Parents of hypotonia kids in VA/Md/DC

haleybeth81

We just had our first appt with the John Hopkins hypotonia clinic and they were awesome.  They are doing an echo to check the girls hearts (something that I had read about needing to be done but no MD had previously requested) and are willing to do genetic testing to find out what's going on.  Also it's in a peds only wing so it's set up just for kids and the staff was all wonderful.  I had found the clinic by accident when I googled hypotonia so I wanted to get the info out to others who are in a similar situation so they can possibly get some answers as well.