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Looking for moms of infants with seizures...

urbanflowerpoturbanflowerpot
in Special Needs

Hello, I'm over from the Preemie boards. DS's NICU neighbor was on the preemie fence (36 weeks) but had a significant stay in NICU because of seizures. They don't know why and now a couple months later they've started up again.

She could really use someone who can relate to this issue specifically. She isn't on TB (yet) but if you think there might be a support network here for her she'd become a Bumpie :)

Anyone out there? <3

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Re: Looking for moms of infants with seizures...

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    ally81698ally81698 member
    my daughter has been having seizures since she was 3 days old in the NICU.  unfortunately, there are actually a few people on here with children who have seizures.
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    Florak8Florak8

    Yes, lots of epilepsy mommas here. :)

    She should also "like" the Epilepsy Foundation on FB. Lots of good info! 

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    rivergrlrivergrl

    Oh goodness! Thank you Stephanie!  You are amazing!

     I did start a thread of my own ;)  but it's nice to see others!  I sometimes feel so alone in this...while I have lots of mamas to talk to, it's not the same as mamas of babies with epilepsy!   

      

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    urbanflowerpoturbanflowerpot
    Ohh good!!! I've been thinking of you lots!
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