Max Update

KYbride06

Sorry I have been MIA ladies.  Max was doing great up until this morning.  When I called to check on him his nurse said that he was very fussy and breathing a little harder than yesterday.  But she said that she was finally able to get him back to sleep.  So I go in around 3:00 and they had to put him back on oxygen around 1:00.  What ticks me off about all of this is that NO ONE called me to let me know.  I went in to see him and he has the nasal cannula on again.  That was quite a shock.  My in-laws were there when it happened and they didn't even call!!!!  TICKED ME OFF!  Anyway, they finally decided to do another chest x-ray and his lungs look "wetter" than they did the other day.  The fellow decided to try Lasiks again even though I told her that we would rather not since it hasn't worked the last two times they tried it AND because it can cause major hearing problems.  Well who the hell am I?  She ignored my concerns and went ahead with the order.  So needless to say, I am extremely aggravated and balled my eyes out the whole way home.  Tim is over there now so I will see how he was doing after I left. 

Plus, his night nurse was putting him into the outfit he is suppose to wear on Halloween, put I was so upset that I couldn't say anything.  I thought I would cry if I did so I just kept my mouth shut.  ERRR!

 I hope everyone is having a better evening than I am (  I will talk to you all very soon.

RXjenna

I'm so sorry   Hang in there.  Max continues to be in our thoughts & prayers.

cat81305

I am sorry to hear that things aren't going well again.  I wish you were not going through this.  I would be upset also if my drs did not listen to me either.  Try to keep your head held high and keep us updated.  If you need ANYTHING, please let me know!  I would love to help you out some how.

KristenBtobe

I'm so sorry.  Vent to us anytime.

tinytot_924

Oh sweetie, I am so sorry.  You have every right to be upset.  Prayers are with you, Tim, and Max! 

policebride

I'm so sorry. Try to get a good night's sleep tonight and hopefully tomorrow will be better. I hope Tim is dealing with the issues right now.

By the way, I just sent an e-mail to the address on Max's blog, so if you see a weird e-mail address, it's from me.

Hang in there. We're praying for you guys!
 

adamsbabble

I'm so sorry.  I often don't have a response for your updates just b/c I can't even begin to imagine going through all of this and don't know what to say, but please know that you all remain in my prayers.  I hope tomorrow brings better news!!

AgathiP04

Thanks for taking the time to update us.  I can't even imagine how frustrated you must feel.  I can't believe they ignored your concerns.  I will continue to pray for Max and you daily. 

hav2run

I am so sorry you guys are having such a rough time.  They really should address your concerns or at least explain why they are going against your wishes when you express them.  Thanks for updating us.  My thoughts and prayers are still with Max every day.

Jscaggs

Hugs. ?I can't even begin to understand how frustrating and upsetting this must be for you. ?I will keep you all in my prayers!

Matilda&Leon

Oh wow I am so sorry to hear all of this.  I would definitely address my concern about the medicine.  Is there a charge nurse that you can talk to or a patient rep?  We had problems with one nurse and they took action immediately. 

When Evan had lots of fluid on him they didn't want to use the lasix either b/c of side effects such as losing all of there electrolytes as well. 

You are Max's voice so don't be afraid to cry and show your frustration I'm sure they all know how frustrated you are.  I'm so sorry. 

((HUGS))

Continued thoughts and prayers.

taylormillgirl

I'm so sorry! Being in the hospital with your child is so stressful alone, but when things don't go right, it just sucks that much more. DD had open-heart surgery (twice) and that was hard enough without complications. I can't even imagine the stress you're under with baby Max. :-(

teacherjess

I am so sorry you are still going through all of this and that your concerns are being pushed aside. I say that if you continue to feel aggravated about these things, don't hesitate to speak up. Especially about things like no one telling you about the nasal cannula, etc. Those are definitely things you should be made aware of.

Hang in there. You are being the kind of mother your son needs-- a loving advocate.

johnandkristin

I'm sorry you had a hard evening. I would be very upset as well. You're such a good mommy:) I hope today is a much better day all around.

l_kristina

i am so sorry to hear things are not going well.  please hang in there!  you and your family are in my thoughts and prayers. 

jgeiman

So sorry. Still praying for you all.

BTW - how can they do a medical procedure without parental consent? Isn't that some sort of assault, legally speaking? I'd be sooooooo pi$$ed.