I was googling Marley's syndrome- DOOR, last night and I came across a website dedicated to a little baby who died from the same syndrome 3 weeks after he was born.
The reason this is a miracle is that there are literally only 35 cases diagnosed worldwide of DOOR syndrome. It's the rarest of the rare.
Anyway, I sent an email to the mom and I really hope she emails me back! It's been such a lonely experience having a baby with such a rare syndrome.
Yay the internet!
No formatter is installed for the format bbhtml