XP: WTF appt
Mrs.McIrish
member
I had my WTF appt today from IVF#2. My RE will not cycle me again unless I do DE. She said I have a numbers problem (ie don't get enough eggs) and a poor quality problem so she doesn't see the point in trying again. If my quality was better or number of eggs was higher, she would let me keep going but she feels like it's less than a 5% chance now with IVF. So I have the same likelihood of getting pg with IVF as I do naturally... I was given the DE packet of info, signed a medical release form in case I want to get another opinion and that's it...
I feel like there is no where left for me to try in my area and everyone else in MA/RI will tell me the same thing. I can't justify traveling to another area unless there was something drastrically different to try. With a 5% chance, I don't know that I can spend the $$ if we are going to consider DE. It's one or the other and I'm afraid I will end up with nothing. I'm just broken.
TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
5 IUI's: 2/11 to 6/11 and 1/12= BFN
OE IVF#1-4 8/11-6/12= all BFN
DE IVF#1 11/12 bad embryos= BFN
DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
DE IVF #3 1/14 ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d
DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!
K & K born 11/21/14 at 38wks 4 days
SAIF/PAIF Welcome
Re: XP: WTF appt
I hate that you are going through this, McIrish. I am so, so sorry and can't think of any encouraging words. I hope that it helps at least a very small bit to know that we are rooting for you and here for you.
I'm so sorry McIrish. Like owlprof, I am afraid I can't think of anything to say that will make you feel better. You have really fought the good fight all the way through and there are no words except for I'm so sorry. Huge hugs to you.
It's heartbreaking, rage-inducing, terrifying, confusing and completely unfair.
Hang in there, hon. I hope more time and distance from the constant onslaught of treatments will help you and your DH sort out the future.
Me: 36, DH: 42
Dx: DOR and MFI
DH: low count + very low motility; hormones all normal; Sperm DNA Frag. test = poor to fair; male karyotyping normal
Me: FSH 13.4 + AMH 0.26 + hypothyroidism; Scratch the hypothyrodism (?); Blood clotting and immune panel all negative; endometrial biopsy normal
IVF #1 (MDLF - Jul/Aug 2011): BFN (9R, 5M, 3F with ICSI, 3dt of 1 10-cell grade 2, no frosties)
IVF #2 (EP-antagonist - Sep/Oct 2011): BFN (6R, 4M, 3F w/ ICSI, 3dt of 1 6-cell, 1 7-cell, grade 4s, no frosties)
DE IVF #1 (shared cycle - June 2012): c/p (6R, 6F w/ICSI, 3dt 1 8-cell grade A- and 1 7-cell grade A-; no frosties)
DE IVF #2 (shared cycle with new donor - Nov/Dec/ 2012): - BFP!!!!! 12/14/12. U/S on 12/27 shows twins!!!!!
SAIFW/PAIFW
**ticker warning**
I'm so sorry they don't have any better answers for you sweetie. IF is so unfair and illogical and stupid.
If you do decide that you want another opinion, you could do a phone consult with CCRM or one of the other clinics that specializes in DOR (CCRM is the only one I know for sure will do an initial consult by phone, but I'm sure some of the others do as well). They might tell you the same thing, but it's possible they could have other ideas and it might help you to at least know that you've tried everything there is to try with your own eggs before moving on to something else.
I know you're in an incredibly difficult position and faced with less-than-ideal options. Best wishes to you in figuring this out. ((Big Hugs))
I'm so sorry, sweetie.
This is heartbreaking. It's awful to be told by the RE she won't cycle you any more with OE, even if you might have decided to go the DE route on your own. It's not fair. Take care of yourself as you grieve. In a few days or weeks you can think through all of your options with a clearer head.
Hugs! I know there is nothing we can say to make you feel better but at least know we are all here for you when you need us.
HSG: good; Estradiol: 62 FSH: 4.4
AMH: 0.75 Progesterone: 9
DH: Volume: 1.2 Motility 34
Concentration: 39.6 Morphology: 5
Looking at IUI in Nov
ME:46 MH:44 DE IVF 2014
Met with RE 4/11. 2 IUI's BFN. DE best option. Switched clinics to do "shared" program. Had to retake all tests and a mamm that put me behind and then on a DE waiting list for 12 months. Picked a donor!! (10/13/13) Got matched. Estimated transfer in December. After 2.5 years of patiently waiting I will finally cycle....can hardly believe it. DE cycle got cancelled. One of her tests came back positive. Waiting for another donor. Donor picked!! (1/18/14)
DE IVF #1 (4/26) BFN DE FET #1 (6/4) BFP! Beta 1=339 Beta 2=852 Beta 3=9957 EDD 2/22/15!!
ME:46 MH:44 DE IVF 2014
Met with RE 4/11. 2 IUI's BFN. DE best option. Switched clinics to do "shared" program. Had to retake all tests and a mamm that put me behind and then on a DE waiting list for 12 months. Picked a donor!! (10/13/13) Got matched. Estimated transfer in December. After 2.5 years of patiently waiting I will finally cycle....can hardly believe it. DE cycle got cancelled. One of her tests came back positive. Waiting for another donor. Donor picked!! (1/18/14)
DE IVF #1 (4/26) BFN DE FET #1 (6/4) BFP! Beta 1=339 Beta 2=852 Beta 3=9957 EDD 2/22/15!!
Yup, it was posted today in fact!
TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
5 IUI's: 2/11 to 6/11 and 1/12= BFN
OE IVF#1-4 8/11-6/12= all BFN
DE IVF#1 11/12 bad embryos= BFN
DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
DE IVF #3 1/14 ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d
DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!
K & K born 11/21/14 at 38wks 4 days
SAIF/PAIF Welcome
http://waitingforraintostop.wordpress.com
Hugs. Even if you already know in your heart, that must have been hard to hear.
Take care of yourself and remember, there's no reason you need to make the DE decision in the immediate future.
You definitely have time to think about this option and feel it out to think if it is right for you. I am sorry that you had to hear that though. The RE can be a very hopeful place and a completely disheartening and mind-numbing place depending on the day. Sending lots of hugs and support your way. I guess we are both dealing with difficult news today...
me (36): Hypothyroid (on Levothroid), low vit. d, borderline/high fsh (day 3: between 7-10) (day 10: 13 during CCCT), AFC: 14
dh (31): awesome (minus one sample with agglutination)
Diagnosis:possible DOR and/or unexplained + elevated NK cells + MTHFR (C677T - one copy)
MAY 2011 - FEB 2012 - 3 injectable IUI's with numerous cancellations due to high TSH levels
MAY 2012 - onto IVF/ICSI (Antagonist Protocol) on BCP and Folgard (3 week delay - cyst - boooo) 5/21 start stims 5/30 ER 11R 8M 3F 6/2 3DT of 3 6/12 Beta #1 83 | 6/14 Beta #2 196 | 6/21 Beta #3 3818 | 6/28 Beta #4 22,213 | 7/2 1st U/S - 2 on board! 8/24 CVS reveals that we have a boy AND a girl on board!
Healthy baby boy and girl born in February, 2013 at 38 weeks and 2 days!
TTC #1 unofficially since 6/09, officially since 10/10
6/11 RE testing,rt tube blocked with hydro, 8/11 lap surgery rt tl
IVF#1 10/11 Estrace,450 Follistim, 15 units low-dose HCG, DHEA - cancelled (only follie growing)
IVF#2 started stims 11/4/11 - same protocol, increase in concentration of HCG, added CoQ10, no response, cancelled on CD 12
12/2/11 began accupuncture; Break in Dec. Next cycle anticipated in Jan.
PAIF/SAIF Welcome
That is heartbreaking news. I'm so sorry.
I have hope that another path will work for you. I think you are meant to be a mother.
Sending you tons of hugs and good wishes.
TTC #2 since July 2010
March 2012 IVF (MDL Protocol) Started stims 3/3; ER 3/11 (9R, 8M, 7F) ET 3/16 (5dt of 2 blasts graded 3AB and 3BA, 3 frosties(!!) Beta 3/26 = 386; Beta 3/28 = 827; u/s 4/11 says TWINS! Boy/Girl Twins delivered at 36 weeks 6 days
Oh, McIrish, I am so sorry. You know how much my heart breaks for you.
At the same time, I have to hand it to your RE for standing her ground and not just allowing you to continue to cycle when she doesn't think it will work for you. In a way, I slightly disagree with one of the PPs -- that is, in a way the RE may have helped you make a decision that could have been too hard for you to make on your own. Don't kill me for saying that!
You will NOT end up with nothing -- many DE programs, including mine, having money-back options. Plus, you are early in the game for DE if that's what you choose to do, though I know you are also on a clock. But you have tons of time to decide, if that's the path you want to take. Give yourself time to grieve, first--I know I did. And still do, even as I go into my DE cycle.
No killing from me. I agree with you. I don't want a doc that is going to sugar coat. It's tough to just throw in the towel when I just need that one good egg. It's got to be in there somewhere and it's so hard to walk away from that thought. My other "new" issue on top of DE is if we do DE, do I remove the ovaries first? I won't need them and apparently doing DE is easily without them as they don't have to sync me up with the donor since I would already be on HRT. Another host of issues to decide. Not sure when this gets easy.. Hope you are still on track for early December ET?
TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
5 IUI's: 2/11 to 6/11 and 1/12= BFN
OE IVF#1-4 8/11-6/12= all BFN
DE IVF#1 11/12 bad embryos= BFN
DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
DE IVF #3 1/14 ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d
DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!
K & K born 11/21/14 at 38wks 4 days
SAIF/PAIF Welcome
http://waitingforraintostop.wordpress.com
IVF #1: 9/13/12. ER: 9/25. 3R, 2M, 1F. ET: 9/28 (1-6B). Beta: moved from 10/11 to 10/10: BFN.
IVF #2: 11/12 cycle postponed due to Sandy and then cancelled due to elevated E2.
IVF #2.1 cancelled due to cyst.
IVF #2.2: 2/2/13. Converted to IUI. BFN
P/SAIF Welcome.
My Blog
TTC #1 since 2009 with unexplained infertility
IUI#1-4 Jan.-Apr. 2011 = BFNs
IVF#1 Aug. 2011 = c/p, FET #1 Nov. 2011 = c/p, FET #2 April 2012 = BFP!
Beta #1 = 153, Beta #2 = 269, Beta #3 = 675
1st U/S = TWINS!! EDD 12/29/12
my blog: Journey to Somewhere
~~PAIFW/SAIFW~~
April IVF Spring Chicks
Aww sweetie, I am so sorry to hear this. I know it sucks.
Where is your DHs head these days on DE? I know he was against it before, is it now a possibility?
I had a dream that I got 20 eggs during my IVF so I passed them out to friends and you got 4 of them. It seemed like the normal thing to do in my dream. You even came over to my house and picked them up. You should know in my dream you are really tall, really skinny and have flame red hair. : )