Over 35

Lesleyjking

Hello everyone, I hope you dont mind me butting in as I wont be a "parent" till March.

I am hoping to hear maybe other stories of what I am going through.

At 16 wks my dr found a CPC on my U/S- which could mean trisomy 18, basically the baby doesnt live more than a day or two tops. However there are almost always other markers, and since there were not on my U/S-he said to forget he even told me as they are also very common.

At 19 wks they found an EIF- a bright spot on the heart. They said this too is very common, but could be a marker for downs syndrome. Unlike T 18, there doesnt neccesarily need to be other markers for it to be downs, so its harder to say with confidence its not downs syndrom. We opted not to do an amino as the risk is too great for an M/C, and it wont change the health of the baby "knowing" for sure if it is downs or not.

Ive spoken with several drs and they all said  the brain cyst and the bright spot on the heart have zero coorelation, meaning one doesnt have anything to do with the other.

I am not completly stressing out, but this does sit in the back of my brain that my baby may have downs syndrome.

Any similiar stories would be great, thank you

stever

First, congratulations on your LO. Second, I am so sorry for the uncertainty caused by the u/s.

There was a girl on here whose sweet boy has Down's and I remember how nervous she was before she had him(though I believe she had an amnio). She doesn't post on here much anymore but I'll see if I can track her down. Her SN is Indianasunshine.

In the meantime, if there are any ladies on here who have been through this I'm sure they'll be able to help. 

Good luck!

mwd

Congrats on being pregnant!  Since you have opted not to do the amnio, it sounds like you've accepted the outcome regardless.  You have approximately 18 weeks to find out.  Yes, that seems like forever, but it will go so fast! 

Do a post for Indianasunshine, she's a real sweetheart!  Good luck, and post any time!

BrideBuddies

Congrats on the impending parenthood!   And ditto--Definitely track down Indy.  But maybe my story will help a little. 

I was told we had a 1 in 5 chance of having a Downs or Tri-18 baby based solely on the bloodwork.  So I can totally understand all the emotions you're going through right now.   We also did not opt for amnio or CVS for fear of a miscarriage.  At my "advanced" age, we figured this is/was our only shot at a kid.  (I was 42 at the time),   As the weeks passed, I started to feel more and more that everything was okay.  I also had a very seasoned U/S tech who felt very confident that C did not have Downs.  (We'd pretty much ruled out Tri-18 early on.. he didn't have the characteristic clenched fists, etc).   Was that a false sense of security or just denial?  Maybe.

We did a lot of prayer and candle lighting at church and really left it up to God as to what would happen.  Not to be all preachy, but I do think there's a positive benefit to that kind of thinking.  Heck, it can't hurt.  But every follow-up appt, there were no markers and no indications of any issues and Charles is perfectly healthy.

I have heard of quite a few people who get markers and in-utero problems for various things, especially Downs, and things can correct themselves over time.   It's not unheard of at all.   Keep up the positive attitude! 

1CINCYGIRL

     My friend was also given a possible diagnosis via ultrasound that her baby may have down syndrome.  They decided to have an amnio and found out baby has down syndrome. 

     They decided to get amnio because they had 2 other kids and wanted to get their support systems in place for any problems that may happen after the delivery.  They joined a down syndrome support group while she was pregnant to educate themselves and establish friendships and support from others who have been through the same thing.  Little Ms. Baby "M" went home 2 days after delivery, yes she did have typical down syndrome complications that needed intervention later, but she is a VERY happy 2 year old. 

     My friend was very happy to have the support from her support group, and they meet often for play dates.  Maybe you can check out where a support group is near you and maybe check into meeting times for future reference or possibly attend before the delivery.  This may help with the stress you feel.  Congrats on your baby!

 

ateytelb

Congratulations!

It is your desicion of course, but why not go for the amnio so you don't have to face that uncertainty for the rest of your pregnancy? Maybe 20 y. ago there was a high risk of m/c but the way it is done not the risk is actually very low.