sleep study results and questions

Mbitner

Hey ladies- I have his sleep study report....but haven't spoken to doctor about it yet.  He had his first sleep study at 1 year of age and just had this one a couple weeks ago. We already had confirmation of central sleep apnea and spontaneous arousals from first one.  Results from recent study: Central sleep apnea 4.39/hour. It noted one 19 second central sleep apnea with hypoxic burden at 87% saturation. He has 16.9 spontaneous arousals per hour.  He is already on 3mg of melatonin at night to help fall asleep.  We were waiting for these results but specialist recommended increasing melatonin and adding a rx sleep medicine (cant remember what it was) once we had results in.  His arousals and lack of sleep really affect him every day....and this night was actually a good sleep night for him. Any thoughts?  Should I be concerned with the one hypoxic burden event?  What if it is occurring more often and for longer periods of time and I do not know about it?  What if I am making him cry it out and he is really waking up bc he is having problems breathing?  What sleep medications are your LO's on if they have spontaneous arousals?  Dx is central sleep apnea NOS.  One comment is that central sleep apnea may be due to brain immaturity.  Thoughts?  Thanks! 

ksproul

I don't really have any advice for you--just wanted to let you know you are not alone. My LO was diagnosed with apnea of infancy at 3 weeks after I found him with blue lips. He has 48 episodes in 12 hour time period the longest episode being 16 seconds--however, he had 8 oxygen desats the lowest being 81%. He's on a monitor but when we went to our pulmonary appt I expected answers. Instead we saw the physicians asst and he was just like Oh, hes probably fine..doesnt look horrible. He said not to worry about oxygen desats unless his heartrate gets low? I was hoping for answers-or for him to be on the monitor for longer since we don't know what is causing it and since his recent monitor download had a 19 sec episode. He has laryngomalacia and GERD which I believe can all attribute to his apnea and all of these conditions are supposed to improve by 9 months earliest so I don't see why the physicians asst would want to take him off his monitor at 3 months Anyways I just wanted to let you know you are not alone, I wish I had answers but I'm not getting much help anywhere-hopefully you do. I did post of this website-www.apneasupport.org and go to the pediatric section. There are sometimes helpful people on there. Let's hope our LO's get better!