~~**Molar Pregnancy Check-In**~~

cg0112358

This is a check-in designed for all the ladies who have had molar pregnancies (whether partial or complete). Since this type of pregnancy loss is so rare it is nice to be able to find others to connect with who are in a similar position and, as we all know, the TTA period we must go through is a true test in patience. This check-in is a nice to way to meet and receive support and friendship from other women who have experienced a molar pregnancy.

Check-ins will be on the first and third Monday of the month.

New members: Post an introduction and your current status (waiting for HCG to reach zero, monthly b/w, or cleared to TTC) and I will add you to the list!
Welcome !
**Since this is our first check-in, everyone is a new member.**

ETA: I talked about this several weeks ago but just hadn't gotten the chance to get it started. I will also be linking this to the MPL board.

cg0112358

I got my BFP on 8/20 and was ecstatic. We had just stopped TTA at the beginning of August and I was not expecting to get KU so soon. I went in for my first visit on 9/7 and had a u/s to date my pregnancy. We were shocked to find two yolk sacs and one baby (measuring 5w5d) whose heart had just started to beat within the past 24 hours. My OB confirmed that it was twins but he expected that we would lose one within the week.

I went back on 9/14 and, as he predicted, we had only one baby (measuring 6w4d). My OB wasn't in and I had this harpy of a lady who told me that I should schedule a D&C b/c this pregnancy wasn't likely viable since the baby's HB was hard to find and low (in the 90s). I turned her down and when my OB called me later I told him I would go in for an u/s in 2 weeks.

I went in on 9/27, the u/s tech was unable to find a HB and the baby still only measured 6w4d. I spoke to my OB and he said that I could wait it out, take cytotec, or have a D&C. I opted for and had the D&C on 9/30, which ended up being a blessing. 

I was diagnosed with a PMP on 10/12 after getting the pathology results in from my D&C. My OB said if I had not had a D&C we would probably not have discovered that it was a molar pregnancy and known to watch for any complications. I was advised that I would need weekly b/w until my HCG reached zero (less than 5) and then monthly b/w after that for 6 months before I would be cleared to TTC again. I did have a chest x-ray at this point which came back clean. My HCG levels were at a 5 at the end of October and I just had my 2nd monthly b/w done today. I should be getting the results from my nurse tomorrow.

btw, I just have to add...what are the chances that one sperm fertilizes one egg while two other sperm fertilize another egg at the exact same time? WTH? 

HCG levels
Weekly tests: 11/12 = 112, 10/19 = 32, 10/27 = 5 (negative),
Now on to monthly tests: 11/22 <1, 12/19 = ?

ETA: did a more extensive intro after t100365 made me look bad

t100365

I am so glad you just posted this.  I hadnt been on here in awhile and I was afraid I missed out!  Yeah that I didnt!

This is our story... We got pregnant December of 09' everything looked very good the first sono.  Then I went in for the 8 week sono and there was no heartbeat, measuring 7 weeks had D&C.  Played the waiting game.  Then got pregnant again in March 2010 and had CP.  Then played the TTC game and finally got pregnant 10-13-11, "Yeah".  The very first sono our OB knew there was something wrong I should have been around 6 weeks at that time.  She took HCG and told me to wait a week bc there was only tissue looking things and no sac "Maybe you are just off on your dates" she said.  Then the next week went in for sono and all she could see was still tissue and something that looked like a sac but was abnormal.  That is when we got really upset bc we knew it wasnt going to be a healthy pregnancy.  My husband even told her "Just tells us what is wrong we can handle it!"  She said well "it could be molar or eptopic, but I cant tell for sure."  At that point I had gotton on the rollercoaster and was sreaming to get off but no body would stop the ride.  (this next part is from post I had made before)

I just wanted to get the heck off that ride! First U/S ohhh maybe your dues dates are off, stick me with a needle get HCG levels.  2nd U/S well all I see is tissue but wait it kindof looks like a tiny sac is there, stick me with a needle, send me to a radiologist to have someone else stick something in my hoohoo plus it could be molar or eptopic dont know.  Called me back later that afternoon well your HCG levels went up to 8000 so I am not sure yet come in tomorrow.  Next day go back to OB there is an even bigger sac "yeah maybe it is a baby" ohh wait it looks abnormal.  Again you know the pain with the hoohoo and sticks me with the freakin needle.  Calls me that night to tell me to go to the emergency room bc HCG levels werent right and she wasnt sure if it was eptopic or molar.  She knew they would monitor me incase it was eptopic and schedule D&C for the next morning.  Went to the emergency room (luckily that had the world series playing on the tv in the room for my DH) and they ended up blowing the vein in my arm and stuck that damn ultra sound up my hoohoo again.   I hate that freakin thing!  The they still werent sure so DH and I stayed over night bc my surgery was at 7 the next morning.  Thank Goodness for painmeds that was the only thing that kept me calm.

Ended up having a D&C and at first she said it was a PMP but 5 days later she called and said it was a CMP.  Told the dreaded news that we could not try again for 6 months.

HCG Levels

11-1-11= 450,  11-9-11=25,  11-16-11=2 (come back in one month)

12-12-11=<1

Next follow up January and counting down the days till we can TTC again.

t100365

cg0112358:

I was diagnosed with a PMP on 10/12 after getting the pathology results in from my D&C. I was advised that I would need weekly b/w until my HCG reached zero (less than 5) and then monthly b/w after that for 6 months before I would be cleared to TTC again. My HCG levels were at a 5 at the end of October and I just had my 2nd monthly b/w done today. I should be getting the results from my nurse tomorrow.

I hope you get good results tomorrow.  I am sure they will still be negative!  Let us know what you Nurse tells you!  Also, you ticker is going down pretty fast.  Wont be to long till is has a 3 instead of 4

Also I would love to hear more about your story if you would like to share!

cg0112358

t100365:

cg0112358:

I was diagnosed with a PMP on 10/12 after getting the pathology results in from my D&C. I was advised that I would need weekly b/w until my HCG reached zero (less than 5) and then monthly b/w after that for 6 months before I would be cleared to TTC again. My HCG levels were at a 5 at the end of October and I just had my 2nd monthly b/w done today. I should be getting the results from my nurse tomorrow.

I hope you get good results tomorrow.  I am sure they will still be negative!  Let us know what you Nurse tells you!  Also, you ticker is going down pretty fast.  Wont be to long till is has a 3 instead of 4

Also I would love to hear more about your story if you would like to share!

lol, check out my edited version...for your benefit  

ETA: oh, and my ticker is gonna be moving much more quickly since my nurse seems convinced it's necessary to move up my b/w each month. My first negative was on the 27th of the month and now I'm testing on the 19th. At this rate I might be able to drop almost a month off my TTA period :P 

cg0112358

t100365:

I am so glad you just posted this.  I hadnt been on here in awhile and I was afraid I missed out!  Yeah that I didnt!

This is our story... We got pregnant December of 09' everything looked very good the first sono.  Then I went in for the 8 week sono and there was no heartbeat, measuring 7 weeks had D&C.  Played the waiting game.  Then got pregnant again in March 2010 and had CP.  Then played the TTC game and finally got pregnant 10-13-11, "Yeah".  The very first sono our OB knew there was something wrong I should have been around 6 weeks at that time.  She took HCG and told me to wait a week bc there was only tissue looking things and no sac "Maybe you are just off on your dates" she said.  Then the next week went in for sono and all she could see was still tissue and something that looked like a sac but was abnormal.  That is when we got really upset bc we knew it wasnt going to be a healthy pregnancy.  My husband even told her "Just tells us what is wrong we can handle it!"  She said well "it could be molar or eptopic, but I cant tell for sure."  At that point I had gotton on the rollercoaster and was sreaming to get off but no body would stop the ride.  (this next part is from post I had made before)

I just wanted to get the heck off that ride! First U/S ohhh maybe your dues dates are off, stick me with a needle get HCG levels.  2nd U/S well all I see is tissue but wait it kindof looks like a tiny sac is there, stick me with a needle, send me to a radiologist to have someone else stick something in my hoohoo plus it could be molar or eptopic dont know.  Called me back later that afternoon well your HCG levels went up to 8000 so I am not sure yet come in tomorrow.  Next day go back to OB there is an even bigger sac "yeah maybe it is a baby" ohh wait it looks abnormal.  Again you know the pain with the hoohoo and sticks me with the freakin needle.  Calls me that night to tell me to go to the emergency room bc HCG levels werent right and she wasnt sure if it was eptopic or molar.  She knew they would monitor me incase it was eptopic and schedule D&C for the next morning.  Went to the emergency room (luckily that had the world series playing on the tv in the room for my DH) and they ended up blowing the vein in my arm and stuck that damn ultra sound up my hoohoo again.   I hate that freakin thing!  The they still werent sure so DH and I stayed over night bc my surgery was at 7 the next morning.  Thank Goodness for painmeds that was the only thing that kept me calm.

Ended up having a D&C and at first she said it was a PMP but 5 days later she called and said it was a CMP.  Told the dreaded news that we could not try again for 6 months.

HCG Levels

11-1-11= 450,  11-9-11=25,  11-16-11=2 (come back in one month)

12-12-11=<1

Next follow up January and counting down the days till we can TTC again.

Wow, you have been through so much... I am so sorry  

peloquinJ

Hi ladies,

Thanks for putting this together. I hope some others will come over.

I won't go too in detail as it would be way too long, but here are my basics. I was diagnosed with a m/c on 8/3 and tried for a week to let things happen naturally. D&C was on 8/12 and results came back on 8/26 (when I found out it was a complete molar pregnancy). Early on I had a chest x-ray and six weeks after D&C an u/s, which both came out within normal limits. I have been negative since 9/29. On January 12th I have my next appointment that does not involve just bloodwork. I am hoping to bring research to this appointment and see what the Dr. thinks about starting to TTC again.

• 8/8-122,126
• 8/26-587
• 9/12-28
• 9/29-5 (Dr. considers negative)

cg0112358

peloquinJ:

Hi ladies,

Thanks for putting this together. I hope some others will come over.

I won't go too in detail as it would be way too long, but here are my basics. I was diagnosed with a m/c on 8/3 and tried for a week to let things happen naturally. D&C was on 8/12 and results came back on 8/26 (when I found out it was a complete molar pregnancy). Early on I had a chest x-ray and six weeks after D&C an u/s, which both came out within normal limits. I have been negative since 9/29. On January 12th I have my next appointment that does not involve just bloodwork. I am hoping to bring research to this appointment and see what the Dr. thinks about starting to TTC again.

• 8/8-122,126
• 8/26-587
• 9/12-28
• 9/29-5 (Dr. considers negative)

Quick question for you: since you are on a forced break until Feb 2012, does your doc consider September as your first negative month and you only have 5 months left? 

ETA: Also, we would love to hear your story even if it is long. There are so few of us that I think it is helpful for us to hear each other's experiences. btw, you reminded me to add my chest x-ray to my story, too

peloquinJ

I have forced break until Feb 2012 in my siggy because originally my Dr. said if everything went well the six months would be from the D&C. I've heard different things from the nurses though, which is why I am going to further discuss it in January. I never discussed it since the initially news because I knew I wasn't ready to take the risk anyways, but now I am feeling more confident to bring it up with the Dr. I hope that explains it.

Just for you...thankfully I just started a blog and wrote an entry on my story, so I can just copy and paste the relevant info.  

 

I was thrilled but nervous when I tested on July 9th and found out that we were expecting again (I had gotten pregnant the cycle before and had a chemical pregnancy at 4 weeks, 6 days). I was feeling hopeful with a solid line and a digital pregnancy test showing positive this time. We told my in-laws at six weeks because we don't get to see them too often and wanted to tell them in person. That very same day I started spotting.

I was scared knowing there was nothing I could do, and I was worried that something was wrong with me as it was around the same time week-wise as my previous loss. I tried to stay hopeful as it continued through the weekend. Monday I called the OB and they wanted to do an ultrasound the next day. Betas were drawn and the ultrasound saw a gestational sac. The measurement was about a week to a week and a half behind, but no other indication of a miscarriage was seen. Betas were drawn 2 days later indicating that they were doubling, so the Dr. felt everything was good. I was put on progesterone for the spotting and that worked. I needed a follow-up ultrasound the next week.

That ultrasound ended up being the heartbreaker. There was nothing there including the gestational sac from the week before. The Dr. said I'm sorry, but you are going to miscarry. They did bloodwork again at this point, and the results show that it is higher, but it is not doubling normally. Because it may have gone up prior to the miscarriage they had me do more bloodwork but it went up again.

At my one week follow-up they did another ultrasound and decide that a D&C is needed due to there being so much tissue. It was scheduled for the next day. The D&C was a scary process, but went easier than the anticipation portion. I was supposed to have a follow-up two and a half weeks later, but the office called after a week and a half and said they got the pathology report back and needed to see me sooner. This was one of the lower moments for me.

I kept trying to reassure myself that maybe they just got the results earlier than expected, surely it is nothing. Deep down though I was worried. I had seen information on molar pregnancy before and it was my deepest fear going into the appointment. Well my worst fear was confirmed when I got there. I already put the important stuff from after the diagnosis. 

KelliLynee

I'm so glad to see this group! I didn't realize there were so many other people here who have had a molar pregnancy.

We have a 2.5 year old daughter and started TTC after her first birthday. We had two losses and were anxious, but excited to try again. We got pregnant quickly, but were able to feel comfortable until a confirmation u/s. We went in at 6.5 weeks and did see a heart beat, but it was measuring behind (as was the baby). We were aware that it was possible we would lose this one too. We went in a week later and still saw a slow heartbeat and a small baby. We decided to wait longer between visits & went back 2 weeks later, hoping to get a final answer- either a properly growing baby, or for the baby to have passed. The not knowing was killing us, and given other factors with the pregnancy, we were not hopeful that it would work out. As we expected at that appointment 2 weeks later, the baby had passed. I waited it out a while but didn't miscarry, so I had a D&C. 2 months later I went in for a saline ultrasound to start my evaluation for recurrent pregnancy loss, and there was molar-appearing tissue on u/s, and my HCG was 11,000 (and it was most definitely not a new pregnancy). My doctor determined that the pregnancy must have had a few molar cells and in the 2 months time, it continued to grow (they don't get every piece of tissue during a D&C). I needed a repeat D&C and the preliminary report was that it wasn't a molar pregnancy (it didn't "look" like molar tissue by my doctors eye) but when the pathology report came back it was confirmed to be a partial molar pregnancy (and that it was a boy). Talk about a roller coaster ride!

My doctor wanted us to wait 6 months (initially he said a year, but then I think he did more research and realized those recommendations are changing) but I emailed Dr. Goldstein at Bringham & Womens in Boston and he said (based on hcg levels) that 3 months wait was enough. (My hcg went to zero within 3.5 weeks). We planned on waiting the 3 months, but on that third month the RE that I started seeing needed to do two hysteroscopies to remove some leftover tissue. (It wasn't molar tissue, but we never actually found out- the pathology report was inconclusive). So, we started TTC the 4th month but got a BFN and we are now currently in the 2ww of our 5th month.  

For those who are unaware, Dr. Goldstein (who does research on the subject) says that if your hcg drops to zero (or <5) within 7 weeks of your D&C without any additional intervention (such as methotrexate), then you only have to wait 3 months; but if it takes longer or requires further intervention, you should wait 6 months.

 

Hang in there to the ladies waiting. Sadly, the time sort of flies. That sucks becuase the world just keeps moving on around us, even if it feels like we are standing still. But its sort of a blessing, I can't believe my due date has come and gone, and I am still not pregnant (as with my other two losses).

Greenbean0906

Hello ladies. Just posting my introduction and story: Current Status: waiting for HCG to reach zero I will start off my saying that we were not temping, charting, etc. to get pregnant. We decided that we would stop trying to prevent to see if it would happen naturally and it did after two months. I got a positive pregnancy test on Christmas morning. Perfect right? Ughh so far from it! I called the doc to schedule an appointment and they wouldn't see me until 8 weeks. So my appointment was with a midwife who did an internal ultrasound. She said I'm sorry but I'm not seeing what I should be seeing at this many weeks and that I did not have a viable pregnancy. I had a gest sac but nothing visible inside. She also stated and showed me a dark spot near the sac and said it was blood and that I would miscarry any day. She ordered blood tests and a more in depth ultrasound in radiology to make sure it was not tubal and recommended I schedule a Dnc. We left the office in a distraught state. We decided to wait 2 weeks in limbo just in the rare chance that I ovulated super late or something of that sort. I had blood tests every 48hours for these 2 weeks & 2 ultrasounds. My hcg levels were slowly rising at first (which gave us a tad bit of false hope) but did eventually drop. Here are my numbers: first blood test was at 13,000 then jumped to 14,500 in 48 hours. Another blood test 48 hours after that which went to 16,300 then final number was 15,000.  After this drop I had one last ultrasound which showed a slightly larger gestational sac with no growth inside. At this point the pregnancy was confirmed not viable. I had not bled nor spotted. The only ?sign? of miscarriage I had were I guess lack of pregnancy symptoms. I was diagnosed with a missed miscarriage with a blighted ovum. They gave me my options and I went with the D&C. I learned a lot about my body during this whole process included 1. I have a tilted (retroverted) uterus and that my blood test is A-(which meant I had to get the RhoGAM shot) The procedure went well and was feeling like myself within a week. Well of course until I got the dreaded phone call one week post D&C. My doctor said ?the products of conception were tested and highly suggest molar pregnancy?. This was my worst fear coming true. I had an emotional breakdown with several anxiety attacks in the following couple days which I?m sure were brought on by what Dr. Google taught me about molar pregnancies. My best advice to anyone with a molar is to listen to your doctor and stay away from the internet. (well, besides the bump of course J) So, my first blood test was on Valentines Day. My results just came back today. The nurse also explained that I had a partial molar pregnancy. 2/16/12:  HCG of 106