end of our TTC Journey 6/20/2012
    SHOCK BFP 9/28/2012: IT'S A BOY! and everything is normal !!!!!!

    Little A born 38w 2d on 05/23/13 and is a true miracle for this IF Vet!
     

    image              

     


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  • wille2bwille2b member
    no experience but wanted to send ((HUGS)) and hoping this is just a slow start
    Lilypie Fifth Birthday tickers



    TTC since 2005
    missed miscarriage nov 2006- 4 failed clomid cycles-
    3 failed femara iui cycles-
    moving on to IVF oct 2011
    ER nov. 7th
    tansfered 2 blasts on 11/10
    lots of +hpt!!
    beta #1 on 11/21= 50.4
    beta #2 on11/23= 90.8
    another miscarriage 12/23
    moving on to Round 2 of IVF with an auto immune dx
    ER 4/23-retrieved 12 eggs
    ET 4/28 3 transfered
    Beta #1- 356
    Beta #2- 870

    Lilypie Premature Baby tickers
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  • rockpaperloverockpaperlove member
    My fingers are crossed that the odds are in your favor.  Hang in there.  I know this rollercoaster can be emotionally taxing.  Many hugs.

    Countless BFN(s)
    Moving to IVF

    IVF1 (ICSI): Long Lupron
    6R. 3F. 3DT. 8Cell 1Grade 2Embies. 1Frostie.
    Beta 1/22: 14 Beta 1/24: 24 Beta 1/26: 28
    Round One Result: Chemical Pregnancy

    Pressing Forward

    IVF2 (ICSI/AH/ACU): Microdose Lupron Flare
    13R. 11F. 5DT. 2TFR'ed. 1Frostie.
    Round Two Result 4/30: Harsh BFN

    FET. 2TFR'ed.
    Round Three Result 6/25: BFN
    Where do we go from here?

    Moving forward with CCRM in 2013
    ODWU revealed blocked tube(s). Lap 2/15.
    Bilateral Tubal Ligation. Stage IV Endo.
    Finally some (tough) answers.


    IVF3 (ICSI/CCS): Antagonist with EPP
    13R. We have 3 CCS Normal Embryos!


    Lupron Depot: May 2013 to August 2013
    Long awaited FET on 9/3. 2TFR'ed.
    BFP on FRER 5dp5dt: IN SHOCK!
    Beta1 9/10: 152.7! Beta2 9/12: 378! Beta3 9/14: 1224! 

    1st ultrasound 10/1: TWO beautiful heartbeats!  Overjoyed!

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  • XV11StarXV11Star member

    Had a similar situation but wasn't one of the lucky 2%.  (you can see my sig for details)

     I am so sorry you are dealing with this ~ seems the waiting game with IF just goes on and on, doesn't it?  Prayers that you are one of the lucky ones :-)

    <a href="http://s164.photobucket.com/albums/u17/SossityG/?action=view
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  • luvbostonluvboston member
    So sorry you have to go through this.This has happened to me, unfortunately you are having a c/p. If you stay on your meds it will just take longer for you to get af after. My level went as follows 16,14,24,29,14,10,5,0.  GL
    6 m/c
    Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
    Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
    1 Clomid/Ovidrel BFN May 2011
    Natural cycle Aug 2011 BFP M/C 4 Weeks
    1 IUI Sept 2011 BFP M/c 7 weeks
    Provera Dec 2011 BFP M/C 3 Weeks
    DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
    IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
    IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
    Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
    Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone) 
    Went to Beer Center- high tnf, low lad, implantation failure
    Nov/Dec 2012 LIT Treatment
    Dec 12 Humira
    Jan 2013 BFP
    Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
    Miracle Born August 2013 Premature

    Yours doesn't have to be a sad story


    image
    image


    Lilypie - (ugiy)


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  • GregermisGregermis member
    Fx that you are in the lucky 2%!  I would do exactly what you are doing!!
    TTC #1 Since 4/2010, Cycle 30
    Positive for HLA-B27, I'm a mutant :p
    Testing - Me ok, gluten issue? DH - borderline count, low motility
    4/28/11 IUI#1 = BFP!(5/25), EDD 2/2/12 - m/c 5w3d
    7/3, 7/31, 9/25 - IUI#2-4=BFN
    IVF#1 - 1 blast = BFP!! (12/30), EDD 9/9/12, confirmed c/p 4w2d
    FET#1 3/2/12 - 2 blasts =BFP!! EDD 11/18/12, us#1 = twins! Confirmed m/c 5w6d
    4/20-surprise BFP and another c/p 4w2d
    FET#2 7/16/12 - 2 blasts = BFN
    FET#3 8/20/12 - 1 blast - BFP!! Beta #1-2=177, 354
    1st u/s 5w6d, one beautiful little HB :), 2nd u/s 146bpm
    baby girl born 5/10/13

    TTC#2 since 12/17/2014, Cycle 8
    Repeat Testing...FSH=12, AMH=3.8, AFC=28. 
    IUI#5 5/10/15- c/p?
    IVF#2 8/19/15 - cancelled due to cysts
    IVF#2 take two 10/2015 - 5 blasts frozen
    FET#4 12/11/2015 - BFN - 4 blasts remaining
    FET#5 2/18/16 - BFP!!!  Beta1-3, 126, 250, 745!!

    Image and video hosting by TinyPicLilypie Angel and Memorial tickers

    Tons of love and ((hugs)) to my IF sister NMscubagirl


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  • zookbridezookbride member

    Never happened to me, but hoping you are in the 2% favor and this works out. I agree that I also wouldn't stop meds until I was absolutely sure it wasn't a viable pregnancy. After everything we've put ourselves through, I don't want any "what ifs."

     

     

    New to 3T? Check out this website first:
    TroubleTTC

    image
    Every new beginning comes from some other beginning's end --Semisonic

    **TTC since 04/09, C/P 02/02/10; 4 weeks, 3 days**
    **Dx: Anovulation, Hypothryroidism, Mild Endo, Pituitary Adenoma (prolactin issues), PAI-1, MFI **

    **7/10: Clomid + TI= BFN**
    **3/2/11: 1st RE appointment**
    **DH= Morph= 2%, Motility= 30%**
    **HSG= All clear!!**
    **3/11: Femara + Pregnyl + TI= BFN**
    **5/17/11: Laparoscopy / hysteroscopy = mild endo**
    **7/11: Novarel + IUI #1= BFN (7mil, 75% motility, 2% morph)**
    **8/11: Femara + Novarel + IUI #2= BFN (11mil, 35% motility, 1% morph)**
    **11/11: Femara + Novarel + IUI #3= BFN (9mil, 2% morph)**
    **Jan 2012: Follistim (75ius) + IUI #4= CANCELLED due to cyst -put on bcp**
    **Feb 2012: Follistim (75ius) + Novarel + IUI #4.2= BFFN (2.5mil, 13% motility, 1% morph)**
    **Mar 2012: Follistim (100ius) + IUI #5= CANCELLED due to 35mm & 14mm cysts**
    **On med break indefinitely...IF Sucks!**

    **Jan 2013: Follistim (100ius) + IUI #5.2= CANCELLED due to high prolactin level, MRI scheduled, pituitary adenoma found, put on Dostinex**
    **Mar 2013: Follistim (100ius) + IUI #5.3= CANCELLED due to uterine polyp, surgery scheduled for polypectomy and D&C**
    **03/22/13: Hysteroscopy, polypectomy and D&C**
    **May 2013: Finally got to start a cycle!!! Follistim (100ius) + IUI #5.4 = BFFN (6mil, 74% motility, 2% morph)** 

    **Jun 2013: Decide to start IVF**
    IVF w/ICSI #1 (Long Lupron Protocol)
    06/26/13: Start BCPs
    07/02/13: HSG #2= all clear
    07/15/13: Start Lupron 10 ius
    07/25/13: Suppression check
    07/28/13: Start stims (225IUs Follistim + 75IUs Menopur) drop to 5 IUs Lupron
    08/01/13: Monitoring: 12 follicles all about 10mm, E2- 313
    08/04/13: Monitoring: 18 follicles (15mm, 13mm, a few 11mm, rest 10mm or below) E2- 1,505
    Start Augmentin- antibiotic prep
    08/06/13: Monitoring: 13 follicles (18mm, 17mm, rest b/w 15mm-16mm!) Ready to trigger!! E2- 2,248
    08/08/13: ER-- 14R, 13M, 10F 
    08/11/13: One fertilized late, we now have 11 embryos!
    08/13/13: 5dt-- 2 blasts (Sheldon and Penny) 3AA and 3BB, none to freeze
    8/23/13: BFFN... Sheldon and Penny didn't stick**

    **8/29/13: Follow up... bad fragmentation issues. Changing protocol to Antagonist for round #2 coming soon! Also started on 81mg Aspirin after getting blood panel done and found out I have PAI-1**

    **Oct 2013: After large cysts, finally starting IVF #2**
    IVF w/ICSI #2 (Antagonist Protocol)
    BCPs started back in Sept due to cysts
    10/27/13: Start stims (225 IUs Gonal-F + 75 IUs Menopur)
    11/03/13 - 11/05/13: Add Ganirelix to the mix
    11/06/13: 3 follicles at 18mm-- Ready to trigger!
    11/08/13: ER-- 17R, 13M, 8F
    11/13/13: 5dt-- 2 blasts (Luke and Leia) 5AB and 4AB, 1 frostie
    11/20/13- 11/23/13: light positives on FRERs and Wondofos
    11/22/13: BFN per RE office (under HCG of 10)
    11/27/13: CP ::sigh::

    *12/03/13: Follow up...great response and quality this time, was given 50% chance of it working, just didn't stick. Great plan for 2014! 

    **Jan 2014: Last IVF of our SRP**
    IVF w/ICSI, freeze all, then FET
    12/27/13: Start BCPs
    01/19/14: Stims (375 IUs Gonal-F + 75 IUs Menopur)

    Congratulations Cutebride!! --TWINS!! Congratulations, Luvie, on your sweet boy! Congrats, Jess! So happy for you ladies! <3<3  
    ~~Also best of luck to Kati, illinigal, and youngin!~~

    *S/PAIFW*

    image
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  • maby22maby22 member
    I don't have any advise for you but I I wanted you to know that I am praying for you.
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  • LaLe09LaLe09 member
    I've been through it with IVF #1. My betas went from 33 to 60 to 99 to 199 and were somewhere in the 600s before I had to use methotrexate. I had to stay on meds the entire time just in case, but it was so, so hard emotionally. I'm really really sorry you are going through this. Beta hell is just awful. :(

    DH: Severe MFI/Azoo Me: Compound heterozygous MTHFR
    IVF #1= m/c- methotrexate @6w2d
    FET #1= BFN
    IVF #2= m/c- D&C @8w5d
    IVF #3= Beta #1 9dp5dt= 252, Beta #2 11dp5dt= 417, Beta #3 17dp5dt= 4,952
    US #2 @ 7w2d= twins, baby B measuring behind
    US #3 @ 8w5d= Baby A doing well, no HR in baby B
    *S/PAIF always welcome* BabyFetus Ticker
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  • ellenchris0506ellenchris0506

    Yes!  This happened to me (see betas in siggy).

    It was a long week and a half of emotions.  I first had a 10, and two days later it was 19.  So, it practically doubled.  I was so lost as to what was going on...wondering if I was or wasn't really pregnant.  They made me wait like 5 days for a 3rd beta and it went back to 17.  I was horribly devastated.  

    During this time, I researched the heck out of betas and did see people on the PAIF board with low betas that ended up being successful.  

    Good luck to you.  I know exactly what you are going through!

    Ellen & Chris 5/6/06
    -------------------------
    TTC Since 10/2007 with no luck and a 'go with the flow' attitude
    1/1010 FINALLY decided to have testing done, dx MFI
    7/2010 - DH starts Clomid to increase testosterone and hopefully sperm count
    10/2010 - Still low (but improved) sperm count.
    11/30/10 - IUI #1 and only = BFN
    February 2011 - IVF #1 w/ ICSI =
    Chemical PG (Beta 1: 10, Beta 2: 19, Beta 3: 17) :-(
    April 2011 - IVF #2 w/ ICSI = BFN :-(
    September 2011 - IVF #3 w/ ICSI = BFFN
    November 2011 - AMH level tested - .83 (normal for age range)
    February 2012 - IVF #4 w/ ICSI = (best response ever yet still) BFFN
    April 2012 - DNA testing - NORMAL, RE suggests cycling again with own eggs or using DE
    On Break indefinitely...not sure we can afford the emotional and financial roller coaster anymore.
    *PAIFW/SAIFW*
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  • ermo515ermo515

    Thanks everyone. We know this is a chemical pregnancy and fully expect it to go down over the weekend but we couldnt end it before we knew what it would do...Whats meant to be will be. We wont drag it on past Monday if things dont drastically improve but I trust the doctors recommendation to do a 3rd beta. 

      

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  • NiddyDiddyNiddyDiddy
    ((HUGS)) I'd have made the same choice you and your H did!
    TTC since Sept 08
    DX: Unexplained; DH: 4% morph / Me: no issues found
    4 failed IUIs -a potpourri of clomid, bravelle, menopur
    IVF #1 March 2011 - BFP / Missed m/c 8w1d
    IVF #2 January 2012 - BFN
    FET #1 - BFP!
    Expecting a Christmas Miracle!
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  • lady_chance_99lady_chance_99
    I'm so sorry you have to go through this and will be praying tht this is the one time you beat the odds. i went through beta hell as well without any luck. i started at 20 then two days later was at 30... then two days later i was at 68 and then beta 4 was 64. thats when the re told me to stop the prometrium... hang in there because you just never know when your lucky numbers come up. gl
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  • AmCheriAmCheri member
    I'm so sorry you're going through this.  I've been there and it was so much worse than the stress of the cycle itself. I think your decision and attitude are good and reasonable. We continued with PIO until an u/s confirmed that I would miscarry. My betas were low but always doubled and actually most frequently tripled. We had hope, but it just couldn't stick. Sending you all the hugs and strength I can muster. 
    Baby girl Lila born 2013.
    Baby boy Henry born 2015.
    Expecting our capstone baby (boy) early March 2018.
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  • joules12joules12 member

    (((Ermo)))!!!  I'm so sorry that you are dealing with this!!!  You've been in my thoughts over the past days.  I just got the phone call from my IVF nurse, and I've now joined you in beta hell!  My level has risen from from 7 to 12 -- my RE wants me to stay on PIO and I have to get another beta on Sunday.

    I'm sending so many thoughts and prayers out that we can both escape from this and move on very, very soon!!!

    TTC since honeymoon in 9/2010
    Me: 39, Dx DOR (FSH = 10.5, AMH = 0.43, best AFC = 10), AMA
    MH: 37, Dx Obstructive Azoospermia, multiple successful sperm retrieval procedures

    1/2012: IVF/ICSI #1 Antagonist = cancelled d/t poor response to max stims
    2/2012: IVF/ICSI #2 MDLF (4R, 4M, 1F) = BFP, saw heartbeat, missed m/c 9w0d, D&E
    8/2012: IVF/ICSI #3 EPP/MDLF (7R, 2M, 1F) = BFN

    12/2012: (New RE) Operative hysteroscopy to remove scar tissue

    1/2013: IVF/ICSI #4 Low-dose stim/Antagonist (AFC=6); ER=1/26 (5R-couldn't access rt ovary, 5M, 4F), ET=1/29 (trans 3) = BFP!; 2/11 beta#1(13dp3dt)=2127, 2/13=3367; twin girls due 10/19/13

    PAIF/SAIF very welcome!

    <a href="http://www.thebump.com/?utm_source=ticker&utm_medium=HTML&utm_campaign=tickers" title="Pregnancy"><img src="http://global.thebump.com/tickers/tt16bf7d.aspx" alt=" BabyFruit Ticker" border="0"  /></a>
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  • beachbum1980beachbum1980

    yes, i have had this happen to me, 4 times unfortunately. the first time i wasn't tracking my betas, it was before i knew i had if issues. but the remaining 3 have been in the past year. i also kept going w. the meds for the same reasons as you. i wouldn't feel right either just stopping w/out giving the cycle it's best chance. i wanted to do everything in my power that i could. There is always hope & i hope you are in the 2%. it does happen. 

    thoughts & prayers to you!! 

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