new with some questions:) -probably going to be long

babyitsyou

Hi everyone! My son is 11.5 months old and he is the reason I'm here. I guess our food sensitivity concerns started when he was only a month old. At about a week old he started holding his breath while he nursed and was constantly vomiting. The ped put him on zantac. That helped for about a week and then it started again. So the dose was increased, then prevacid was added. At about a month old I stated doing an elimination diet and that helped for awhile. Around 3months it started all over again. Again dosage was adjusted. Around 5 months we finally were refered to a pediatric GI. This whole time he has had awful weight gain and was diagnosed failure to thrive. The GI suggested giving him a hydrolized formula, which broke my heart. The only one he didn't throw up was Elecare, which he has been on since 7 months. His weight gain has still continued to be poor. When we started introducing solids, he didn't have any reactions at all. Then about a month ago the GI said it was ok to introduce dairy. The possiblity of celiacs was mentioned because I had just been diagnosed with hashimoto's disease. I thought he had already been eating gluten foods so we did the blood test. I just recently realized that he hadn't. So within a hour of introducing the yogurt he got really bad diarrhea and an awful diaper rash, so I didn't give it to him again. Within 24 hours it was gone. That same week he had his first sandwich for lunch and some bread with pasta (brown rice). About a week later the diarrhea started again and continued for 2.5 weeks. All of the cultures came back negative for bacteria or paracites, but multiple stools tested positive for blood. I stopped all gluten and within a few days the diarrhea started getting better. He did have rast testing done at 4 months and it came back normal, but the GI dr said they aren't reliable in kids that young. The celiac panel came back with low iga, so I guess that makes it inconclusive. Wow, I really appreciate those who made it through all of that!!! I'm still waiting for a call back from the GI. I'm wondering what to expect our next steps should be? Is there anything I should make sure to cover or to ask? I'm starting to feel a little overwhelmed already. So many people and drs have convinced me that by a year he should grow out of these sensitivities. I never really worried about what if he didn't:( Thank you so much for any help or guidance you can offer.

magdusia

poor little guy!  I hope he grows out of everything.. but i can promise you everything does get easier.

I never took my son to a GI, just an allergist so i'm no help with your question. There are many mama's with celiac here (or their kidos). 

g_belle

I'm not too familiar with the celiac's dx- but if those results are "inconclusive", I'd consult with a pediatric allergist to interpret the results and maybe to some further/additional allergy testing. 

babyitsyou

Thank you ladies so much! I found out more today and the dr wants to do an endoscopy. I guess the test isn't inconclusive, its invalid. The iga result makes the rest of the test meanless. So the endoscopy will give us a definite answer and also see where the bleeding is coming from.