Late Term and Child Loss

new, intro

Hi there,
I have been a total lurker on this board for months now; I really just couldn?t bring myself to speak up.  I lost my first baby on August 29, 2011 after 6 short days.  I was admitted to the hospital at 33 weeks for fetal heart monitoring and was quickly diagnosed with HELLP Syndrome, even though the entire pregnancy up to my last appointment at 32 wks was uneventful (as far as that goes).  We knew our baby had a VSD and it was suspected that there was a chromosome abnormality (we were secretly crossing our fingers for Down?s Syndrome, how strange to say that).  Our son Robin was born just 4 hours after I was admitted via emergency C Section weighing 2lbs 13oz.  I was unable to see him for 24 hours because of the magnesium sulfate (he was in the NICU) and I honestly don?t remember much of that day.  We were told that the Geneticist suspected Trisomy 13, but we had to wait for the results.  We finally got the results on Monday August 29 and we decided, after the doctors said he may only live another week with the interventions, that it was time to let him go.  He was given pain medication and we held him in our arms for over 6 hours.  He finally took his last breath and his heart stopped beating several minutes later.
    I know we didn't do anything wrong, that was his fate from the first cell division, but I will always blame myself (I?m 36).  I never really wanted children until I was 33 and the urge hit like a ton of bricks.  We waited until we bought a house and got married, and then it took a little over a year.  Now, I fear that I will not be able to have a healthy baby.  
     I hate to meet all you like this, but since no one I know has gone through this, or at least hasn?t opened up to me, I feel like you are the only ones who know exactly how I feel.  I can?t look at his picture or think of him and not cry, I can?t do much of anything and not think of him, he is constantly on my mind. I don?t have many happy memories of being pregnant, from the moment I knew I was pregnant, I knew something was wrong.  I constantly worried; I always had the ?if we bring him home? mentality, not ?when?.  
     I wish I could just hold him for one more minute.

BFP#1: EDD 10/11/11 Our sweet boy Robin was born 7 weeks a little early on 8/23/11 due to HELLP syndrome, unfortunately he was diagnosed with Trisomy13 and left us on 8/29/11. BFP#2: EDD 10/13/13
thelossblog.blogspot.com

Re: new, intro

  • I am so so sorry for the loss of your precious Robin.  Nothing can compare to the loss of your child.  My heat goes out to you.

    I hope you find much needed support here, the ladies are wonderful.  Please feel free to share as you need.  Hugs to you and angel kisses to Robin.

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  • I'm so sorry for the loss of your sweet son Robin.  Welcome to the board, although I hate that you are joining us here.  I hope you will find comfort here with us.
    Mom to Eliott Alexander, born sleeping at 37 weeks on 8/13/10. Most of us only dream of angels - I held one in my arms.
    BFP #2 - EDD 2/26/12 M/C 6/28/11 @ 5w2d
    BFP #3 - EDD 4/7/12 M/C 8/2/11 @ 4w2d
    Too beautiful for this earth
    BFP #4 - EDD 12/09/12, Lucille arrived 11/26/12
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  • I am so sorry for your loss. I hate to welcome you here but the ladies here are awesome. I hope you find some comfort here. Big hugs.
    TTC since November 2009. DH diagnosed with sperm antibodies. IUI #1 = BFN IUI #2 = BFN On the road to IVF.... Egg Retrieval Jan 21, 2011 16 eggs retrieved Egg transfer Jan 26, 2011 Only 2 viable eggs transferred. 1 IVF, 1 ICSI IVF #1 = BFP :-) 10/3/11 No heart beat at 38 weeks: Our baby Jack became an angel 12/14/11 = natural BFP Rainbow baby Samantha Jacklyn born8/8/12. Lilypie Angel and Memorial tickers
  • Im sorry for your loss. I hate everytime I see an intro because it just shows that these nightmares keep happening. But I'm glad you came out of lurking and decided to post. :) Feel free to post about anything. The girls on this board are wonderful. Hugs to you.
    Lilypie Pregnancy tickers Lilypie Angel and Memorial tickers Daisypath Anniversary tickers Lilypie Angel and Memorial tickers Lilypie Angel and Memorial tickers
  • I too am sorry for your loss.  Thank you for sharing your story of little Robin.
    BFP #1 - Missed M/C, D&C 3.21.11

    BFP #2 - Sylvie V. Q. born and died on 10.28.11 at 21w. Lilypie Angel and Memorial tickers

    BFP #3 - Evie V. Q. Fetal demise @ 16w. DC 7.8.12
    Lilypie Angel and Memorial tickers

    BFP  #4 - Beatrix V. Q. Born 6.2.13 at 23w6d.
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    My blog My chart
  • welcome, and ((big hugs))

    Thank you for sharing your story, I'm so sorry for your loss.

  • Hi there and welcome to the board. I'm sorry you have to be here but I welcome you with open arms. The ladies are very supportive and are just a great group of women here. You're among friends here.  

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  • Hi there and welcome to the board. I am so very sorry for the loss of your son. It breaks my heart every time I see an intro here. 

     Our baby boy,Logan, was born still at 19w3d on 7/1/2011
    Our 2nd baby boy, Mason, was born still at 20w3d on 1/31/2012

     After a much needed sanity break... we are praying for our rainbows

    ((BFP 7/29/13))  ((EDD 4/12/14))  It's BOY/GIRL twins!!!

  • I'm so sorry for the loss of your sweet Robin. You will find great support here. Big hugs. 
    image
    IVF/ICSI #1 July/August 2011 BFP # 1 - B/G twins - preterm labor/cervical incompetency @ 23w3d FET # 1 March/April 2012 - BFN 5/1/12 FET # 2 July 2012 - BFN 7/24 FET # 3 BFP! EDD 5/15/13 Lilypie Angel and Memorial tickers Lilypie Angel and Memorial tickers Pregnancy Ticker
  • I'm so sorry for your loss. We get it and we're here for you.
    Lilypie Angel and Memorial tickersLilypie Third Birthday tickersLilypie First Birthday tickers
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  • I am so sorry you lost your sweet son Robin. Hugs to you!! We are all here for you!!
    DS- Brenden born 11/13/93 Missed miscarriage on March 6, 2007 @ 9 weeks D&C on March 8th 2007. Riley Annalise born 2/25/08 ( 3 weeks early weighing 8 lbs 12.8 oz.) Chemical pregnancy 3/2010. Sydney Adriana born sleeping on 9/30/11 weighing 10lbs 3 oz at 38wks 4 days. Trinity Alivia born via c section at 36 wks 4 days weighing 9 lbs. 5.7 oz. She is our amazing rainbow baby!!! Lilypie Angel and Memorial tickers Lilypie First Birthday tickers PGAL buddy drvst8
  • Thank you for sharing your story.  My Heart breaks for your loss..  Hope is what we all need right now. Hope that God will bless us with the strength to carry on and to make a difference in others lives. Hope to be blessed again if that is what we want and need.  Please know that all the women on this board feel your pain and sadness and wish we didn't have to hear these stories.  But knowing you are not alone and we are always here for each other is comforting.  I will keep you in my thoughts and prayers as I do all of the women who have suffered a loss so great as we have.. I often ask God, why didn't you let me keep him?  Its because they are not ours. All of our children are a gift.  You are a Mom don't forget that.  We all are!  Take care of your heart..  OOOOXXX

    Lilypie Angel and Memorial tickers
  • I am so sorry for the loss of your son Robin. I totally understand wanting to hold your baby for just one more minute. I'm sorry you have to be here but glad you have found us. ((hugs))
    imageimageimage

    Lilypie First Birthday tickers

    Mother to DD, born sleeping on 9/28/11, and DS, born 3/12/13, 5lbs 13oz, 19in
  • I'm so sorry for your loss.  I understand your fears entirely, I had pre-e with my son as well and now I'm pregnant again... I hope and pray every day I can get through this pregnancy without having to face that awful disease again.
    Lilypie Angel and Memorial tickers 

    CafeMom Tickers

    Married the love of my life 7/11/09 - Our first baby, Peyton Mark, was born sleeping 10/25/11 at 33 weeks - Our second baby, BFP 2/4/12, welcome to the world Raylan! Holy Moly, BPF 2/4/14, please be safe and sound little one!

    My Blog

  • I'm very sorry for the loss of your son Robin. I too wish I could hold my son for just one more minute (or a million). I hope you find some support here, I know I have. Thanks for sharing with us.
    Lilypie Fourth Birthday tickers Lilypie Angel and Memorial tickers Lilypie First Birthday tickers
  • I am so sorry for your loss.  big ((hugs))
    TTC since 07/2009
    Me: PCOS, Blood/Immune Issues DH: Low all 3
    Jun.- Sep. 2010 IUI#1-#3 = BFN
    Oct. 2010 = IVF #1 = B/G Twins (passed away Feb. 2011)
    May 2011 = Myomectomy and trans-abdominal cerclage (TAC)
    Sep. 2011 = Surprise BFP = C/P
    Feb. 2012 = sFET #1 = BFN
    Feb.2012 = Hail Mary IUI #4 = BFN
    April/May 2012 = FET #2 w/our last two embies = BFP (Please let this be it!)
    Beta #1 8dp5/6dt = 234 Beta #2 10dp5/6dt = 695 Beta #3 12dp5/6dt = 1796 Beta #4 17dp5/6dt = 17,888 U/S #1 May 17, 2012 = Twins
    Baby B's heart stop beating at 9 weeks 5 days
    Our little miracle baby is a boy. :)

    Baby Boy Owen and Baby Girl Avery were born too early on Feb. 13, 2011 due to a pedunculated fibroid, incompetent cervix and suspected placental abruption.
    Lilypie Angel and Memorial tickers

    "What the heart has once owned and had, it shall never lose." - Henry Ward Beecher
    SAIF/PAIF Welcome
    Lots of love and luck to my PAIF/3T/IF Veteran ladies, especially my dear friend Zookie. Congrats to Papps, Teach84 and Starbuck on their little ones.
  • I'm sorry for your loss and I'm sorry that you have to be here.  But you are welcome here.  There are some amazing women here and I hope you find the support and comfort you need.  *hugs*
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  • Thank you everyone.  It is comforting to get (hugs) in the virtual world too.  I already do feel like I am among friends.  I hope to get to know all you you better.
    BFP#1: EDD 10/11/11 Our sweet boy Robin was born 7 weeks a little early on 8/23/11 due to HELLP syndrome, unfortunately he was diagnosed with Trisomy13 and left us on 8/29/11. BFP#2: EDD 10/13/13
    thelossblog.blogspot.com
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