my story

renee495

Hi, I would like to take a minute to share a little about myself and my son with everyone here. My son has recently been diagnosed with CP. He was born at 36 weeks. I had preeclampsia and after delivery we found out he had a tight nuchal cord. He is a wonderful baby. He is going on six months and only after moving across the country twice, and convincing his new pedatrician to refer him, have we seen a neurologist to confirm his dx. I'm a young single parent. This is my first child. Any advice?

Florak8

Welcome!

MaxandRuby

Hello and welcome! DS2 (almost 2yr) was diagnosed with CP at not quite 10mos old. He was born at 35wk, 5d and there was a clot where the umbilical cord and placenta met. We had a MRI that confirmed the clinical diagnosis of CP.

We are a military family so the most annoying thing is having to redo referrals whenever we PCS (we just did it so I am in the process of doing it again). We get services through early intervention and then also outpatient therapy. DS2 has done really well and is making great strides although he is still behind. 

In regards to advice, learn what you can from the therapists and have your daycare providers and yourself do them also. It will take many many many repetitions of things before he gets things down. It can be frustrating at times but the joy you'll have when you see him do something he wasn't previously able to do makes it all worth it. Movement is rote memory so the more he does them, the more he'll learn.

Feel free to PM me if you have any questions.