Dev Pedi says no ASD...

Assembly_Reqd

Yet, I do not feel reassured somehow. There was no formal assessment it was just based on the office visit today.

Let me start by saying that I just want to know FOR SURE we are not missing something and therefore missing potential therapy. In essence, I want to stop worrying about an "if" and move on. My mommy gut says that he is not on spectrum but WTF do I know? What if my wishful thinking is blinding me to something. UGH.

He gets all of the therapies for the areas where he is delayed so I know he is covered.

I guess the dev pedi's comment "there is no way he'd get a PDD_NOS dx based on what I've seen today" just didn't seem like enough to me. Ugh. There is no real point to this I guess...Thanks for listening. :P

Jcrab

I hear what you are saying, the MD doesn't feel your DS fits the criteria but they sure could have explained it better. Obviously the more complicated a child's history I think they are less likely to diagnose ASD, instead will insist it is a developmental or cognitive delay for as long as possible. I know you are very thorough and a great advocate in fighting for your son. Sorry the MD didn't give you a better explanation or rationale to put your mind at ease.

Justinlove

Assembly_Reqd:

Let me start by saying that I just want to know FOR SURE we are not missing something and therefore missing potential therapy. In essence, I want to stop worrying about an "if" and move on.

Ahhh, the crystal ball dream.

I know you know this, but sometimes it helps to hear it again.  We will never know "for sure" that we aren't missing something.  Honestly, even if our kids were typically developing and didn't have their laundry list of things going on, we still wouldn't know "for sure." 

AR, you are doing everything you can for Nate.  It is obvious by your posts.  Trust for now that the dr. doesn't see ASD and hey, that is a GOOD thing!  He has enough going on--why beg for more alphabet soup?!  If red flags pop up in the future, revisit the subject, but for now try to cross that worry off your list

 

thefuturemrskudla

I know how you feel, since I tend to be the same way with Owen.

But, I really believe this is good news for you.  The dev pedi obviously sees hundreds of kiddos with ASD, even if s/he did no formal assessment on Nate (maybe it clearly wasn't necessary).

robynlesley

I understand... when the developmental pedi said no ASD for DS, I still wanted a reason for his developmental delays. I have come to realize that Aaron has delays for a variety of reasons but he does not have ASD and his sensory issues are mild so, hopefully, he'll outgrow them.

Nate has a lot going on, so I agree with previous posters that this is a good news. 

Assembly_Reqd

I agree it is great news!

We have reasons for the delays but there a just little quirks that are concerning to me for some stupid reason. In particular, stuff that is talked about in other ASD posts that I read here. For example, he uses me as a tool for pointing and signing all the time and the fact that I have not had to childproof beyond baby gates AT ALL. In  fact, there is a floor lamp plugged in right by his play area which he has never touched or even tried to fiddle with the plug. His explorations around his adult environment are basically nil. He sticks with his toys and happily plays on his own without much input from me. I think I need to just chalk these up to being so behind in gross and fine motor.

He has no sensory issues, no food issues no sleep issues, no transitioning issues and is appropriately social for his abilities. Believe me, I am thanking my lucky stars for such a "good" baby but part of me is wondering why he is not into more trouble.

For so long, my mind has had ASD as a possibility and I have been watching for it. It is hard to "let it go". Stupid, I know.