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Anyone have myasthenia gravis (occular)?

rosesandpeoniesrosesandpeonies member
in High-Risk Pregnancy

Just curious about pregnancy and dealing with this condition.  Does it affect the baby?  What do the doctors say about it?

 

Thanks :) 

DD (8/12/09), DD (2/8/11)
BFP 12/16/14| EDD 8/19/15 |MMC 1/15/15 (9 weeks 1 day)
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Re: Anyone have myasthenia gravis (occular)?

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    MitoRachelMitoRachel member
    I do not have myasthenia gravis, but I take pyridostigmine (mestinon) for a different condition and so far my baby is doing great (I'm at 23 weeks). I hope you get some replies from people who actually have your condition.
    Married to E on June 5, 2010
    Gave birth to baby boy, I, on March 25, 2012
    Gave birth to baby girl, A, on May 20, 2013
    Baby #3 due April 29, 2015

    Recovering from mitochondrial dysfunction and Addison's/possibly very severe adrenal burn out using food, medicine, and a large amount of garden therapy.
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    Punken13Punken13 member
    I have MG not occular though.  This is my 3rd pregnancy.  I have always had a c-section.  My boys all spent a little time in the NICU after birth, as will this little guy.  My first spent 2 days in the NICU for observation only...he did have some temp issues but the was unrelated ot the MG.  MY second spent about 9 hours again only for observation and he was a preemie again unrelated to the MG.  During pregnancy my MG tends to improve.  I was on Mestinon with my first but DS#2 and DS#3 I am on only prednison..this time I am on my lowest dose ever since I was diagnosed 23 years ago.  Please feel free to PM me at anytime!



    Court
    DH 40  ME 40
    GD, Myasthenia Gravis, Factor V Leiden

    DS #1 born via emergancy c-section 01/23/06 at 37w

    DS#2 born via c-section 10/27/2007 at 36w due to PROM

    DS #3 born via repeat c-section 04/13/2012 at 39w



    "Life is not measured by the number of breaths we take,but by the moments that take our breath away." - George Carlin
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