Needing to have a pity party...

campbaby76 · August 2011

And you april ladies are all I've got! Lol. I am currently sitting at my dr.s office getting a medicine infusion. I have an autoimmune disease and it is in a wicked flare meaning my muscles are really weak and I have been having horrible headaches. My muscle enzymes are at 5200 the normal range is 50- 100. The meds she is giving right now is meant to give me a little boost because we are flying to Ohio on Friday. My doctor and I discussed what to do next. I'm so sad, I had to stop bfing to take some meds and they just haven't worked. I've been giving myself a shot once a week and then I take this other med that makes me have some serious GI issues. My options next are either A chemo drug that my insurance probably won't approve at $25,000 a dose or a different infused med that they give over 8 hours per day for 5 days straight. For this they come to the house. At least I have a great sitter for jack who comes to my house. I have done both in the past and they seem to work for a while and then they don't. I'm sad and frustrated. I seriously hate this stupid disease. There are some silver linings to it but since I'm deeply immersed in my pity party right now I'll save those. Thanks for listening ladies!